Individuals' Awareness of a Dementia Diagnosis Issue Brief


This study examined the characteristics of people who do not report having a diagnosis of dementia, despite a documented diagnosis by a health care provider, to health understand the factors that may contributed to their lack of awareness or failure to report. Understanding these factors is a key to taking steps to increasing awareness.

This brief was prepared by RTI International under contract #HHSP23320160001I with the U.S. Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation, Office of Disability, Aging and Long-Term Care Policy. For additional information about this subject, visit the DALTCP home page at or contact ASPE Project Officers at HHS/ASPE/DALTCP, Room 424E, H.H. Humphrey Building, 200 Independence Avenue, S.W., Washington, D.C. 20201,

DISCLAIMER: The opinions and views expressed in this report are those of the authors. They do not reflect the views of the Department of Health and Human Services, the contractor or any other funding organization. This report was completed and submitted on September 2019.


"DemAwareIB.pdf" (pdf, 532.12Kb)

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