This summary is intended to restate the major research questions being addressed in the Pennhurst Longitudinal Study and provide executives, decisionmakers, and lay persons, in an extremely abbreviated form some tentative answers based on the analysis of the data collected to date.
Aging & Disability
ASPE produces policy research focusing on older adults, Medicare, dual-eligible beneficiaries, individuals with disabilities, Alzheimer’s disease, dementia, and caregivers. Resources relating to aging and disability include advance directives, end-of-life care planning, elder abuse, long-term services and supports (LTSS), home and community-based services (HCBS), and healthy aging.
Noteworthy
NAPA
The National Alzheimer's Project Act (NAPA) creates an important opportunity to build upon and leverage HHS programs and other federal efforts to help change the trajectory of Alzheimer's disease and related dementias (AD/ADRD) with input from a public-private Advisory Council on Alzheimer's Research, Care, and Services.
More Resources on Aging and Disability
Topic Areas
Reports
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Advanced SearchInitial Research Design of the National Long Term Care Demonstration
The primary objective of the research in the National Long-Term Care Channeling Demonstration was to determine the impacts of the demonstration on service utilization, public and private costs, clients and caregivers. The demonstration employed a randomized experimental design with random assignment of eligible participants to either treatment group or control group status.
Community Services and Long-Term Care: Issues of Negligence and Liability
Agencies operating under the National Long-Term Care Channeling Demonstration program had complex assignments to assess the needs of older people requiring long-term care, to determine what services met such needs and to arrange for the delivery of services. Responsibility for a client was spread across several agencies, organizations, and individuals.
Working Papers on Long-Term Care
These Papers describe the current state of knowledge about long-term care in the U.S., and serve as a knowledge base for the difficult analytic tasks that lie ahead. They are based on the work of HHS's Task Force on Long-Term Care up to January 1981 and contain data that have not been available before.
Issues in Developing the Client Assessment Instrument for the National Long Term Care Channeling Demonstration
This preliminary report addresses a number of issues pertaining to the development of a combined research and clinical instrument for assessing the functional status of clients in the National Long-Term Care Channeling Demonstration.