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napa

Advisory Council October 2015 Meeting Presentation: First US AD Plan

Monday, October 26, 2015

First US Plan to Address Alzheimer’s Disease

Ronald C. Petersen, Ph.D., M.D.
Mayo Clinic
Rochester, MN

Chair, Advisory Council on Research, Care and Services

National Alzheimer's Project Act

  • 2010: Passed by Congress
  • 2011: Signed by President
  • 2011: Advisory Council Appointed
  • 2012: First National Plan
  • 2013: National Plan
  • 2014: National Plan
  • 2015: National Plan
  • 2015: Advisory Council Transition

NAPA

In the introductory language of the National Plan the term “Alzheimer’s Disease” is used but is intended to include AD related dementias:

  • Dementia with Lewy bodies
  • Frontotemporal lobar degeneration
  • Vascular cognitive impairment/dementia
  • Down syndrome

NAPA - Purpose

  • Secretary of HHS shall
    • Create and maintain the National Plan
    • Coordinate Alzheimer’s research and services across Federal agencies
    • Accelerate the development of treatments
    • Improve
      • Early diagnosis
      • Coordination of care and treatment
    • Ensure the inclusion of ethnic and racial populations at higher risk
    • Coordinate with international bodies

NAPA - Duties of the Secretary of HHS

  • Oversee the creation and updating of the Plan
  • Evaluate all Federal programs including budgets and approvals
  • Carry out annual assessment of the Nation’s progress including implementation steps and recommendations for priority actions

NAPA - Advisory Council on Research, Care and Services

  • Federal members
    • Centers for Disease Control and Prevention
    • Administration on Aging
    • Centers for Medicare & Medicaid Services
    • Indian Health Services
    • National Institutes of Health
    • Surgeon General
    • National Science Foundation
    • Veterans Affairs
    • Food and Drug Administration
    • Agency for Healthcare Research and Quality
  • Non-Federal Members -- two each
    • Alzheimer’s patient advocates
    • Alzheimer’s caregivers
    • Health care providers
    • State health departments
    • Researchers
    • Voluntary health associations

NAPA - Annual Report

  • Initial evaluation of federally funded efforts in research, care, institutional programs and outcomes
  • Initial recommendations
    • Priority actions to alter programs
      • Reduce financial impact
        • CMS
        • Families
      • Improve healthcare outcomes
  • Annually thereafter

National Plan to Address Alzheimer's Disease

National Alzheimer’s Project Act

Goal

  • To effectively treat Alzheimer’s dissease (delay onset, slow progression) by 2025

Prevalence of Mild, Moderate/Severe and Total Cases of Alzheimer’s Disease in the United States 2000-2050

Bar chart.
Sloane et al: Ann Rev Pub Health 23:213, 2002

US National Alzheimer’s PlanGoals

  1. Prevent and effectively treat AD by 2025
  2. Enhance care quality and efficiency
  3. Expand supports for people with AD and families.
  4. Enhance public awareness/engagement
  5. Improve data to track progress

Annual Revision of the National Plan

  • NAPA requires that the Plan be updated annually through 2025
  • For the 2013 revision a set of milestones to assess progress was recommended
    • Short term
    • Intermediate
    • Long term

NAPA Advisory Council

  • National Plan
    • Revised annually
    • Focuses on current activities
  • Recommendations
    • Unconstrained
    • Advisory to the Secretary and Congress

NAPA Advisory CouncilStructure

  • 26 Federal and Non-federal members
  • 3 Federal work groups: research , clinical care and services and support
  • 3 Subcommittees comprised of Federal and Non-federal members: research, clinical care, services and support

Research Summits

  • Alzheimer’s disease: 2012, 2015
  • AD Related dementias: 2013, 2016
  • Down Syndrome: 2014

From these summits, recommendations led to milestones, short, middle and long term which led to funding opportunities

Alzheimer’s Accountability Act2014

  • Required NIH to generate a Professional Judgment Budget (Bypass Budget) each year addressing the additional funding needs to reach the 2025 goal of the National Plan to effectively treat Alzheimer’s disease.
  • NAPA Advisory Council comments on budget being sent to Congress

National Alzheimer's Project Act

  • 2010: Passed by Congress
  • 2011: Signed by President
  • 2011: Advisory Council Appointed
  • 2012: First National Plan
  • 2013: National Plan
  • 2014: National Plan
  • 2015: National Plan
  • 2015: Advisory Council Transition
Files
Mtg18-Slides3.pdf (pdf, 1.18 MB)