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Advisory Council July 2013 Meeting Presentation: National Plan 2013 Update

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Friday, July 19, 2013

 

National Plan to Address Alzheimer's Disease: 2013 Update

Helen Lamont
Office of Disability, Aging, and Long-Term Care Policy
HHS Office of the Assistant Secretary for Planning and Evaluation

2013 Update Development

  • Report on progress
  • Recommendations of Advisory Council received January 2013
  • HHS agencies and federal partners to identify next steps to actions on National Plan
  • Collaboration with other federal partners doing relevant work
  • Many of the actions in the original Plan are ongoing and continuing into 2013

Progress to Date

  • Developed recommendations on how best to advance research
  • Funded new research projects, including two major new clinical trials, genetics sequencing, and development of innovative new cellular models
  • Provided resources to train >10,000 health care providers on topics from dementia diagnosis to effective behavior management
  • Launched www.alzheimers.gov to increase public awareness and connect people with a diagnosis and their caregivers with important resources
  • CMS and NIH identified a set of brief tools that physicians can use to assess cognitive impairment.
  • AoA/NIA Webinars on clinical trial enrollment and supports that researchers can refer families and patients to
  • ACL, Alliance for Aging Research, and MetLife Foundation report, “Translating Innovation to Impact: Evidence-Based Interventions to Support People with Alzheimer's Disease and Their Caregivers at Home and in Their Communities”
  • Specific Populations Task Force to identify the unique challenges faced by groups unequally burdened by Alzheimer's disease. Report released July 24
  • NIH meeting on AD for people with Down syndrome (April 2013)
  • NIH research summit on other dementias (May 2013)

Goal 1: Prevent and Effectively Treat Alzheimer's Disease by 2025

  • Strategy 1A: Identify Research Priorities and Milestones
    • Regularly convene research summit
      • Based on Recommendation 3: Regularly update a strategic research plan to accelerate breakthroughs in AD research
      • Next AD Research Summit in January 2015
    • Create timeline for achieving Goal 1 Based on Recommendation 1: Explicitly state interim milestones to the goal of preventing and effectively treating Alzheimer's disease by 2025
  • Strategy 1B: Expand Research Aimed at Preventing and Treating Alzheimer's Disease
  • Strategy 1C: Accelerate Efforts to Identify Early and Presymptomatic Stages of AD
  • Strategy 1D: Coordinate Research with International Public and Private Entities
  • Strategy 1E: Facilitate Translation of Findings into Medical Practice and Public Health Programs
    • Guidance about drugs for early Alzheimer's disease
      • Draft guidance released in February 2013
    • Research on co-occurring conditions and dementias
      • Related to Recommendation 27: Improve chronic disease treatment and related services for people with AD.

Goal 2: Enhance Care Quality and Efficiency

  • Strategy 2A: Build a Workforce with the Skills to Provide High-Quality Care
    • Develop and disseminate unified primary care AD curriculum
      • Based on Recommendation 14: Develop a unified curriculum for primary care practitioners about AD
    • Ensure aging network has research-based up-to-date info on AD
      • NIA and ACL webinars
    • Engage public health workforce on brain health
      • CDC release of “The Healthy Brain Initiative: The Public Health Road Map for State and National Partnerships, 2013-2018” July 2013
      • Educate providers about programs for AD
        • Webinars for Geriatric Program grantees
    • Strengthen primary care teams in Indian Country
      • Expand awareness and dementia-capability of nurses
      • Chief Medical Officer Rounds, “IHS Primary Care Providers,” and other trainings
  • Strategy 2B: Ensure Timely and Accurate Diagnosis
  • Strategy 2C: Educate and Support People with AD and Their Families upon Diagnosis
    • Connect AI/AN to AD resources
  • Strategy 2D: Identify High-Quality Dementia Care Guideline and Measures Across Care Settings
    • Identify and review measures of high-quality dementia care
      • Based on Recommendation 28: HHS should develop quality measures and indicators for the comprehensive care and treatment of individuals with AD.
      • Work with NQF to develop conceptual framework for measurement and identify concepts for performance measures
    • Convene an expert panel on advanced dementia
      • Based on Recommendation 16: Form a blue ribbon panel of experts on advanced dementia
  • Strategy 2E: Explore the Effectiveness of New Models of Care for People with Alzheimer's Disease
    • Share results and lessons about new models in the VHA with federal partners
      • Innovative programs of patient-centered alternatives to institutional care
  • Strategy 2F: Ensure that People with Alzheimer's Disease Experience Safe and Effective Transitions between Care Settings and Systems
    • Understand avoidable hospitalizations and ER use among people with AD
    • Identify and disseminate info on intervention to reduce preventable hospitalizations
      • CDC review of interventions
  • Strategy 2G: Advance Coordinated and Integrated Health and Long-Term Services and Supports for Individuals Living with AD
    • Evaluate evidence on care integrate
  • Strategy 2H: Improve Care for Populations Disproportionately Affected by AD and for Populations Facing Care Challenges

Goal 3: Expand Supports for People with AD and Their Families

  • Strategy 3A: Ensure Receipt of Culturally Sensitive Education, Training, and Support Materials
  • Strategy 3B: Enable Family Caregivers to Continue to Provide Care while Maintaining Their Own Health and Well-Being
    • Share info on LTSS with Tribal providers
      • Webinar series with IHS, ACL/AoA, and CMS
    • Share info on caregiver support services
      • ACL/AoA aging network and VA to educate one another about accessing services for family caregivers
    • Pilot REACH-VA in Indian Country
  • Strategy 3C: Assist Families in Planning for Future Care Needs
  • Strategy 3D: Maintain the Dignity, Safety, and Rights of People with AD
    • Enhance ombudsman training
    • Enhance and disseminate information on abuse of people with dementia
    • Promote dementia-capable legal service systems
    • Educate fiduciaries about managing the finances of people with AD
      • Consumer Finance Protection Bureau
      • Guides for lay fiduciaries
  • Strategy 3E: Assess the Housing Needs of People with AD

Goal 4: Enhance Public Awareness and Engagement

  • Strategy 4A: Educate the Public about AD
    • Enhance public outreach
      • NIH and ACL update websites to provide more information
  • Strategy 4B: Work with State, Tribal, and Local Governments to Improve Coordination and Identify Model Initiatives to Advance AD Awareness and Readiness across the Government
    • Improve dementia-capability of state and local service systems
      • ADSSP programs to develop practical tools to improve dementia-capability and expanded Dementia Capability Toolkit
  • Strategy 4C: Coordinate US Efforts with those of the Global Community

Goal 5: Improve Data to Track Progress

  • Strategy 5A: Enhance the Federal Government's Ability to Track Progress
    • Review BRFSS data on cognitive impairment in your state (if available)
      • Use data to make the case for incorporating cognition into preventive health practices and risk reduction activities
    • Develop measures of awareness of AD
  • Strategy 5B: Monitor Progress on the National Plan

Additional Changes

  • Updated Implementation Milestones table for easier reference

Questions?


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