| Improving Maternal Health by leveraging existing resources, data linkage and standard reporting for patient-centered outcomes research | Office of the National Coordinator (ONC) | FY2024 |
| N3C Renal Freeport: A Collaborative Data Analytics and Data Sharing Model for Patient-Centered Outcomes Research | National Institutes of Health/National Center for Advancing Translational Sciences (NIH/NCATS) | FY2024 |
| Linking the Boston Birth Cohort and Pregnancy to Early Life Longitudinal Data System and Social Determinants of Health Databases: A Longitudinal Cohort of Mother-Child Dyads | Health Resources and Services Administration, Maternal and Child Health Bureau | FY2024 |
| Medical Expenditure Panel Survey (MEPS) Enhancements on Burdens and Economic Impacts of Medical Care | Agency for Healthcare Research and Quality (AHRQ) | FY 2024 |
| Establishing the Governance, Legal and Analytical Framework for a Federated Linked Data System: Creating a New Data Research Environment | National Institutes of Health (NIH)/National Cancer Institute (NCI) | FY 2024 |
| Capturing the Full Trajectory of Patient-Centered Cancer Care Via Enhanced Data Linkages | National Institutes of Health (NIH)/National Cancer Institute (NCI)
National Institutes of Health (NIH)/National Center for Advancing Translational Sciences (NCATS) | FY 2023 |
| Code Map Services for Interoperability of Common Data Models and Data Standards | National Institutes of Health/Center for Advancing Translational Sciences (NIH/NCATS)
Food and Drug Administration (FDA) | FY 2023 |
| Small-Area Community SDOH Data: Enhancements and Linkages to Inform Action | Agency for Healthcare Research and Quality (AHRQ) | FY 2022 |
| Expanding Climate Change and Health Data Infrastructure to Advance Health Interventions: Linking Health and Environmental Data to Improve Patient and Community Health | National Institutes of Health (NIH)/National Institute of Environmental Health Sciences (NIEHS) | FY 2023 |
| Utilizing Natural Language Processing and Machine Learning to Enhance the Identification of Stimulant and Opioid-Involved Health Outcomes in the National Hospital Care Survey | Centers for Disease Control and Prevention (CDC)/
National Center for Health Statistics (NCHS) | FY 2023 |
| Linking the National Survey of Children’s Health Longitudinal Cohort and Medicaid Claims Data to Explore Pediatric COVID-19 | Health Resources and Services Administration (HRSA)/
Maternal and Child Health Bureau (MCHB) | FY 2023 |
| Improving Quality of Care & Outcomes Data for Pregnant Medicaid Beneficiaries & Newborn Infants | Centers for Medicare & Medicaid Services (CMS) | FY 2023 |
| Engaging People with Intellectual and Developmental Disabilities to Enhance Functional Disability Representation in Point of Care Settings | Centers for Disease Control and Prevention (CDC)/
National Center on Birth Defects and Developmental Disabilities (NCBDDD) | FY 2023 |
| Linking Federally Qualified Health Center EHR and TMSIS Implementing | Centers for Disease Control and Prevention (CDC)
Office of the Assistant Secretary for Planning and Evaluation (ASPE) | FY 2023 |
| Compendium of Policies on Use of Linkable Mortality Data for PCOR in the Nation's 57Mortality-Reporting Jurisdictions | Office of the Assistant Secretary for Planning and Evaluation (ASPE)/Office of Behavioral Health, Disability, and Aging
National Institutes of Health (NIH)/National Institute of Mental Health (NIMH) | FY 2023 |
| Panoramic View of Patient Care Through Data Innovations and Linkages Implementing | Agency for Healthcare Research and Quality (AHRQ) | FY 2023 |
| Data Infrastructure Supporting Research on Refugee Medicaid Service Utilization and Outcomes | Administration for Children and Families (ACF) | FY 2023 |
| Digitizing Consent and Regulatory Metadata Towards Streamlining Governance of Pediatric COVID-19 Research Data Linkages | National Institutes of Health/Eunice Kennedy Shriver National Institute of Child Health and Human Development at the National Institutes of Health (NIH/NICHD) | FY 2022 |
| Human-Centered Design Study on Federal Data Access and Acquisition Processes of CMS Data | Centers for Medicare and Medicaid Services (CMS) | FY 2022 |
