TITLE: Area Resource File System
ACRONYM: ARF
AGENCY/PROGRAM: Bureau of Health Professions, Health Resources and Services Administration
DESCRIPTION: County specific health resource information system designed to be used by planners, policy makers, researchers, and other professionals interested in the nation's health care delivery system. The ARF contains information on health professions, health facilities, hospitals, vital statistics, population and economics, utilization, expenditures, and health professions training. The ARF also contains geographic codes and descriptors which enable it to be linked to other files and to aggregate counties into various geographic groupings. Unit of analysis varies: state, county, and/or sub-county level. The ARF is comprised of data from over 50 different source files and numerous data records (e.g. NCHS mortality and natality records,
AHA facilities, and AMA physician specialty data). All information contained on the ARF is derived from existing data sources. The ARF is available in two versions - an ASCII version and a Microsoft Access version. The ASCII version is approximately 100MBytes in sizes and is best access using SAS, SPSS or other large file handling software. The MS Access version contains a user-friendly front end that permits any level of user to select the specific variables of interest, for and county or groups of counties, by 'pointing and clicking' on the variables.
RACE/ETHNICITY: Varies depending on the data set.
STATUS: Reporting periods are based on the availability of each data element. The most current year for each data element is used. The ARF is released annually.
HOW TO ACCESS DATA: Federal Agencies and persons under federal contract should contact Inga Franklin. Independent and non-contract individuals (ie., students, researchers) may purchase the ARF (ASCII version) for $500 and the ARF Access (Microsoft Access) for $800 directly from QRS, Inc. The ARF (ASCII version) are available on CD-ROM and 3480 cartridge), the ARF Access is available on CD-ROM. Custom reports and files can be specified and are priced according to the extent of work required.
CONTACT PERSON: Ms. Colleen Goodman, Quality Resource Systems, Inc., ph.: 703-352-7393;
Inga Franklin, NCHWA/BHPr/HRSA, ph.: 301-443-6663, email: ifranklin@hrsa.gov
ACRONYM: UDS
AGENCY/PROGRAM: Bureau of Primary Health Care (BPHC), Health Resources and Services Administration
DESCRIPTION: This data collection system collects uniformly-defined information for the major BPHC grant Programs. The system yields consistent information on patient characteristics and clinical conditions. The UDS provides data on services, site locations, delivery methods, staffing, client characteristics, and financing. The unit of analysis is the grantee. Seven hundred and fifty-seven grantees submit information directly to HRSA.
RACE/ETHNICITY: RACE/ETHNICITY: More than one race can be reported. Information is available for the following categories: American Indian or Alaska Native, Asian, Black or African-American, Native Hawaiian or other Pacific Islander, White, Unreported/Refused to Report, Hispanic or Latino/a, Non-Hispanic or Latino/a.
STATUS: Reporting period is annual. Most current year of data is 2001.
HOW TO ACCESS DATA: State and national summaries are available on the HRSA web site.
WEB SITE: bphc.hrsa.gov/uds
CONTACT PERSON: Angela Damiano-Holder, BPHC, HRSA 301-594-4184
TITLE: AIDS Education and Training Centers
ACRONYM: AETCs
AGENCY/PROGRAM: HIV/AIDS Bureau, Health Resources and Services Administration
DESCRIPTION: Data are collected on health care providers who receive AIDS education and training in 12 Reginal and 4 National AIDS Education & Training Centers representing 75 local performance sites. The unit of analysis is each training session (in the form of an individual program data record). The types of data collected include profession/discipline, specialty or area of expertise, primary functional role, primary employment setting, demographics, and percent of HIV clients and patients. Each participant in a training program is asked to complete a participant information form (PIF). The completion of the form is voluntary. Participant Information Forms are aggregated into individual program data records (IPDR). The IPDRs are electronically submitted to the 16 ETC grantees who, on a monthly basis, transmit the IPDRs the National Evaluation Center.
RACE/ETHNICITY: RACE/ETHNICITY: More than one race can be reported. Information is available for the following categories: American Indian or Alaska Native, Asian, Black or African-American, Native Hawaiian or other Pacific Islander, White, Unreported, Hispanic or Latino/a (Mexican, Cuban, Puerto Rican, Central and South American), Non-Hispanic or Latino/a.
STATUS: Reporting period is semi-annual. Most Current Year of Data is July 2002 - July 2002.
HOW TO ACCESS DATA: Aggregate data available on the HRSA web site or by contacting the program.
WEB SITE: hab.hrsa.gov
CONTACT PERSON: Marisol M. Rodriguez, HIV/AIDS Bureau, HRSA 301-443-4082
TITLE: Dental Reimbursement Program--HIV/AIDS
ACRONYM:
AGENCY/PROGRAM: HIV/AIDS Bureau, Health Resources and Services Administration
DESCRIPTION: The funding for this program differs from all other CARE Act programs in that organizations apply for funds after they are expended. The data collected include information on patient demographics, distribution of dental procedures, HIV related collaboration activities, and use of reimbursement award. An estimate of 125 institutions with post-graduate dental education programs and/or dental residency programs report data on an application form containing 23 questions. Applicants are required to report on all patients.
RACE/ETHNICITY: More than one race can be reported. Information is available for the following categories: American Indian or Alaska Native, Asian, Black or African-American, Native Hawaiian or other Pacific Islander, White, Unreported, Hispanic or Latino/a, Non-Hispanic or Latino/a.
STATUS: Reporting period is annual. Most current year of data is 2001.
HOW TO ACCESS DATA: Aggregate data is available by contacting the program.
