The activities of daily living (ADLs) are the basic task of everyday life: eating, bathing, dressing, toileting, and transferring. Although persons of all ages may have problems performing ADLs, disability prevalence rates are much higher for the elderly rising steeply with advancing age.
Data
ASPE uses and produces data as key components of its work. ASPE studies and assesses data and how it is captured, managed, analyzed and protected, including the interplay of the sources, systems, standards for data that support policy, practice and research.
ASPE also co-chairs the HHS Data Council, which is the principal internal advisory body to the Secretary on health and human services data policy. The Council coordinates data policy activities in HHS, including the development and implementation of an HHS data strategy, and conducts research to improve long-term collection and use of HHS data.
ASPE’s work involves many types of data produced by HHS and other governmental programs and other partners. For example:
- Through its Foundations for Evidence-Based Policies Act of 2018 (“Evidence Act”) and Data Council responsibilities, ASPE leads HHS efforts to improve the quality and accessibility of its data assets.
- Through its investments under the aegis of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), ASPE supports interoperability through such products as linked datasets involving mortality data, HL7 implementation guides in support of FHIR for research use of electronic health records, claims and other data, and natural language processing approaches.
- Through the use of ASPE-developed supplemental data tables, ASPE has developed issue brief series examining options before and after the passage of the American Rescue Plan Act of 2021 (ARP).
- Through its issue briefs such as this brief on Medicare Telehealth utilization trends, ASPE provides unique and timely data and analyses on important policy issues.
- Pursuant to the Social Security Act, ASPE annually calculates and publishes the Federal Medical Assistance Percentage (FMAP), enhanced Federal Medicaid Assistance Percentage (e-FMAP), and disaster-recovery FMAP for all states, the District of Columbia, and territories. The FMAP is used to determine federal funding for Medicaid/CHIP, Temporary Assistance for Needy Families (TANF) Contingency Funds, and other public programs. The FY 2022 FMAP notice was published in the Federal Register on November 30, 2020.
Noteworthy
Reports
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Advanced SearchReliability and Validity of the National Incidence of Child Abuse and Neglect Study Conducted by Westat Associates in 1988: Methodological Review
U.S. Department of Health and Human Services
Report on Problems and Suggestions for Improving the NLTCS Files for 1982 and 1984
This paper summarizes the problems with and suggestions for improving the National Long-Term Care Survey (NLTCS) files. It incorporates many of the concerns and ideas users stated at a Forum on the NLTCS. It outlines concrete areas where improvements and increased technical support are needed so that the research community can conduct the most useful and credible studies possible.
National Conference on Home Care Quality: Issues and Accountability--Volume I Proceedings
To better understand the actual nature of quality problems in home care and the difficulties that home care agencies and state officials face in assuring quality of care, DALTCP sponsored a practitioners conference on quality assurance in home care. The conference included researchers and federal and state regulatory officials and emphasized the experience of practitioners in the field.
Foster Care for Children and Adults with Handicaps: Child Welfare and Adult Social Services Final Report
This report summarizes state-by-state data on the number of children and adults in foster homes administered by child welfare or social service agencies. As of December 1985, there were approximately 261,000 children in out-of-home foster care, including 54,000 handicapped children, of whom 14,000 were mentally retarded.
Databook on the Elderly: A Statistical Portrait - Executive Summary
Michele Adler, Suzanne Kitchen, and Albert Irion June 1987 This report was prepared under task order contract #HHS-100-84-0036 between the U.S. Department of Health and Human Services (HHS) and Macro Systems, Inc.
Analysis of the Benefits and Costs of Channeling
The principal finding of this report is that Channeling led to an increase in total costs for clients, including costs for medical and long-term care services and costs for shelter, food and other daily living expenses.
Analysis of Channeling Project Costs
This report examines a small but key aspect of Channeling the costs of operating the demonstration itself. The ten sites incurred costs of $23 million as they prepared for and later provided case management and long-term care services to clients between September 1980 and June 1984.
Informal Care to the Impaired Elderly: Report of the National Long Term Care Demonstration Survey of Informal Caregivers
U.S. Department of Health and Human Services