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Explore the OS-PCORTF Project Profiles

ASPE’s Patient-Centered Outcomes Research Trust Fund Reports website contains profiles of active and completed projects currently in the OS-PCORTF portfolio. Projects within the two categories (both active and complete) are arranged in reverse chronological order: the earliest projects entered first (e.g., lower on the list) and the most recent projects shown on top. Multi-agency projects are described and entered as a full single project, not separated by the awards to each agency. 

Please click to learn more about the active and completed projects, including links to the products of these projects.

Active Projects

(Arranged in Order Funded)

Project Title Implementing Agency FY Funded
Using Machine Learning Techniques to Enable Health Information Exchange to Support COVID-19-Focused Patient-Centered Outcomes Research (PCOR) Office of the National Coordinator for Healthcare Technology (ONC) FY 2021
Building Infrastructure and Evidence for COVID-19 Related Research, Using Integrated Data from National Center for Health Statistics (NCHS) Data Linkage Program National Center for Health Statistics at the Centers for Disease Control and Prevention (NCHS-CDC) FY 2021
Multistate Emergency Medical Services (EMS) and Medicaid Dataset (MEMD): A Linked Dataset for Patient-Centered Outcomes Research Office of the Assistant Secretary for Planning and Evaluation- Office of Behavioral Health, Disability, and Aging Policy (ASPE-BHDAP) FY 2021
Making Medicaid Data More Accessible Through Common Data Models and FHIR APIs

Food and Drug Administration (FDA)

National Institutes of Health/National Library of Medicine (NIH/NLM)

FY 2021
Understanding COVID-19 Trajectory and Outcomes in the Context of Multiple Chronic Conditions (MCC) through e-Care Plan Development

Agency for Healthcare Research and Quality (AHRQ) 

National Institutes of Health/National Institute of Diabetes and Digestive and Kidney Diseases (NIH/NIDDK)

FY 2021
Dataset on Intellectual and Developmental Disabilities: Linking Data to Enhance Person-Centered Outcomes Research Office of the Assistant Secretary for Planning and Evaluation- Office of Behavioral Health, Disability, and Aging Policy (ASPE-BHDAP) FY 2021
CURE ID: Aggregating and Analyzing COVID-19 Treatments from EHRs & Registries Globally Food and Drug Administration (FDA) FY 2021
Severe Maternal Morbidity and Mortality-Electronic Health Record (EHR) Data Infrastructure National Institutes of Health FY 2021
MAT-LINK2: Expansion of MATernaL and Infant NetworK to Understand Outcomes Associated with Treatment for Opioid Use Disorder during Pregnancy Centers for Disease Control and Prevention FY 2021
Enhancing Surveillance of Maternal Health Clinical Practices and Outcomes with Federally Qualified Health Centers’ (FQHCs) Electronic Health Records Visit Data Centers for Disease Control and Prevention FY 2021
Data Linkage: Evaluating Privacy Preserving Record Linkage Methodology and Augmenting the National Hospital Care Survey with Medicaid Administrative Records Centers for Disease Control and Prevention FY 2020
Developing a Multi-State Network of Linked Pregnancy Risk Assessment Monitoring System (PRAMS) and Clinical Outcomes Data for Patient-Centered Outcomes Research Centers for Disease Control and Prevention FY 2020
Data Capacity for Patient-Centered Outcomes Research through Creation of an Electronic Care Plan for People with Multiple Chronic Conditions 2.0: Development of the Patient-Facing Application

National Institutes of Health

Agency for Healthcare Research and Quality

FY 2020
Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research Project 2.0 Centers for Disease Control and Prevention FY 2020
Training Data for Machine Learning to Enhance Patient-Centered Outcomes Research (PCOR) Data Infrastructure

Office of the National Coordinator for Health Information Technology

National Institutes of Health 

National Library of Medicine

FY 2019
A Synthetic Health Data Generation Engine to Accelerate Patient-Centered Outcomes Research Office of the National Coordinator for Health Information Technology FY 2019
Validating and Expanding Claims-Based Algorithms of Frailty and Functional Disability for Value-Based Care and Payment

Office of the Assistant Secretary for Planning and Evaluation

Agency for Healthcare Research and Quality

Centers for Disease Control and Prevention

Centers for Medicare and Medicaid Services

FY 2019
Bridging the PCOR Infrastructure and Technology Innovation through Coordinated Registry Networks (CRN) Community of Practice Food and Drug Administration FY 2019
Surveillance Network: Maternal, Infant, and Child Health Outcomes Following Treatment of Opioid Use Disorder (OUD) During Pregnancy Centers for Disease Control and Prevention FY 2019
Linking State Medicaid and Child Welfare Data for Outcomes Research on Treatment for Opioid Use Disorder and Other Behavioral Health Issues Office of the Assistant Secretary for Planning and Evaluation FY 2019
Augmenting the National Hospital Care Survey (NHCS) Data through Linkages with Administrative Records: A Project Centers for Disease Control and Prevention FY 2019
Identifying Co-Occurring Disorders among Opioid Users Using Linked Hospital Care and Mortality Data: Capstone to an Existing FY18 OS-PCORTF Project Centers for Disease Control and Prevention FY 2019
NIDA’s AMNET: An Addiction Medicine Network to Address the United States Opioid Crisis National Institutes of Health FY 2019
Data Capacity for Patient-Centered Outcomes Research through Creation of an Electronic Care Plan for People with Multiple Chronic Conditions

