ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES
Tuesday, November 10, 2020
Printer Friendly Version in PDF Format (5 PDF pages)
Tete-a-Tete: A Faith-Based Memory Cafe
Madeline Michel, DNP, APRN, GNP-BC, FNP-BC
Gerontological Nurse Practitioner
Louis and Anne Green Memory and Wellness Center, Christine E. Lynn College of Nursing, Florida Atlantic University
- Demonstrate the effectiveness of an ACL- funded model that increases access to community-based services for ethnically diverse people living with Alzheimer's Disease and Related Diseases (ADRD) and caregivers.
- Understand how an ACL grantee created the Tete-a-Tete, a Memory Cafe- inspired activity for a Haitian Creole-speaking faith-based community.
- Share specific challenges ethnically diverse communities face when trying to access dementia-capable care and supportive services and how to mitigate them.
Louis and Anne Green Memory and Wellness Center (MWC)
- Cultural, linguistic, responsive, innovative, interprofessional team-based approach, nurse-led model grounded in Caring Science
- Person-family-community centered partnering approach
- Facilitate the development of programs for ethnically diverse communities by partnering with faith-based community organizations
- Tete-a-Tete (Purposeful Head-to-Head)
- Share, gain understanding and knowledge of self and the other through caring, connecting, and engaging
- Being a native Haitian Creole speaker with lived experience of the culture and nursing expertise to co-create and implement the program
ACL -- ADI-SSS Grant Federal Grant Project Name
- Bridging the Gap: Providing Specialized Dementia Care and Supportive Services Through Community Partnerships (BGDCS-CP); 2015
- Target Population- Aging Persons:
- Living with or at risk for ADRD and their family caregivers (CG)
- living alone or with CG
- From unserved and underserved communities such as Haitian older adults
- Family CGs of persons living with ADRD.
- Bridging the Gap -- Goals/Outcomes
- Build, cultivate, nurture, and sustain relationships with individuals and community partners
- Improve health outcomes of previously unserved/ underserved aging communities in PBC
- Expand access to MWC's dementia specialized services
- Lead to the transformation of existing suboptimal biomedical models of care
The Community Partner: Our Lady of Perpetual Help Church, Delray Beach, FL
- The church pastor and nurse practitioner serve as liaison for the implementation of Tete-a-Tete
- Partnering with the whole community
- Through home visits
- MWC Haitian Creole translator instrumental role in scheduling and educational materials translation.
- Tete-a-Tete: Getting Started
- Discovery of needs through baseline dementia capability assessment
- Education and community participation
- Development of trust from participants
- Consistent involvement in church events
- Cost sharing, Fundraising
Keys to Success with Ethnically Diverse Communities
- Challenges to Overcome
- Participants' distrust on U.S. healthcare system.
- Other Cultural beliefs.
- Immigration status.
- Literacy rate.
- Language barrier.
- Transportation issues.
- Lack of knowledge.
- Achievement and Sustainability by the Power of Social Connection in the community
- Integrate culturally relevant and linguistically appropriate team members and materials
- Assess needs, knowledge, and attitudes
- Bring services to the community
- Engage with the whole community
- Survey to learn preferences of the parishioners.
- Collaboration with community partner.
- Ongoing assessment of overall progress and specific, unique needs is required for quality improvement.
Outcomes -- Success Stories
- Tete-a-Tete -- over 300 participant encounters
- Over 24 Bimonthly events with 25 - 30 attendees each
- Over 100 Weekly exercise classes with 15 -20 attendees each
- Over 28 Biweekly Support Group with 15- 18 attendees each
- Over 95% of participants reported:
- Improved quality of life
- Increased knowledge on ADRD and other aging related topics
- Overall satisfaction about the program
- Improved socialization
The Gap Bridged
- The Gap Bridged -- Goals/Outcomes Met
- Improved health outcomes of this previously unserved aging ethnic community in Palm Beach County
- Expanded access to MWC's dementia specialized services
- These led to:
- Transforming model of healthcare delivery
- Improved dementia capability of the Haitian community
- Qualitative Data -- Thematic Quotes
- Participants stated:
- Experienced decreased social isolation
- Positive peer pressure -- enjoyed the group activities
- Caring structure of the gatherings improved ongoing participation
- Improved skills on caring for self
- Sense of empowerment
- Sense of accomplishment through learning
- Participants stated:
BGDCS-CP -- Expansion
- DHHS -- ACL: ADPI funded 18-month grant project
- Awarded March 2019
- Expansion of 2 components from previous project:
- Memory Cafe-inspired Activities with new Community Partners
- Comprehensive Geriatric Assessments at Home (Nurse Coach and Psychiatric-Mental Health Nurse Practitioner)
Thank You! Merci!
Dr. Madeline Michel, DNP, APRN
Florida Atlantic University
777 Glades Road, Bldg. AZ-79
Boca Raton, FL 33431
Phone: 561 297-0502