WEB SITE: hab.hrsa.gov
CONTACT PERSON: Barry Waterman, HIV/AIDS Bureau, HRSA 301-443-1434
ACRONYM:
AGENCY/PROGRAM: Office of Special Programs, Health Resources and Services Administration
DESCRIPTION: Under contract with HRSA, the United Network of Organ Sharing (UNOS) has operated the Organ Procurement and Transplantation Network (OPTN) since 1986 and the Scientific Registry of Transplant Recipients (SRTR) from 1987 until 2000. Prior to September 2000, both the OPTN and the SRTR were involved in data collection, the OPTN collected pre-transplant data and the SRTR collected post-transplant data. Since September 2000, the OPTN contractor has collected all transplant data. The data in its entirety is provided to the SRTR contractor, the University Renal Research and Education Association (URREA). The OPTN and SRTR contractors collaborate and share data to support important policy issues in organ transplantation. The data collected and analyzed include information on cadaveric and living donor characteristics, survival rates, waiting lists and organ disposition. Data are provided by transplant programs, histocompatibility laboratories, and organ procurement organizations throughout the United States.
RACE/ETHNICITY: RACE/ETHNICITY: More than one race can be reported. Information is available for the following categories: American Indian or Alaska Native, Asian, Black or African-American, Native Hawaiian or other Pacific Islander, White, Mid-East/Arabian, Indian Sub-Continent, Hispanic or Latino/a, Non-Hispanic or Latino/a.
STATUS: Each program supplies the information to UNOS which then transmits a copy of the data to HRSA and URREA on a monthly basis. The most current year of data available is 2002.
HOW TO ACCESS DATA: Aggregate data are available by accessing the OPTN web site at www.optn.org or the SRTR web site at www.ustransplant.org. For information not available from the web sites, data can be requested by calling the UNOS Data Request telephone number at 804/327-1432, faxing requests to 804/323-3794, or sending an e-mail to www.optn.org/header_page.asp?tabid=5. Requests for patient-identified or patient-identifiable data needed for bonafide research or analysis purposes, may be obtained from either UNOS or URREA. To insure appropriate protections for data confidentiality, the requestor must complete a data release agreement with UNOS or URREA. Data requests may incur a financial charge depending on the complexity of the request or if special programming is required.
CONTACT PERSON: Joyce Somsak, Acting Director, Division of Transplantation, Office of Special Programs, HRSA 301-443-7577, or jsomsak@hrsa.gov.
TITLE: Ryan White Comprehensive Aids Resources Emergency (CARE) Act of 1990, Care Act Data Report (CADR) System
ACRONYM: CADR
AGENCY/PROGRAM: HIV/AIDS Bureau, Health Resources and Services Administration
DESCRIPTION: The CADR annual data collection will replace the current data reports being used by Titles I, II, III, and IV with one form. The primary purpose of the CADR is to: (1) characterize the organizations from which clients receive services; (2) provide information on the number and characteristics of clients who receive CARE Act services; and (3) enable HAB to describe the type and amount of services a client receives. In addition to meeting the goal of accountability to Congress, clients, advocacy groups, and the general public, information collected for the CADR is critical for HRSA, state and local grantees, and individual providers to assess the status of existing HIV-related service delivery systems. The partnership between HRSA, grantees, providers, and clients has provided a unique opportunity to ensure that all parties share in the benefits of accurate information to promote improved care for individuals and families living with HIV. The collective responsibility to ensure that service dollars reach targeted populations, appropriate HIV services are provided, and adequate funding is available to meet furture HIV-related service needs, requires a commitment at every level.
Reports are collected from 567 grantees representing 2019 service providers. Each provider collects the primary information which is then transmitted to HRSA thru the grantee (the state).
RACE/ETHNICITY: More than one race can be reported. Information is available for the following categories: American Indian or Alaska Native, Asian, Black or African-American, Native Hawaiian or other Pacific Islander, White, Unknown/Unreported, Hispanic or Latino/a, Non-Hispanic or Latino/a.
DATA LIMITATIONS: CADR is designed to collect unduplicated, aggregate-level data on six different areas: Service Provider Information, Client Information, Services Provided/Clients Served, Demographic Information, AIDS Pharmaceutical Assistance Program, and the Health Insurance Program.
STATUS: Reporting period is annual. The first data collection will take place in March 2003.
HOW TO ACCESS DATA: Aggregate-level data are used to develop an annual report that will be available on the HRSA web site or by contacting the program.
WEB SITE: hab.hrsa.gov
CONTACT PERSON: Alice Kroliczak,Ph.D., HIV/AIDS Bureau, HRSA 301-443-3592
TITLE: Block Grant Accountability
ACRONYM:
AGENCY/PROGRAM: Maternal and Child Health Bureau (MCHB), Health Resources and Services Administration
DESCRIPTION: Title V of the Social Security Act authorizes appropriations to States to improve the health of all mothers and children consistent with the applicable health status goals and national health status goals and national health objectives established by the Secretary under the Public Health Service Act and Healthy People 2010. The information collected from the Application for Block Grant funds includes data on each State's needs, priorities, program activities, performance measures and outcomes to be compiled and compared with information from other States. The data collected are used to generate reports to Congress. The unit of analysis is at the state level or population level.
RACE/ETHNICITY: RACE/ETHNICITY: More than one race can be reported. Information is available for the following categories: American Indian or Alaska Native, Asian, Black or African-American, Native Hawaiian or other Pacific Islander, White, Unreported, Hispanic or Latino/a (Mexican, Cuban, Puerto Rican, Central and South American), Non-Hispanic or Latino/a.
STATUS: Fifty-nine states and territories report core and other performance-related measures on an annual basis. The information is submitted directly to MCHB in the form of an electronic reporting package, which is being streamlined.
HOW TO ACCESS DATA: Data are available on the HRSA web site.
CONTACT PERSON: Cassie Lauver, MCHB, HRSA 301-443-2204