| Evaluation of Privacy-Preserving Record Linkage Solutions to Broaden Linkage Capabilities in Support of Patient-Centered Outcomes Research Objectives | National Center for Health Statistics at the Centers for Disease Control and Prevention (NCHS-CDC) | FY 2022 |
| A National COVID-19 Longitudinal Research Database Linked to Centers for Medicare and Medicaid (CMS) Data | National Institutes of Health (NIH)/National Center for Advancing Translational Sciences (NCATS) | FY 2021 |
| Using Machine Learning Techniques to Enable Health Information Exchange to Support COVID-19-Focused Patient-Centered Outcomes Research (PCOR) | Office of the National Coordinator for Healthcare Technology (ONC) | FY 2021 |
| Building Infrastructure and Evidence for COVID-19 Related Research, Using Integrated Data from National Center for Health Statistics (NCHS) Data Linkage Program | National Center for Health Statistics at the Centers for Disease Control and Prevention (NCHS-CDC) | FY 2021 |
| Multistate Emergency Medical Services (EMS) and Medicaid Dataset (MEMD): A Linked Dataset for Patient-Centered Outcomes Research | Office of the Assistant Secretary for Planning and Evaluation- Office of Behavioral Health, Disability, and Aging Policy (ASPE-BHDAP) | FY 2021 |
| Making Medicaid Data More Accessible Through Common Data Models and FHIR APIs | Food and Drug Administration (FDA) National Institutes of Health/National Library of Medicine (NIH/NLM) | FY 2021 |
| Understanding COVID-19 Trajectory and Outcomes in the Context of Multiple Chronic Conditions (MCC) through e-Care Plan Development | Agency for Healthcare Research and Quality (AHRQ) National Institutes of Health/National Institute of Diabetes and Digestive and Kidney Diseases (NIH/NIDDK) | FY 2021 |
| Dataset on Intellectual and Developmental Disabilities: Linking Data to Enhance Person-Centered Outcomes Research | Office of the Assistant Secretary for Planning and Evaluation- Office of Behavioral Health, Disability, and Aging Policy (ASPE-BHDAP) | FY 2021 |
| CURE ID: Aggregating and Analyzing COVID-19 Treatments from EHRs & Registries Globally | Food and Drug Administration (FDA) | FY 2021 |
| Severe Maternal Morbidity and Mortality-Electronic Health Record (EHR) Data Infrastructure | National Institutes of Health | FY 2021 |
| MAT-LINK2: Expansion of MATernaL and Infant NetworK to Understand Outcomes Associated with Treatment for Opioid Use Disorder during Pregnancy | Centers for Disease Control and Prevention | FY 2021 |
| Enhancing Surveillance of Maternal Health Clinical Practices and Outcomes with Federally Qualified Health Centers’ (FQHCs) Electronic Health Records Visit Data | Centers for Disease Control and Prevention | FY 2021 |
| Data Linkage: Evaluating Privacy Preserving Record Linkage Methodology and Augmenting the National Hospital Care Survey with Medicaid Administrative Records | Centers for Disease Control and Prevention | FY 2020 |
| Developing a Multi-State Network of Linked Pregnancy Risk Assessment Monitoring System (PRAMS) and Clinical Outcomes Data for Patient-Centered Outcomes Research | Centers for Disease Control and Prevention | FY 2020 |
| Data Capacity for Patient-Centered Outcomes Research through Creation of an Electronic Care Plan for People with Multiple Chronic Conditions 2.0: Development of the Patient-Facing Application | National Institutes of Health Agency for Healthcare Research and Quality | FY 2020 |
| Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research Project 2.0 | Centers for Disease Control and Prevention | FY 2020 |
| Validating and Expanding Claims-Based Algorithms of Frailty and Functional Disability for Value-Based Care and Payment | Office of the Assistant Secretary for Planning and Evaluation Agency for Healthcare Research and Quality Centers for Disease Control and Prevention Centers for Medicare and Medicaid Services | FY 2019 |
| Linking State Medicaid and Child Welfare Data for Outcomes Research on Treatment for Opioid Use Disorder and Other Behavioral Health Issues | Office of the Assistant Secretary for Planning and Evaluation | FY 2019 |
| Making Electronic Health Record (EHR) Data More Available for Research and Public Health | Centers for Disease Control and Prevention | FY 2019 |
