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Advisory Council January 2012 Meeting Presentation: LTSS Subcommittee


January 17-18, 2012

NOTE: Any mention of recommendations in these slides was for subcommittee discussion.
These slides do not reflect formal Advisory Council recommendations.


Long Term Services and Supports Sub-Committee


Principles: Discussed

  • Patients; Caregivers; and Family are each important constituencies
  • LTSS should include services for caregivers to maintain their health and vitality
  • Assure a robust, dementia capable system of LTSS is available in every state
  • Assuring that LTSS include all constituencies will lead to better quality of life and more efficient and effective care
  • Caregivers are by nature sometimes isolated -- this must be considered when managing programs for their benefit.
  • All services must be culturally appropriate; outreach needs to include people from diverse communities; we can’t assume that what works for one group will work for all.


  • New Guidelines for Diagnosis should be utilized whenever someone is admitted to/assessed for eligibility for LTSS; (2-B)
  • The Process of diagnosis should include engaging patient and family in advance care planning (health, estate and financial) (2-C)
  • Recommendations for end-of-life/ palliative care should be incorporated into all surveillance and QI systems (specific - CMS)
  • Practice recommendations for care in every setting should be imbedded in surveillance and QI (specific – CMS).
  • Caregiver health/mental health risk should be assessed and addressed regularly through LTSS and primary care (3-B) Consider HEDIS Question.
  • Assure access to the full array of LTSS for younger people with Alzheimer’s disease and tailor supports for their caregivers/family members.
  • Provide Federal Funds to support a state lead agency in every state (ACA; PPHF) to coordinate all available public and private LTSS. This will build coordination/Epi capacity/QI capacity to maximize positive impact of services on patients and caregivers; reduce duplication; build a new conventional wisdom; and assure evidenced-based high quality services are available in every state. (4-B)
  • State Education agencies and professional organizations should include key information about Alzheimer’s disease in all curricula for any profession or career track effecting LTSS (specific strategy).
  • Relevant state agencies should include key information about Alzheimer’s disease for any staff working in human service agencies (SS, AAAs, etc) (specific strategy) and first responders.
  • Add adult day services as a state optional service under Medicaid (specific strategy).
  • Provide LTSS linkages to state, local; and private housing resources.

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National Alzheimer's Project Act Home Page

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