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Advisory Council October 2014 Meeting Presentation: NAPA Review Meeting

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Monday, October 27, 2014

 

NAPA Review Meeting

Sheila Burke, MPA, RN, FAAN

Purpose of Review

  • 3 years since the establishment of the National Plan and the Advisory Council
  • Opportunity to reflect on progress
  • Opportunity to consider strategy going forward

Original Charge to Council

  • Advise Secretary in effort to carry out an annual assessment of the Nation’s progress in preparing for the burden of Alzheimer’s
  • Evaluation of all Federally-funded efforts
  • Recommendations for priority actions
  • Initial recommendations
    • reduce financial impact on Federal programs and families
    • improve health outcomes
  • Annually evaluate progress

Meeting

Convened a small subgroup of the Advisory Council:

  • Laura Trejo
  • Jennifer Mead
  • Helen Matheny
  • Ron Petersen
  • DEB Potter, AHRQ/ASPE
  • Linda Elam
  • Rohini Khillan

Look Back/Tighten Up/Look Forward

  • Should be original goals be reconsidered?
  • Progress is being made, but how do we most efficiently show it? What metrics are appropriate?
  • Length and detail of recommendations and priorities
  • Process used at arriving at recommendations
  • Increase collaboration between federal and non-federal members
    • Subcommittees and Federal workgroups organize around goals?
    • More non-federal input into the plan
  • Meeting topics / time allocation
  • Use of subcommittees and frequency/regularity of meetings

Next Steps to be Considered by FACA

  • Subcommittees review goals and strategies and determine if the goals need to be updated and consider if the right questions are being asked
  • Consider audiences for plan. Revisit structure of Annual Update to the Plan to more clearly articulate goals and measurable progress on goals
    • List strategies separately?
  • Possible creation of two separate lists of recommendations: one short-term and one long-term
    • Allow the FACA to be bold and still be practical
  • Agree upon metrics to be used to measure progress in achieving goals
  • Determine if the right people are around the table

Return to

National Alzheimer's Project Act Home Page

Advisory Council on Alzheimer's Research, Care, and Services Page

Advisory Council on Alzheimer's Research, Care, and Services Meetings Page