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Privacy & Confidentiality


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Minimizing Disclosure Risk in HHS Open Data Initiatives

September 28, 2014
Federal agencies have a long history of releasing data to the public, and they also have a legal obligation to protect the confidentiality of the individuals and organizations from which the data were collected. Federal agencies have successfully balanced these two objectives for decades.

Consumer Control of Electronic Personal Health Information: What Does It Mean? Why Is It Important?

February 28, 2007
A Report on Three Consumer Focus Group Meetings Convened in October, 2005 by the Office of the Assistant Secretary for Planning and Evaluation By: Susan Kanaan Suzie Burke-Bebee Helga E. Rippen U.S. Department of Health and Human Services

Privacy Issues in Mental Health and Substance Abuse Treatment: Information Sharing Between Providers and Managed Care Organizations: Final Report

January 16, 2003
Effective psychotherapydepends upon an atmosphere of confidence and trust in which the patient is willing to make a frank and complete disclosure of facts, emotions, memories, and fears.Jaffe vs. Redmond, US Supreme Court, 1996

Privacy Issues in Mental Health and Substance Abuse Treatment: Information Sharing Between Providers and Managed Care Organizations

January 16, 2003
This report clarifies the sources of the tension between providers and payers with regard to what personal information should be shared for patients receiving mental health or substance abuse treatment. It also provides information to support a more consistent application of privacy-sensitive approaches to collecting personal health information in the future.

Protecting the Privacy of Patients' Health Information

May 8, 2001
Overview: Each time a patient sees a doctor, is admitted to a hospital, goes to a pharmacist or sends a claim to a health plan, a record is made of their confidential health information.

Standards for Privacy of Individually Identifiable Health Information. Regulation Text.

January 4, 2001
For the reasons set forth in the preamble, 45 CFR Subtitle A, Subchapter C, is amended as follows:"Part 160 – General Administrative Requirements1. Part 160 is revised to read as follows:PART 160 – GENERAL ADMINISTRATIVE REQUIREMENTSSubpart A – General Provisions

Differences Among Services and Policies in High Privacy or High Service Assisted Living Facilities

October 31, 2000
The focus of this short analytic report differs in that it attempts to address, at least in an initial fashion, what types of assisted living facilities, among those in our sample, have characteristics that might be appealing to either consumers or policymakers focusing on consumers= needs.