To help patients make informed choices about their care, the United States Department of Health and Human Services (HHS) is improving the quality and accessibility of data needed to determine which treatments and care options work best. Resources from the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) support HHS data infrastructure projects that engage patients and improve the collection of data from patients about their care. Using these data in health outcomes research helps ensure the evidence generated reflects patient preferences, needs, goals, and values.
This report highlights OS-PCORTF project activities to engage patients, project accomplishments, and potential future work to enhance data for research.