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Advisory Council July 2013 Meeting Presentation: National Plan 2013 Update


Friday, July 19, 2013


National Plan to Address Alzheimer's Disease: 2013 Update

Helen Lamont
Office of Disability, Aging, and Long-Term Care Policy
HHS Office of the Assistant Secretary for Planning and Evaluation

2013 Update Development

  • Report on progress
  • Recommendations of Advisory Council received January 2013
  • HHS agencies and federal partners to identify next steps to actions on National Plan
  • Collaboration with other federal partners doing relevant work
  • Many of the actions in the original Plan are ongoing and continuing into 2013

Progress to Date

  • Developed recommendations on how best to advance research
  • Funded new research projects, including two major new clinical trials, genetics sequencing, and development of innovative new cellular models
  • Provided resources to train >10,000 health care providers on topics from dementia diagnosis to effective behavior management
  • Launched to increase public awareness and connect people with a diagnosis and their caregivers with important resources
  • CMS and NIH identified a set of brief tools that physicians can use to assess cognitive impairment.
  • AoA/NIA Webinars on clinical trial enrollment and supports that researchers can refer families and patients to
  • ACL, Alliance for Aging Research, and MetLife Foundation report, “Translating Innovation to Impact: Evidence-Based Interventions to Support People with Alzheimer's Disease and Their Caregivers at Home and in Their Communities”
  • Specific Populations Task Force to identify the unique challenges faced by groups unequally burdened by Alzheimer's disease. Report released July 24
  • NIH meeting on AD for people with Down syndrome (April 2013)
  • NIH research summit on other dementias (May 2013)

Goal 1: Prevent and Effectively Treat Alzheimer's Disease by 2025

  • Strategy 1A: Identify Research Priorities and Milestones
    • Regularly convene research summit
      • Based on Recommendation 3: Regularly update a strategic research plan to accelerate breakthroughs in AD research
      • Next AD Research Summit in January 2015
    • Create timeline for achieving Goal 1 Based on Recommendation 1: Explicitly state interim milestones to the goal of preventing and effectively treating Alzheimer's disease by 2025
  • Strategy 1B: Expand Research Aimed at Preventing and Treating Alzheimer's Disease
  • Strategy 1C: Accelerate Efforts to Identify Early and Presymptomatic Stages of AD
  • Strategy 1D: Coordinate Research with International Public and Private Entities
  • Strategy 1E: Facilitate Translation of Findings into Medical Practice and Public Health Programs
    • Guidance about drugs for early Alzheimer's disease
      • Draft guidance released in February 2013
    • Research on co-occurring conditions and dementias
      • Related to Recommendation 27: Improve chronic disease treatment and related services for people with AD.

Goal 2: Enhance Care Quality and Efficiency

  • Strategy 2A: Build a Workforce with the Skills to Provide High-Quality Care
    • Develop and disseminate unified primary care AD curriculum
      • Based on Recommendation 14: Develop a unified curriculum for primary care practitioners about AD
    • Ensure aging network has research-based up-to-date info on AD
      • NIA and ACL webinars
    • Engage public health workforce on brain health
      • CDC release of “The Healthy Brain Initiative: The Public Health Road Map for State and National Partnerships, 2013-2018” July 2013
      • Educate providers about programs for AD
        • Webinars for Geriatric Program grantees
    • Strengthen primary care teams in Indian Country
      • Expand awareness and dementia-capability of nurses
      • Chief Medical Officer Rounds, “IHS Primary Care Providers,” and other trainings
  • Strategy 2B: Ensure Timely and Accurate Diagnosis
  • Strategy 2C: Educate and Support People with AD and Their Families upon Diagnosis
    • Connect AI/AN to AD resources
  • Strategy 2D: Identify High-Quality Dementia Care Guideline and Measures Across Care Settings
    • Identify and review measures of high-quality dementia care
      • Based on Recommendation 28: HHS should develop quality measures and indicators for the comprehensive care and treatment of individuals with AD.
      • Work with NQF to develop conceptual framework for measurement and identify concepts for performance measures
    • Convene an expert panel on advanced dementia
      • Based on Recommendation 16: Form a blue ribbon panel of experts on advanced dementia
  • Strategy 2E: Explore the Effectiveness of New Models of Care for People with Alzheimer's Disease
    • Share results and lessons about new models in the VHA with federal partners
      • Innovative programs of patient-centered alternatives to institutional care
  • Strategy 2F: Ensure that People with Alzheimer's Disease Experience Safe and Effective Transitions between Care Settings and Systems
    • Understand avoidable hospitalizations and ER use among people with AD
    • Identify and disseminate info on intervention to reduce preventable hospitalizations
      • CDC review of interventions
  • Strategy 2G: Advance Coordinated and Integrated Health and Long-Term Services and Supports for Individuals Living with AD
    • Evaluate evidence on care integrate
  • Strategy 2H: Improve Care for Populations Disproportionately Affected by AD and for Populations Facing Care Challenges

Goal 3: Expand Supports for People with AD and Their Families

  • Strategy 3A: Ensure Receipt of Culturally Sensitive Education, Training, and Support Materials
  • Strategy 3B: Enable Family Caregivers to Continue to Provide Care while Maintaining Their Own Health and Well-Being
    • Share info on LTSS with Tribal providers
      • Webinar series with IHS, ACL/AoA, and CMS
    • Share info on caregiver support services
      • ACL/AoA aging network and VA to educate one another about accessing services for family caregivers
    • Pilot REACH-VA in Indian Country
  • Strategy 3C: Assist Families in Planning for Future Care Needs
  • Strategy 3D: Maintain the Dignity, Safety, and Rights of People with AD
    • Enhance ombudsman training
    • Enhance and disseminate information on abuse of people with dementia
    • Promote dementia-capable legal service systems
    • Educate fiduciaries about managing the finances of people with AD
      • Consumer Finance Protection Bureau
      • Guides for lay fiduciaries
  • Strategy 3E: Assess the Housing Needs of People with AD

Goal 4: Enhance Public Awareness and Engagement

  • Strategy 4A: Educate the Public about AD
    • Enhance public outreach
      • NIH and ACL update websites to provide more information
  • Strategy 4B: Work with State, Tribal, and Local Governments to Improve Coordination and Identify Model Initiatives to Advance AD Awareness and Readiness across the Government
    • Improve dementia-capability of state and local service systems
      • ADSSP programs to develop practical tools to improve dementia-capability and expanded Dementia Capability Toolkit
  • Strategy 4C: Coordinate US Efforts with those of the Global Community

Goal 5: Improve Data to Track Progress

  • Strategy 5A: Enhance the Federal Government's Ability to Track Progress
    • Review BRFSS data on cognitive impairment in your state (if available)
      • Use data to make the case for incorporating cognition into preventive health practices and risk reduction activities
    • Develop measures of awareness of AD
  • Strategy 5B: Monitor Progress on the National Plan

Additional Changes

  • Updated Implementation Milestones table for easier reference


Return to

National Alzheimer's Project Act Home Page

Advisory Council on Alzheimer's Research, Care, and Services Page

Advisory Council on Alzheimer's Research, Care, and Services Meetings Page