Advisory Council April 2014 Meeting Presentation: National Plan 2014 Update



Tuesday, April 29, 2014


National Plan to Address Alzheimer's Disease: 2014 Update

Helen Lamont
Rohini Khillan
Office of Disability, Aging, and Long-Term Care Policy
HHS Office of the Assistant Secretary for Planning and Evaluation

2014 Update Development

  • Report on progress
  • Incorporate recommendations of Advisory Council received February 2014
  • HHS agencies and federal partners identified both next steps to actions on National Plan and new areas of work
  • Collaboration and identification of other federal partners doing relevant work
  • Many of the actions in the original Plan and 2013 update are ongoing

New in 2014

  • Add links and direct readers to work as much as possible
  • Update action items with more detailed information
  • Finish before May 2

Goal 1: Prevent and Effectively Treat Alzheimer's Disease by 2025

  • Two new actions based on ADRD Workshop in May 2013
    • Action 1.A.7: Create milestones for goals based on ADRD workshop recommendations (based on Recommendation #3)
    • Action 1.A.8: Regularly convene ADRD Summit-- next one in 2016
  • Collaborative work to educate on brain health
    • Action 1.E.6: Provide educational materials to aging, disability, and public health networks.
  • Leverage research on neurodegeneration between DOD and VA
    • Action 1.E.8: Focus on four areas: healthcare delivery, quality of life, access to care, and building partnerships.

Goal 2: Enhance Care Quality and Efficiency

  • Develop target, strategies, and milestones for dementia-capable primary and specialty care workforce
    • Action 2.A.1 (based on Recommendation #12)
  • Help state LTSS systems become dementia-capable
    • Action 2.A.13 (based on Recommendation #14)
    • Action 2.A.14: Expand availability of services to underserved populations
  • Link to broader improvements to LTSS
    • Action 2.A.15: Fair Labor Standards Act (based on Recommendation #17)
    • Action 2.A.16: Final rule on HCBS for Medicaid waivers 1915(c), 1915(i), 1915(k)
  • Continue work on measuring high-quality dementia care and identifying meaningful outcomes
    • Actions 2.D.1, 2.D.2, 2.D.4
    • Based on Recommendation #9
  • Clarify and disseminate information on privacy, autonomy, and safety
    • Action 2.D.5
    • Based on Recommendation #10
    • Work with Tia Powell; Ethics Subcommittee
  • Explore opportunities to use health information exchange to support providers and people with AD
    • Action 2.F.5: Referrals and transitions in care
    • Action 2.G.4: Care plans
    • Action 3.B.17: Technological solutions for family caregivers
    • Based on recommendation #27
  • Populations disproportionately affected by AD
    • Action 2.H.3: Webinar for providers on younger-onset dementia
    • Action 2.H.4: Explore models of family support for people with intellectual disabilities as they age (based Recommendation #16)

Goal 3: Expand Supports for People with AD and Their Families

  • Enhance disaster preparedness
    • Action 3.B.15: Webinars for family caregivers and aging and disability networks
  • Engage law enforcement
    • Action 3.D.10: DOJ trainings and resources
    • Action 3.D.11: Develop best practices, share as a guide
  • Compendia of state policies on residential care and adult day health
    • Action 3.B.16: Detailed regulatory information for each state

Goal 4: Enhance Public Awareness and Engagement

  • National education and outreach initiative
    • Action 4.A.1: Focused on awareness of cognitive impairment (based on Recommendation #7)
  • Improve coordination between IHS, Tribal, and Urban Indian health programs with Aging Network
    • Action 4.B.5: Focused on four person-centered goals (from Recommendation #9)
  • Enhance global collaboration
    • Action 4.C.1: Continue work from G8 Dementia Summit in December 2013
    • US will attend legacy meetings
    • Host legacy meeting in conjunction with AD Research Summit in February 2015

Goal 5: Improve Data to Track Progress

  • Chartbook on characteristics of people with AD and their caregivers
    • Action 5.A.6: Based on government-sponsored data
  • Develop consistent set of ICD-9/ICD-10 codes for analyses of administrative data
    • Action 5.A.7
    • First step to analyses of administrative data Crosswalk to ICD-10 and DSM-V
    • Important first step for analyses of demonstrations (which are in Recommendation #11)

2014 National Alzheimer Plan link


Return to

National Alzheimer's Project Act Home Page

Advisory Council on Alzheimer's Research, Care, and Services Page

Advisory Council on Alzheimer's Research, Care, and Services Meetings Page


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