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Advisory Council April 2014 Meeting Presentation: Minnesota State Plan

Tuesday, April 29, 2014

ACT on Alzheimer's Presentation

What is ACT on Alzheimer's?

  • Statewide
    • 60+ organization
  • Volunteer driven
    • 300+ individuals
  • Collaborative
  • Impacts of Alzheimer's
    • Budgetary
    • Social
    • Person

Genesis of ACT on Alzheimer's

  • 2009 Legislative Mandate for Alzheimer's Disease Working Group (ADWG)
  • Legislative Report Filed in January 2011
  • ACT on Alzheimer's is second generation of work focusing on implementation

Collaborative Structure

  • 45+ Leadership Council
    • Advisors
    • Strategists
    • Champions
  • 10+ Management Steering committee
    • Organizations actively involved in day-to-day operations
  • 300+ Operations
    • Executive Lead
    • Project Director
    • Project Manager
    • Five Leadership Groups
    • Fiscal Sponsor
    • Community ACTion Teams

Goals/Common Agenda of ACT

  • Identify & Invest in Promising Approaches
  • Raise Awareness & Reduce Stigma
  • Equip Communities
  • Sustain Caregivers
  • Increase Detection & Improve Care

Identify and Invest in Promising Approaches

  • Economic model to identify promising approaches that control costs associated with Alzheimer's
  • Initially use model to estimate savings and return on investment for in-person caregiver support
  • Results reflected in Health Affairs and subsequent Net Savings analysis

** Funders: UCare; BCBS; Care Providers of MN Foundation

Increase Detection and Improve Care

  • Develop and disseminate Practice Tools that support providers in assessing, diagnosing, treating and managing dementia
  • Develop dementia curriculum for health professionals and standards for health care homes

** U of MN Center on Aging (HRSA funds)

Audiences for Provider Tools

  • Primary Care Providers/Health Care Homes
  • Care Coordinators
  • Community Based Organizations
  • Persons with Early Stage AD; Care Partners
  • Direct Care Service Staff Trainers
  • Mid-Late Stage Providers
  • Professional School Faculty
  • Electronic Record Providers

Sustain Caregivers

  • Enhancements to
  • Dementia capable Senior LinkAge Line staff and Caregiver Coaches
  • After a Diagnosis, caregiver tool

**Leveraged DHS SystemsIntegration Grant

Equip Communities and Raise Awareness

  • Develop a Community Toolkit to foster dementia friendly communities
  • Support community implementation of the toolkit

*Funders: Blue Plus, MN; Medica Foundation; Greater Twin Cities United Way

Dementia-Friendly Community

  • Early diagnosis and quality care and support
  • Dementia-aware and responsive customer service
  • Suitable transportation and public spaces
  • Emergency preparedness and response
  • Independent living and quality of life support
  • Welcoming and supportive spiritual environment
  • Dementia-aware and responsive client services
  • Specialized memory loss services

Foundation for Dementia Community Toolkit

  • Informed by research regarding stages of community readiness and engagement
    • Initiate mobilization
    • Establish organizational structure
    • Build capacity for action
    • Plan for action
    • Implement
    • Refine
    • Institutionalize

Four-Phase Community Toolkit

  • Convene: Action Phase 1
    • Convene key community leaders and members to form an Action Team.
  • Assess: Action Phase 2
    • Assess current strengths and gaps within the community.
  • Analyze: Action Phase 3
    • Review findings to understand your community's needs anddevelop a plan to take action.
  • ACT Together: Action Phase 4
    • ACT Together to pursue priority goals to foster community readiness for dementia.

Action Team Composition

  • Action Team
    • People with Dementia
    • Family Caregivers
    • Actions
      • Residential Settings
      • Wellness
      • Faith Community
      • Diverse & Underserved Populations
      • Service Clubs
      • Financial & Legal Planning
      • Business
      • Non-Profit Organizations
      • Educational Institutions
      • Senior Service Providers
      • Government Agencies
      • Health Care Community
      • Community Members

Assess--Capacity for Action

  • Approach
    • Informal method to gauge community readiness, raise awareness, create linkages and spark momentum for change
    • A conversation, not a study
  • Multi-Sector Scope
    • Action Team
    • Adult Day
    • Caregiver Supports
    • Employers
    • Health Care Providers
    • Clinics
    • Transportation
    • Home Health Providers
    • Hospitals
    • Legal and Financial Planners
    • Local Government
    • Residential Settings
    • Social Service Agencies
    • Community Members (e.g., faith, business)

Analyze--Planning for Action

Look for High Priority, Low Activity Areas of Need

Phase-Specific Technical Assistance

PHASE ACT on Alzheimer's Technical Assistance
  • Broad coalition building
  • Communications templates and support
  • Local coordinator support and structure development  
  • Multi-sector survey tool for dementia capability
  • Participant orientation, engagement and facilitation
  • Synthesis tool and community needs identification
  • Goal prioritization
ACT Together  
  • Collection of best practice intervention strategies
  • Seed funding to implement priority goals
  • Implementation planning and support
  • Progress tracking

Action Communities

  • Bemidji
  • Brainerd/Baxter
  • Cambridge
  • CLUES (St. Paul/WSP)
  • Detroit Lakes
  • Edina
  • Forest Lake
  • Harmony
  • International Falls
  • MN Council of Churches
  • Marshall
  • Northfield
  • Roseville
  • St. Louis Park
  • St. Paul Neighborhoods
  • St. Paul NE Neighborhoods
  • Twin Cities Jewish Community
  • Walker
  • Willmar

We ACT so You Can ACT!

Join Us!