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Advisory Council April 2014 Meeting Presentation: National Plan 2014 Update

Tuesday, April 29, 2014

National Plan to Address Alzheimer's Disease: 2014 Update

Helen Lamont
Rohini Khillan
Office of Disability, Aging, and Long-Term Care Policy
HHS Office of the Assistant Secretary for Planning and Evaluation

2014 Update Development

  • Report on progress
  • Incorporate recommendations of Advisory Council received February 2014
  • HHS agencies and federal partners identified both next steps to actions on National Plan and new areas of work
  • Collaboration and identification of other federal partners doing relevant work
  • Many of the actions in the original Plan and 2013 update are ongoing

New in 2014

  • Add links and direct readers to work as much as possible
  • Update action items with more detailed information
  • Finish before May 2

Goal 1: Prevent and Effectively Treat Alzheimer's Disease by 2025

  • Two new actions based on ADRD Workshop in May 2013
    • Action 1.A.7: Create milestones for goals based on ADRD workshop recommendations (based on Recommendation #3)
    • Action 1.A.8: Regularly convene ADRD Summit-- next one in 2016
  • Collaborative work to educate on brain health
    • Action 1.E.6: Provide educational materials to aging, disability, and public health networks.
  • Leverage research on neurodegeneration between DOD and VA
    • Action 1.E.8: Focus on four areas: healthcare delivery, quality of life, access to care, and building partnerships.

Goal 2: Enhance Care Quality and Efficiency

  • Develop target, strategies, and milestones for dementia-capable primary and specialty care workforce
    • Action 2.A.1 (based on Recommendation #12)
  • Help state LTSS systems become dementia-capable
    • Action 2.A.13 (based on Recommendation #14)
    • Action 2.A.14: Expand availability of services to underserved populations
  • Link to broader improvements to LTSS
    • Action 2.A.15: Fair Labor Standards Act (based on Recommendation #17)
    • Action 2.A.16: Final rule on HCBS for Medicaid waivers 1915(c), 1915(i), 1915(k)
  • Continue work on measuring high-quality dementia care and identifying meaningful outcomes
    • Actions 2.D.1, 2.D.2, 2.D.4
    • Based on Recommendation #9
  • Clarify and disseminate information on privacy, autonomy, and safety
    • Action 2.D.5
    • Based on Recommendation #10
    • Work with Tia Powell; Ethics Subcommittee
  • Explore opportunities to use health information exchange to support providers and people with AD
    • Action 2.F.5: Referrals and transitions in care
    • Action 2.G.4: Care plans
    • Action 3.B.17: Technological solutions for family caregivers
    • Based on recommendation #27
  • Populations disproportionately affected by AD
    • Action 2.H.3: Webinar for providers on younger-onset dementia
    • Action 2.H.4: Explore models of family support for people with intellectual disabilities as they age (based Recommendation #16)

Goal 3: Expand Supports for People with AD and Their Families

  • Enhance disaster preparedness
    • Action 3.B.15: Webinars for family caregivers and aging and disability networks
  • Engage law enforcement
    • Action 3.D.10: DOJ trainings and resources
    • Action 3.D.11: Develop best practices, share as a guide
  • Compendia of state policies on residential care and adult day health
    • Action 3.B.16: Detailed regulatory information for each state

Goal 4: Enhance Public Awareness and Engagement

  • National education and outreach initiative
    • Action 4.A.1: Focused on awareness of cognitive impairment (based on Recommendation #7)
  • Improve coordination between IHS, Tribal, and Urban Indian health programs with Aging Network
    • Action 4.B.5: Focused on four person-centered goals (from Recommendation #9)
  • Enhance global collaboration
    • Action 4.C.1: Continue work from G8 Dementia Summit in December 2013
    • US will attend legacy meetings
    • Host legacy meeting in conjunction with AD Research Summit in February 2015

Goal 5: Improve Data to Track Progress

  • Chartbook on characteristics of people with AD and their caregivers
    • Action 5.A.6: Based on government-sponsored data
  • Develop consistent set of ICD-9/ICD-10 codes for analyses of administrative data
    • Action 5.A.7
    • First step to analyses of administrative data Crosswalk to ICD-10 and DSM-V
    • Important first step for analyses of demonstrations (which are in Recommendation #11)

2014 National Alzheimer Plan link