Advisory Council on Alzheimer's Research, Care, and Services Members
An Advisory Council on Alzheimer's Research, Care, and Services was established to advise the Secretary for HHS on work conducted or needed regarding Alzheimer's disease and related dementias (AD/ADRD), and provide recommendations for the National Plan on a yearly basis. The Advisory Council meets officially every quarter for public meetings, and through subcommittee meet as often as necessary.
The Advisory Council is made up of federal and non-federal members. Federal members are comprised of experts/designees from: the Centers for Disease Control and Prevention; the Administration on Aging; the Centers for Medicare and Medicaid Services; the Indian Health Service; the National Institutes of Health;; the National Science Foundation; the Department of Veterans Affairs; the Food and Drug Administration; and the Agency for Healthcare Research and Quality. Non-federal members include: Alzheimer's patient advocates; Alzheimer's caregivers; health care providers; state health department representatives; researchers with Alzheimer's-related expertise; and voluntary health association representatives.
Table of Contents
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Chair -- Laura N. Gitlin, Ph.D.
Dr. Gitlin, who joined the Advisory Council in 2015, is the current Chair of the Council, replacing Dr. Ronald Petersen. Dr. Gitlin is an applied research sociologist with over 30 years of research developing and testing novel interventions in dementia care and caregiving. She is the Distinguished University Professor and Dean of the College of Nursing and Health Professions, Drexel University and adjunct professor, Johns Hopkins University School of Nursing.
Ms. Brandt is Director of Caregiver Support Services in the Frontotemporal dementia unit at Massachusetts General Hospital. She came as a member of the public to an Advisory Council meeting in July 2014, where she told her moving personal story of losing her young husband to frontotemporal dementia and caring for her father who was diagnosed with Alzheimer's disease at the same time.
Dr. Cherry is currently the Executive Vice President of Alzheimer's Greater Los Angeles. For more than 25 years, she has been an effective advocate for persons with dementia and their families. She has led numerous initiatives to develop and evaluate programs to improve quality of care for people living with dementia and advocated at the local, state, and national level to increase access to services. She has expertise across a number of areas as a provider in geriatric psychology, advocate, and leader of an association.
Mr. Egge is the Alzheimer's Association's Chief Public Policy Officer and Executive Vice President, Government Affairs, and leads the Association's Public Policy division based in Washington, DC. The division includes government affairs, policy development and grassroots advocacy teams working in pursuit of policies to better serve those affected by Alzheimer's disease and related disorders.
Dr. Lubow is an Assistant Professor of Psychiatry and Human Behavior at the Warren Alpert Medical School at Brown University. He is a geriatric psychiatrist with research, teaching, policy, clinical, and administrative experience related to treating persons with dementia in collaborative shared decision-making models with family caregivers.
Cynthia Huling Hummel
Reverend Dr. Hummel was diagnosed with Alzheimer's disease in early 2016. She has participated in numerous presentations and speeches about her disease and is actively helping plan the upcoming National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers.
Dr. Hyman is a world renowned neurologist, neuropathologist and neuroscientist with extensive experience in basic and translational neurosciences of Alzheimer's disease and related dementias. Dr. Hyman has served at NACA, as chairman, and as an Alzheimer's Disease Research Center director. He is also involved in new criteria of Alzheimer's disease and related dementias and developed the standardized neuropathological criteria for Alzheimer's diagnosis.
For more than 25 years, Ms. Kurtz has influenced aging policy at state and federal levels and led the provision of social and advocacy services for older adults and individuals with disabilities. Ms. Kurtz currently directs the Aging and Independence Services group within the Atlanta Regional Commission, widely regarded as one of the most innovative area agencies on aging in the nation. Previously she led the Long-Term Ombudsman program both at the state and federal levels and provided legal services to low income elders. In each of these roles, Ms. Kurtz has served and advocated for individuals living with dementia, their families and caregivers.
Dr. Levey is the Director of Emory University's Alzheimer's Disease Research Center and Chairman of the Department of Neurology. He is widely respected among providers and researchers in this field. Dr. Levey is a practicing neurologist in addition to his work on neurodegenerative research and will bring an important dually-informed perspective to the Council.
Ms. Taylor serves as the Director of Programs at the Lewy Body Dementia Association (LBDA), and has the responsibility to oversee LBDA's national programs and services, including outreach, education, awareness programming, and research initiatives.
Mr. Tichawonna is an award-winning independent filmmaker and actor from Washington, D.C. He was a caregiver for his mother, who suffered from dementia, and is currently caring for his son with Down syndrome. His experiences will keep the concerns of the millions of caregivers around the country at the forefront of the Advisory Council's conversation.
Department of Health and Human Services
Kara Townsend, M.P.H., Deputy Assistant Secretary for Disability, Aging and Long-Term Care Policy, Office of the Assistant Secretary for Planning and Evaluation
Bruce Finke, M.D., Elder Care Consultant, Indian Health Service
Richard Hodes, M.D., Director, National Institute on Aging, National Institutes of Health
Shari Ling, M.D., Deputy Chief Medical Officer, Center for Clinical Standards and Quality, Centers for Medicare and Medicaid Services
William Spector, Ph.D., Senior Social Scientist, Center for Delivery, Organization, and Markets, Agency for Healthcare Research and Quality
Erin Long, M.S.W., Office of Supportive and Caregiver Services, Administration on Aging/Administration for Community Living
Lisa C. McGuire, Ph.D., Lead, Alzheimer's Disease and Healthy Aging Program, Centers for Disease Control and Prevention
Joan Weiss, Ph.D., R.N., C.R.N.P., F.A.A.N., Chief, Geriatrics and Allied Health Branch, Health Resources and Services Administration
Department of Defense
Anthony Pacifico, Ph.D., Militarily Relevant Peer Reviewed Alzheimer's Research Program Telemedicine and Advanced Technology Research Center MCMR-TT
National Science Foundation
Deborah Olster, Ph.D., Senior Science Advisor, Directorate for Social, Behavioral, and Economic Science
Department of Veterans Affairs
Richard M. Allman, M.D., Chief Consultant for Geriatrics and Extended Care Services
The following people served a term on the Advisory Council.
Anita Albright, M.A.
Laurel Coleman, M.D., FACP
Yanira Cruz, M.P.H., Dr.P.H.
Eric J. Hall
David P. Hoffman, M.Ed.
Harry M. Johns
Jennifer J. Manly, Ph.D.
Helen M. Matheny, M.S., A.P.R.
Julie McMahon, R.N.
Ronald Petersen, Ph.D., M.D.
David Hyde Pierce
Laura Trejo, M.S.G., M.P.A.
What is Alzheimer's Disease
& Related Dementias
Advisory Council on Alzheimer's
Research, Care, & Services
National Plan &
Other NAPA Documents