National Institutes of Health

Agency for Healthcare Research and Quality

FY 2019
Making Electronic Health Record (EHR) Data More Available for Research and Public Health Centers for Disease Control and Prevention FY 2019
SHIELD- Standardization of Lab Data to Enhance Patient-Centered Outcomes Research and Value-Based Care Food and Drug Administration FY 2019
Enhancing Patient-Centered Outcomes Research (PCOR): Creating a National Small-Area Social Determinants of Health Data Platform Agency for Healthcare Research and Quality FY 2019
Assessing and Predicting Medical Needs in a Disaster

Office of the Assistant Secretary for Preparedness and Response 

Agency for Health Research and Quality

FY 2018
Capstone for the Outcomes Measures Harmonization Project Agency for Health Research and Quality FY 2018
Emergency Medicine Opioid Data Infrastructure - Key Venue to Address Opioid Morbidity and Mortality National Institutes of Health FY 2018
Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research Project Centers for Disease Control and Prevention FY 2018
Strengthening the Data Infrastructure for Outcomes Research on Mortality Associated with Opioid Poisonings Centers for Disease Control and Prevention FY 2018
Enhancing Identification of Opioid-Involved Health Outcomes Using Linked Hospital Care and Mortality Data Centers for Disease Control and Prevention FY 2018
Technologies for Donating Medicare Beneficiary Claims Data to Research Studies

Centers for Medicare and Medicaid Services (CMS)

National Institutes of Health

FY 2017
Developing a Strategically Coordinated Registry Network (CRN) for Women’s Health Technology

Food and Drug Administration

National Institutes of Health
Office of the National

Coordinator for Health Information Technology

FY 2017
Harmonization of Various Common Data Models and Open Standards for Evidence Generation

Food and Drug Administration

National Institutes of Health

Office of the National Coordinator for Health Information Technology

FY 2017
Enhancing Data Resources for Researching Patterns of Mortality in Patient-Centered Outcomes Research

Centers for Disease Control and Prevention

Food and Drug Administration 

Centers for Medicare and Medicaid Services

FY 2017
Advancing the Collection and Use of Patient-Reported Outcomes (PROs) through Health Information Technology (IT)

Agency for Health Research and Quality

Office of the National Coordinator for Health Information Technology

FY 2017
PCOR: Privacy and Security Blueprint, Legal Analysis and Ethics Framework for Data Use, & Use of Technology for Privacy Centers for Disease Control and Prevention
Office of the National Coordinator for Health Information Technology
FY 2015

Completed Projects

(Arranged in Order Completed)

Project Title Implementing Agency FY Funded
Use of the ADAPTABLE Trial to Strengthen Methods to Collect and Integrate Patient-reported Information with Other Data Sets and Assess Its Validity National Institutes of Health FY 2016
Standardization and Querying of Data Quality Metrics and Characteristics for Electronic Health Data Food and Drug Administration FY 2016
Utilizing Data from Various Data Partners in a Distributed Manner Food and Drug Administration FY 2015
Improving the Mortality Data Infrastructure for Patient-Centered Outcomes (PCOR) Centers for Disease Control and Prevention FY 2015
Development of a Natural Language Processing (NLP) Web Service for Public Health Use

Centers for Disease Control and Prevention

Food and Drug Administration

FY 2016
Security and Privacy Standards for Patient Matching, Linking and Aggregation Office of the National Coordinator for Health Information Technology FY 2015
Harmonization of Clinical Data Element Definitions for Outcome Measures in Registries Agency for Healthcare Research and Quality FY 2016
Source Data Capture from Electronic Health Records: Using Standardized Clinical Research Data Food and Drug Administration FY 2016
Creation of LOINC Equivalence Classes National Institutes of Health FY 2016
Cross Network Directory Service Food and Drug Administration FY 2015
Collection of Patient-Provided Information through a Mobile Device Application for Use in Comparative Effectiveness and Drug Safety Research Food and Drug Administration FY 2015
Conceptualizing a Data Infrastructure for the Capture and Use of Patient-Generated Health Data Office of the National Coordinator for Health Information Technology FY 2015
Improving Beneficiary Access to their Health Information through an Enhanced Blue Button Service Centers for Medicare and Medicaid Services FY 2016
Improving Beneficiary Access to Health Information: A Plan to Enhance “Blue Button” Centers for Medicare and Medicaid Services FY 2014
Strengthening and Expanding the Community Health Applied Research Network (CHARN) Registry to Conduct 

Patient-Centered Outcomes Research (PCOR)

Health Resources & Services Administration

FY 2014
Creating the Foundational Building Blocks for the Learning Health Care System: Data Access Standards for Electronic Health Records (EHRs) Office of the National Coordinator for Health Information Technology FY 2013
Creating the Foundational Blocks for the Learning Health Care System: Structured Data Capture (SDC) Office of the National Coordinator for Health Information Technology FY 2013
Expanding Data Collection for the National Program of Cancer Registries (NPCR) for Comparative Effectiveness Research (CER) Centers for Disease Control and Prevention FY 2013
Comparative Effectiveness Research (CER) Inventory Assistant Secretary for Planning and Evaluation FY 2012
Beta Testing the Multi-Payer Claims Database (MPCD) Assistant Secretary for Planning and Evaluation FY 2012
Maintenance and Support of the Chronic Conditions Warehouse (CCW) for Comparative Effectiveness Research (CER) Centers for Medicare and Medicaid Services FY 2012
Development of Data Infrastructure for Use of Electronic Health Records (EHRs) in Comparative Effectiveness Research (CER)

Office of the National Coordinator for Health Information Technology

National Institutes of Health

FY 2012