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Privacy and Health Research
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[Click here to download a zipped WordPerfect 5.1 version of this report]
A Report to the U.S. Secretary of Health and Human Services
OFFICE OF THE ASSISTANT SECRETARY
FOR PLANNING AND EVALUATIONFrom:
William W. Lowrance, Ph.D.
Consultant in Health Policy
18A, Quai du Seujet
CH-1201 Geneva
Switzerland
+41 22 738-4243 telephone
+41 22 738-4288 telefax
lowrance@iprolink.chDivision of Data Policy
Office of Program Systems
Office of the Assistant Secretary for Planning and Evaluation
U.S. Department of Health and Human Services
200 Independence Avenue, SW
Washington, DC 20201 -
Preface
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Executive Summary
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1. Coupled Societal Goods: Privacy and Research
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2. Health Data and Data Holders
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3. Data from Research, Research on Data
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4. Identifiability, Consent, and Protections
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5. New Laws in Europe
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6. The U.S. Legal Context
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7. Major Current Issue Clusters
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8. Principles
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Appendix: The Author, and ASPE
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