People with Disabilities

This study investigated factors associated with the decisions of principal informal caregivers of the activity of daily living (ADL) dependent elderly living in the community to end caregiving. Data were from the 1982 National Long-Term Care Survey (NLTCS), the 1982 Informal Caregiver Survey and 1984 NLTCS Longitudinal Follow-up.

U.S. Department of Health and Human Services

This report provides an overview of the major federal assistance programs targeted on non-elderly persons with disabilities. Program descriptions include expenditures, trends, the number and characteristics of recipients, eligibility rules, recent program history and legislative changes, and interactions with other federal programs.

An analysis was made of the pre and post-patterns of Medicare Part A service use using the samples of the 1982 and 1984 National Long-Term Care Surveys linked to the Medicare Part A bill files and mortality reports.

In spite of the growth in federal programs affecting the developmentally disabled, there is little comprehensive information about this population. The Survey of Income and Program Participation (SIPP) is one available source of information. SIPP is a nationally representative longitudinal survey of the adult civilian non-institutionalized population in the U.S.

This document contains brief summaries of recommendations for survey items to be included in the Survey of Persons with Mental Retardation and Developmental Disabilities. The domains covered by these recommendations are based on the core set identified in consultation with the Technical Advisory Group and HHS. [49 PDF pages]

U.S. Department of Health and Human Services

This compendium is published by the Division of Disability, Aging and Long-Term Care Policy within the Office of the Assistant Secretary for Planning and Evaluation, Office of Social Services Policy. It summarizes the results of the Division's research projects from 1986 through the present and highlights future plans.

This report analyzes the impact of current federal policies and programs on the growth of community living arrangements and supportive services for people with mental retardation and other developmental disabilities (MR/DD).

A study was conducted on elderly long-term care population characteristics and service use; it focused on functional transitions at advanced ages and the impact of long-term care services on these transitions.