Monday, July 21, 2014
ACL/AoA's Family Caregiver Support Programs: An Overview
About ACL
- The Administration for Community Living (ACL): A new operating division within the U.S. Department of Health & Human Services
- Brings together:
- Administration on Aging (AoA)
- Office on Disability (OD)
- Administration on Intellectual & Developmental Disabilities (AIDD)
- Charged with developing policies and improving supports for seniors and persons with disabilities of all ages.
ACL's Authorizing Statutes & Programs
- Older Americans Act of 1965 (as amended)
- Public Health Service Act Programs
- Section 398 -- Alzheimer's Disease Supportive Services Program (ADSSP)
- Title XXIX -- Lifespan Respite Care Program
- Health Insurance Portability and Accountability Act of 1996 (HIPAA) -- Health Care Fraud and Abuse Control (HCFAC) funds
- Senior Medicare Patrol
- Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act)
- Help America Vote Act (HAVA)
The U.S. Administration on Aging
- Created in 1965 -- Older Americans Act
- Focal Point and advocate for older persons and their caregivers
- Supports the Aging Services Network
- 56 state and territorial Units on Aging
- 618 Area Agencies on Aging
- 246 Tribal and Native Organizations
- Thousands of providers/volunteers
Aging Network: Supporting 11 Million Older Adults and Family Caregivers
- AoA
- 56 State Units on Aging
- 618 Area Agencies
- 246 Tribal organization
- 20,000 Service Providers & 500,000 Volunteers
- Provides Services & Supports to 1 in 5 Seniors
- 242 million meals
- 28 million rides
- 29 million hours of personal care
- 69,000 caregivers trained 855,000 assisted
- 4 million hours of case management
- 9,115 individuals transitioned
- 50,270 individuals completing CDSMP
AoA/Aging Network Programs and Services
- Older Americans Act (OAA) Programs
- Supportive Services (Title III B) -- adult day care, information, case management, transportation
- Nutrition Services (Title III C 1 & 2)
- Preventive Health Services (Title III D)
- National Family Caregiver Support Program (Title III E)
- Elder Rights Programs -- elder abuse, ombudsman (Title VII)
- National Demonstrations (Title IV)
- Native American Programs (Title VI)
- Other National Programs (non-OAA)
- Alzheimer's Disease Supportive Services Program (Public Health Services Act)
- Lifespan Respite Care Program (Public Health Services Act)
- Senior Medicare Patrol (SMP)
ACL's Caregiver Support Programs
- The National Family Caregiver Support Program (NFCSP)
- Title III E & VI C of the Older Americans Act -- 2000
- Family caregivers as service recipients
- Administered through the aging network
- States funded via formula: number of individuals age 70+
- 2014 Appropriation: $145.5 million
- Flexible package of high-value supportive services:
- Information
- Access Assistance
- Counseling, Support Groups, Training
- Respite
- Supplemental Services
The NFCSP: Eligible Service Recipients
- Family caregivers (18+) of older adults (60+)
- Family caregivers (18+) of individuals with Alzheimer's disease/related dementia (any age)
- Grandparents and relative caregivers (55+) of children (under age 18)
- Grandparent and relative caregivers (55+) of adult children (18-59) with a disability
The NFCSP: Outputs and Outcomes
- Who was served (FY 2011 Data)
- Access Assistance -- 1.1 million contacts for family caregivers
- Counseling/training -- 138,427 caregivers
- Respite -- 69,000 caregivers received 6.3 million hours
- What they said (2012 National Survey Data)
- 90% of caregivers felt services made them better caregivers
- 81% of family caregivers rated services as "excellent" (47%) or "very good" (34%)
- 77% of caregivers able to provide care longer
ACL's Caregiver Support Programs
- Alzheimer's Disease and Support Services Program (ADSSP)
- Since 2008 -- 85 grants to states awarded
- As of May 2014 - 41,951 people served
- Grantees have translated 10 evidence-based caregiver interventions
- Presently supporting 45 grants in 18 states
- 11 states translating 8 evidence-based interventions
- 4 states implementing innovative programs
- 4 states doing systems integration (coupled with evidence-based interventions)
- 5 states working on dementia capability -- No Wrong-Door/Single Point of Entry
- Since 2008 -- 85 grants to states awarded
- The Lifespan Respite Care Program
- Lifespan respite programs are defined as: "Coordinated systems of accessible, community-based respite care services for family caregivers of children or adults with special needs" (PL109-442 -- Lifespan Respite Care Act of 2006)
- Annual Appropriation: approximately $2.4 million/year
- Competitive grants to states to resolve challenges and barriers associated with respite services:
- Multiple programs, funding streams, access points
- Service affordability and quality
- Confusing and restrictive eligibility criteria & narrow targeting
- Lack of providers, training and service gaps
Lifespan Respite States (as of 2013)
 |
Looking Ahead at Family Caregiver Support
- Increasing focus on complex care and medical tasks
- Focus on the development of natural and peer supports
- Greater use of evidence-based approaches
- Replication and translation of evidence-based interventions
- Caregiver assessment
- The role of family caregivers in care transitions
- The use of technology to reduce caregiver burden and stress
Contact me
Greg Link, MA
Aging Services Program Specialist
Administration for Community Living
U.S. Administration on Aging
Washington, DC
Greg.link@acl.hhs.gov
Stay Connected With Us
Files
Document
Mtg13-Slides2.pdf (pdf, 1.08 MB)