Advisory Council November 2020 Meeting Presentation: Faith-Based Memory Cafe

11/09/2020

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Tuesday, November 10, 2020

Printer Friendly Version in PDF Format (5 PDF pages)

 

Tete-a-Tete: A Faith-Based Memory Cafe

Madeline Michel, DNP, APRN, GNP-BC, FNP-BC
Gerontological Nurse Practitioner
Louis and Anne Green Memory and Wellness Center, Christine E. Lynn College of Nursing, Florida Atlantic University

Objectives

  • Demonstrate the effectiveness of an ACL- funded model that increases access to community-based services for ethnically diverse people living with Alzheimer's Disease and Related Diseases (ADRD) and caregivers.
  • Understand how an ACL grantee created the Tete-a-Tete, a Memory Cafe- inspired activity for a Haitian Creole-speaking faith-based community.
  • Share specific challenges ethnically diverse communities face when trying to access dementia-capable care and supportive services and how to mitigate them.

Louis and Anne Green Memory and Wellness Center (MWC)

  • Cultural, linguistic, responsive, innovative, interprofessional team-based approach, nurse-led model grounded in Caring Science
  • Person-family-community centered partnering approach
  • Facilitate the development of programs for ethnically diverse communities by partnering with faith-based community organizations
  • Tete-a-Tete (Purposeful Head-to-Head)
    • Share, gain understanding and knowledge of self and the other through caring, connecting, and engaging
    • Being a native Haitian Creole speaker with lived experience of the culture and nursing expertise to co-create and implement the program

ACL -- ADI-SSS Grant Federal Grant Project Name

  • Bridging the Gap: Providing Specialized Dementia Care and Supportive Services Through Community Partnerships (BGDCS-CP); 2015
  • Target Population- Aging Persons:
    • Living with or at risk for ADRD and their family caregivers (CG)
    • living alone or with CG
    • From unserved and underserved communities such as Haitian older adults
    • Family CGs of persons living with ADRD.
  • Bridging the Gap -- Goals/Outcomes
    • Build, cultivate, nurture, and sustain relationships with individuals and community partners
    • Improve health outcomes of previously unserved/ underserved aging communities in PBC
    • Expand access to MWC's dementia specialized services
    • Lead to the transformation of existing suboptimal biomedical models of care

The Community Partner: Our Lady of Perpetual Help Church, Delray Beach, FL

  • The church pastor and nurse practitioner serve as liaison for the implementation of Tete-a-Tete
  • Partnering with the whole community
    • Through home visits
    • MWC Haitian Creole translator instrumental role in scheduling and educational materials translation.
  • Tete-a-Tete: Getting Started
    • Discovery of needs through baseline dementia capability assessment
    • Education and community participation
    • Development of trust from participants
    • Consistent involvement in church events
    • Cost sharing, Fundraising

Keys to Success with Ethnically Diverse Communities

  • Challenges to Overcome
    • Participants' distrust on U.S. healthcare system.
    • Other Cultural beliefs.
    • Immigration status.
    • Literacy rate.
    • Language barrier.
    • Transportation issues.
    • Lack of knowledge.
  • Strategies
    • Achievement and Sustainability by the Power of Social Connection in the community
    • Integrate culturally relevant and linguistically appropriate team members and materials
    • Assess needs, knowledge, and attitudes
    • Bring services to the community
    • Engage with the whole community
  • Experiences
    • Survey to learn preferences of the parishioners.
    • Collaboration with community partner.
    • Ongoing assessment of overall progress and specific, unique needs is required for quality improvement.

Outcomes -- Success Stories

  • Tete-a-Tete -- over 300 participant encounters
  • Over 24 Bimonthly events with 25 - 30 attendees each
  • Over 100 Weekly exercise classes with 15 -20 attendees each
  • Over 28 Biweekly Support Group with 15- 18 attendees each
  • Over 95% of participants reported:
    • Improved quality of life
    • Increased knowledge on ADRD and other aging related topics
    • Overall satisfaction about the program
    • Improved socialization

The Gap Bridged

  • The Gap Bridged -- Goals/Outcomes Met
    • Improved health outcomes of this previously unserved aging ethnic community in Palm Beach County
    • Expanded access to MWC's dementia specialized services
  • These led to:
    • Transforming model of healthcare delivery
    • Improved dementia capability of the Haitian community
  • Qualitative Data -- Thematic Quotes
    • Participants stated:
      • Experienced decreased social isolation
      • Positive peer pressure -- enjoyed the group activities
      • Caring structure of the gatherings improved ongoing participation
      • Improved skills on caring for self
      • Sense of empowerment
      • Sense of accomplishment through learning

BGDCS-CP -- Expansion

  • DHHS -- ACL: ADPI funded 18-month grant project
    • Awarded March 2019
  • Expansion of 2 components from previous project:
    • Memory Cafe-inspired Activities with new Community Partners
    • Comprehensive Geriatric Assessments at Home (Nurse Coach and Psychiatric-Mental Health Nurse Practitioner)

Thank You! Merci!

Contact Information

Dr. Madeline Michel, DNP, APRN
Florida Atlantic University
777 Glades Road, Bldg. AZ-79
Boca Raton, FL 33431
Phone: 561 297-0502
Email: mmiche12@health.fau.edu


Return to

National Alzheimer's Project Act Home Page

Advisory Council on Alzheimer's Research, Care, and Services Page

Advisory Council on Alzheimer's Research, Care, and Services Meetings Page