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Advisory Council January 2020 Meeting Presentation: LTSS Federal Update

Monday, January 27, 2020

Printer Friendly Version in PDF Format (11 PDF pages)


Long-Term Services and Supports Federal Update


Administration for Community Living

Alzheimer's Disease Programs Initiative - Grants to States and Communities

NAPA Goals 2 , 3 , 4

National Alzheimer's and Dementia Resource Center

  • 2020 WEBINAR Series
  • January 28, 2020--2-3 p.m. ET, Finding the Right Fit: Choosing Dementia Caregiving Programs for your Organization and Community, Presenters: David Bass and Heather Menne
  • February 12, 2020--3-4 p.m. ET, Occupational Therapy and Social Work: Offering community-based approaches to support PLWD and their caregivers, Presenters: Stephani Shivers and Jane Gruner
  • April 8, 2020--3-4 p.m. ET, LBGTQ Elders and Dementia, Presenters: Awaiting Confirmation
  • May 19, 2020--2-3 p.m. ET, Addressing Dementia in Indian Country: Where we are and What comes next, Presenters: Mike Splaine and Tribal Elder

NAPA Goals 2 , 3 , 4

RAISE Family Caregiving Advisory Council

    • ACL is requesting information from individuals and organizations to assist the Advisory Council in developing goals, objectives and recommendations for an initial report to Congress and national family caregiving strategy. The input will also help the Council plan public listening sessions. Provide input by February 7, 2020 at:
    • February 11 and 12, 2020
    • Information to register to access streamed meeting can be found on the Advisory Council website

NAPA Goals 2 , 3 , 4


Centers for Disease Control and Prevention


CDC screenshot of a new website animated graphic.

Media Awareness Campaign

Alzheimer's Disease--Updated Curriculum

Innovation in Aging

Aging and Health Matters -- PODCAST SERIES

Addressing Alzheimer's Across the Whole Public Health Agency: A Washington State Case Study

Healthy Brain Research Network

Cover shots of 7 Prevention Research Center descriptions.
Seven-funded partners. Mission Accomplished!


  • Notice of Funding Opportunity
  • Five year, multi-component announcement for Alzheimer's and related dementias (ADRD) public health activities. NOFO activities are expected to promote brain health, address cognitive impairment including ADRD, and support the needs of caregivers (unpaid persons providing care or assistance to someone with ADRD).
  • Component A
    • Fund an organization with national scope and reach within states, to develop and implement public health strategies guided by the Healthy Brain Initiative (HBI) Road Map Series.
  • Component B
    • Fund organizations to support populations with a high burden of Alzheimer's disease and related dementias (ADRD).
  • Application Deadline: CLOSED
  • For more information:

Building Our Largest Dementia Infrastructure (BOLD)

  • The Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act was passed into law on December 31, 2018 (P.L. 115-406) and amends the Public Health Service Act (Section 398A; 42 U.S.C. 280c-3-4). The activities outlined in BOLD are designed to create a uniform national public health infrastructure with a focus on issues such as increasing early detection and diagnosis, risk reduction, prevention of avoidable hospitalizations, and supporting dementia caregiving. It's designed to promote implementation of CDC's Healthy Brain Initiative State and Local Public Health Partnerships to Address Dementia: The 2018-2023 Road Map and the Indian Country Road Map.
  • The BOLD Infrastructure for Alzheimer's Act directs CDC to:
    1. Establish Alzheimer's and Related Dementias Public Health Centers of Excellence
    2. Award funding to public health departments
    3. Increase data analysis and timely reporting

BOLD Notice of Funding Opportunities (NOFOs)

  • Building Our Largest Dementia Infrastructure (BOLD)--Public Health Centers of Excellence to Address Alzheimer's Disease and Related Dementias (CDC-RFA-DP20-2005)
  • Building Our Largest Dementia Infrastructure (BOLD) -- Public Health Programs to Address Alzheimer's Disease and Related Dementias (CDC-RFA-DP20-2004)
  • For more information:

National neurological conditions surveillance system (NNCSS)

  • Authorized as part of the 21st Century Cures Act
  • $5 million appropriated for FY2019
  • Goal is to provide useful estimates of neurological conditions in the US
  • Work will be done in 3 stages
    • Multiple sclerosis and Parkinson's disease selected for proof-of-concept projects
    • CDC is evaluating in-house data sources; will explore new data sources as resources allow
    • CDC plans to build out NNCSS and expand to other neurological conditions as resources allow in years to come
    • No decisions yet announced on additional conditions to be included
  • Developed at CDC but not by Alzheimer's Disease and Healthy Aging Program
  • CDC AD+HAP will receive updates as demonstration projects progress

Stay Connected to CDC

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