This is the PDF version of the final Summit report, which includes the recommendations, prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care). Originally dated April 27, 2018; small changes were made on May 16, 2018.
This report to the Advisory Council on Alzheimer's Research, Care and Services presents the results of the first National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers (the Summit), held on the National Institutes of Health (NIH) campus on October 16-17, 2017. The Summit complements the National Institute on Aging's (NIA) Alzheimer's Disease Research Summits and the National Institute for Neurological Disease and Stroke (NINDS) Alzheimer's Disease Related Dementias Summits, and follows the same general structure. These conferences are coordinated planning efforts that respond to the National Plan to Address Alzheimer's Disease, first released in 2012 and now updated annually. Following the example of the earlier NIA and NINDS Summits, this Summit was intended to set national research recommendations that reflect critical scientific priorities for research on care and services for persons with dementia and their families. The Steering Committee and organizers of this Summit solicited input from nationally and internationally recognized experts and researchers, and other public and private sector stakeholders, to develop prioritized recommendations. The recommendations included in this report will help guide investments by a number of public and private stakeholders in the field of care, services, and supports, and will provide the structure for future summits.
More information about the Summit is available at https://aspe.hhs.gov/national-research-summit-care-services-and-supports-persons-dementia-and-their-caregivers.