Tuesday, April 29, 2014
ACT on Alzheimer's Presentation
What is ACT on Alzheimer's?
- Statewide
	- 60+ organization
 
- Volunteer driven
	- 300+ individuals
 
- Collaborative
- Impacts of Alzheimer's
	- Budgetary
- Social
- Person
 
Genesis of ACT on Alzheimer's
- 2009 Legislative Mandate for Alzheimer's Disease Working Group (ADWG)
- Legislative Report Filed in January 2011
- ACT on Alzheimer's is second generation of work focusing on implementation
Collaborative Structure
- 45+ Leadership Council
	- Advisors
- Strategists
- Champions
 
- 10+ Management Steering committee
	- Organizations actively involved in day-to-day operations
 
- 300+ Operations
	- Executive Lead
- Project Director
- Project Manager
- Five Leadership Groups
- Fiscal Sponsor
- Community ACTion Teams
 
Goals/Common Agenda of ACT
- Identify & Invest in Promising Approaches
- Raise Awareness & Reduce Stigma
- Equip Communities
- Sustain Caregivers
- Increase Detection & Improve Care
Identify and Invest in Promising Approaches
- Economic model to identify promising approaches that control costs associated with Alzheimer's
- Initially use model to estimate savings and return on investment for in-person caregiver support
- Results reflected in Health Affairs and subsequent Net Savings analysis
** Funders: UCare; BCBS; Care Providers of MN Foundation
Increase Detection and Improve Care
- Develop and disseminate Practice Tools that support providers in assessing, diagnosing, treating and managing dementia
- Develop dementia curriculum for health professionals and standards for health care homes
** U of MN Center on Aging (HRSA funds)
Audiences for Provider Tools
- Primary Care Providers/Health Care Homes
- Care Coordinators
- Community Based Organizations
- Persons with Early Stage AD; Care Partners
- Direct Care Service Staff Trainers
- Mid-Late Stage Providers
- Professional School Faculty
- Electronic Record Providers
Sustain Caregivers
- Enhancements to MinnesotaHelp.info
- Dementia capable Senior LinkAge Line staff and Caregiver Coaches
- After a Diagnosis, caregiver tool
**Leveraged DHS SystemsIntegration Grant
Equip Communities and Raise Awareness
- Develop a Community Toolkit to foster dementia friendly communities
- Support community implementation of the toolkit
*Funders: Blue Plus, MN; Medica Foundation; Greater Twin Cities United Way
Dementia-Friendly Community
- Early diagnosis and quality care and support
- Dementia-aware and responsive customer service
- Suitable transportation and public spaces
- Emergency preparedness and response
- Independent living and quality of life support
- Welcoming and supportive spiritual environment
- Dementia-aware and responsive client services
- Specialized memory loss services
Foundation for Dementia Community Toolkit
- Informed by research regarding stages of community readiness and engagement
	- Initiate mobilization
- Establish organizational structure
- Build capacity for action
- Plan for action
- Implement
- Refine
- Institutionalize
 
Four-Phase Community Toolkit
- Convene: Action Phase 1
	- Convene key community leaders and members to form an Action Team.
 
- Assess: Action Phase 2
	- Assess current strengths and gaps within the community.
 
- Analyze: Action Phase 3
	- Review findings to understand your community's needs anddevelop a plan to take action.
 
- ACT Together: Action Phase 4
	- ACT Together to pursue priority goals to foster community readiness for dementia.
 
Action Team Composition
- Action Team
	- People with Dementia
- Family Caregivers
- Actions
		- Residential Settings
- Wellness
- Faith Community
- Diverse & Underserved Populations
- Service Clubs
- Financial & Legal Planning
- Business
- Non-Profit Organizations
- Educational Institutions
- Senior Service Providers
- Government Agencies
- Health Care Community
- Community Members
 
 
Assess--Capacity for Action
- Approach
	- Informal method to gauge community readiness, raise awareness, create linkages and spark momentum for change
- A conversation, not a study
 
- Multi-Sector Scope
	- Action Team
- Adult Day
- Caregiver Supports
- Employers
- Health Care Providers
- Clinics
- Transportation
- Home Health Providers
- Hospitals
- Legal and Financial Planners
- Local Government
- Residential Settings
- Social Service Agencies
- Community Members (e.g., faith, business)
 
Analyze--Planning for Action
Look for High Priority, Low Activity Areas of Need
Phase-Specific Technical Assistance
| PHASE | ACT on Alzheimer's Technical Assistance | 
|---|---|
| Convene | 
 | 
| Assess | 
 | 
| Analyze | 
 | 
| ACT Together | 
 | 
Action Communities
- Bemidji
- Brainerd/Baxter
- Cambridge
- CLUES (St. Paul/WSP)
- Detroit Lakes
- Edina
- Forest Lake
- Harmony
- International Falls
- MN Council of Churches
- Marshall
- Northfield
- Roseville
- St. Louis Park
- St. Paul Neighborhoods
- St. Paul NE Neighborhoods
- Twin Cities Jewish Community
- Walker
- Willmar
We ACT so You Can ACT!
- Learn more
- Watch the Toolkit videos
- Seed Funding for Action Communities -- 2014
- Questions? Email info@ACTonALZ.org
Join Us!
- ACT on Alzheimer's
- www.ACTonALZ.org
 
        