Advisory Council December 2013 Meeting Presentation: LTSS Progress Report

12/02/2013

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Monday, December 2, 2013

 

Long-Term Services and Supports Progress Report

Jane Tilly, DrPH
Administration for Community Living

Major Accomplishments: Nursing Facilities

  • ACL’s Ombudsman Program
    • National Ombudsmen Resource Center is educating ombudsmen about CMS’ Hand in Hand. This program educates nurse aides about caring for individuals with dementia and preventing abuse.
    • Notice of Proposed Rule Making would allow the identity of the resident to be disclosed during complaint processing when the resident cannot communicate informed consent and has no legal representative.
  • CMS
    • National Partnership to Improve Dementia Care in Nursing Homes CMS subject matter experts provided an overview of achievements in the implementation of this national partnership during a nation-wide call in November.
    • National Nursing Home Quality Care Collaborative goals are to:
      • Ensure every nursing home resident, including those with dementia, receives the highest quality care,
      • Instill quality and performance improvement practices,
      • Eliminate healthcare acquired conditions,
      • Improve resident satisfaction,
      • Achieve a rate of 6 or better by July 31, 2014.

The Breakthrough Collaborative:Structured Application of Will, Ideas and Execution

Major Accomplishments: HCBS

  • IHS and VA are piloting REACH VA at 6 IHS and Tribal sites to rapidly assess the best approach to implement the model in the Indian Health system. In October, fourteen IHS professionals received training on REACH VA.  Another training is planned before the end of the year.
  • ACL has a new report on closed ADSSP grants that describes people served, successes, and lessons learned.
  • ADSSP Grantees GA, MN,NY,& OH have worked with ACL staff and the Program Resource Center to produce reports on key elements of recognizing cognitive impairment, dementia training, and quality assurance for HCBS.
  • ACL awarded grants to AZ, CA, IL, OR, & ME under the Alzheimer’s Disease Supportive Services Program (ADSSP). The states will 1) create dementia capable HCBS systems, with a lead state agency for Alzheimer’s disease, and 2) test innovative programs.
  • ACL and CMS are working with 8 state grantees around standards and training requirements for a No-Wrong-Door system for all populations including people with dementia.

Major Accomplishments: LTSS

  • ACL granted the Alzheimer’s Association up to $985,135 per year over five years to continue providing a 24-hour phone line for people with Alzheimer’s disease and those who care for them. The National Alzheimer’s Call Center provides expert advice, care consultation, counseling and referrals at the national and local levels to callers across the country.
  • Alzheimers.gov-related ads have garnered several digital and PSA awards.
  • ACL & NIA partnered to educate the Aging Network via 5 webinars about the latest Alzheimer’s research, intellectual disabilities and dementia, diverse populations, young onset dementia, and advanced stages of dementia. 600 people registered for each and between 50 and 60% of registrants attended each.
  • IHS’ Nursing Leadership heard presentations about a pathway to improve the care system for persons with dementia. An article on this topic appeared in the journal IHS Primary Care Provider in Summer 2013.
  • 200 Indian Country leaders from around the country learned about the basics of Alzheimer’s disease and the SAVVY Caregiver Program at the 2013 National Title VI Training and Technical Assistance Conference and Tribal Consultation.
  • The National Center for Health Statistics released a data brief, Dementia Special Care Units in Residential Care Communities: United States, 2010, It compares residential care communities with and without dementia special care units. Highlights are that:
    • In 2010, 17% of residential care communities had dementia special care units and dementia special care units accounted for 13% of all beds.
    • Residential care communities with dementia special care units were less likely to be certified or registered to participate in Medicaid.

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