As the United States population ages, a larger proportion of individuals will likely need and use long-term services and supports (LTSS). Much of this support is provided by informal (i.e., unpaid) caregivers. For those that need paid LTSS, most Americans pay out-of-pocket. Some may do so until their personal resources are exhausted, and then rely on the Medicaid safety net.
Caregiving, Formal & Informal
Reports
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Advanced SearchResearch Brief
Long-Term Services and Supports for Older Americans: Risks and Financing, 2022
September 27, 2022
This Brief presents information about the risk of needing care and associated costs to provide content for policymakers and others considering long-term care financing proposals. It revises a brief that was written in October 2020.
ASPE Issue Brief
Federal Efforts to Address Racial and Ethnic Disparities in Alzheimer’s Disease and Related Dementias
June 7, 2022
The National Alzheimer’s Project Act (NAPA) requires “the inclusion of ethnic and racial populations at higher risk for Alzheimer's or least likely to receive care, in clinical, research, and service efforts with the purpose of decreasing health disparities in Alzheimer's”.1 In order to meet this requirement, in 2020 the Advisory Council on Alzheimer’s Research, Care, and Services recommended t
ASPE Issue Brief
COVID-19 Intensifies Home Care Workforce Challenges: Policy Perspectives Issue Brief
June 1, 2021
Link to Printer Friendly Version in PDF Format (5 PDF pages)
Literature Review
Informal Caregiver Supply and Demographic Changes: Review of the Literature
January 7, 2021
Informal Caregiver Supply and Demographic Changes: Review of the Literature Brenda C. Spillman, Eva H.
ASPE Issue Brief
Family Structures and Support Strategies in the Older Population: Implications for Baby Boomers Issue Brief
January 7, 2021
Family Structures and Support Strategies in the Older Population: Implications for Baby Boomers
COVID-19 Intensifies Nursing Home Workforce Challenges
October 18, 2020
October 2020
Printer Friendly Version in PDF Format (45 PDF pages)
Research Summit on Dementia Care: Main Summit Recommendations
May 15, 2018
This is the PDF version of the 12 Recommendation Themes from National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers: Report to the National Advisory Council on Alzheimer's Research, Care, and Service.
Dementia Family Caregiving
October 30, 2017
This is the PDF version of a Pre-Summit Activity Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
Dementia Caregiving in the U.S.: Research Recommendations
September 30, 2017
This is the PDF version of a Pre-Summit Activity Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).