Advisory Council January 2012 Meeting Presentation: Overview

01/17/2012

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

January 17-18, 2012

 

Draft Framework Overview

Helen Lamont

Challenges

  • There are no pharmacological or other interventions to definitively prevent, treat, or cure the disease.
  • Improved care quality is needed.
  • Family members and other informal caregivers, who take on the responsibility of caring for a loved one with AD, need support.
  • Stigmas and misconceptions associated with AD are widespread and profoundly impact the care provided to and the isolation felt by people with AD and their families.  
  • Progress should be coordinated and tracked.

Goals

  • Prevent and Effectively Treat Alzheimer’s Disease by 2025.
  • Optimize Care Quality and Efficiency.
  • Expand Patient and Family Support.
  • Enhance Public Awareness and Engagement.
  • Track Progress and Drive Improvement.

 

Proposed Actions to Achieve Goals 4 and 5

Strategy 4.A: Educate the public about Alzheimer's disease

  • Design a national education and outreach campaign
  • Conduct a national education and outreach campaign on Alzheimer’s disease

Strategy 4.B: Work with state and local governments to improve coordination and identify model initiatives to advance Alzheimer’s disease awareness and readiness across the government

  • Convene leaders from State and local governments
  • Continue to convene Federal partners

Strategy 5.A: Enhance HHS’ ability to track progress

  • Identify major policy research needs
  • Identify needed changes or additions to data

Strategy 5.B: Monitor progress on the National Plan

  • Track plan progress
  • Update the National Plan annually

 

Feedback on Framework and Goals 4 and 5

Advisory Council

 

Proposed Actions to Achieve Goal 3

Cindy Padilla

Strategy 3.A: Ensure receipt of culturally sensitive education, training, and support materials

  • Identify culturally sensitive materials and training
  • Distribute materials to caregivers
  • Utilize informatics for caregivers and persons with AD

Strategy 3.B: Enable family caregivers to continue to provide care while maintaining their own health and well-being

  • Identify unmet service needs
  • Review the state of the art of evidence-based interventions that can be delivered by community-based organizations
  • Develop and disseminate evidence-based interventions for people with Alzheimer’s disease and their caregivers
  • Expand implementation of effective caregiver interventions
  • Support caregivers in crisis and emergency situations

Strategy 3.C: Assist families in planning for future long-term care needs

  • Examine awareness of long-term care needs and options to identify barriers to planning
  • Expand long-term care awareness efforts

Strategy 3.D: Maintain the dignity, safety and rights of people with Alzheimer’s disease

  • Educate legal professionals about working with people with Alzheimer’s disease
  • Monitor, report and reduce use of anti-psychotic agents for persons with Alzheimer’s disease in nursing facilities

 

Feedback on Framework and Goal 3

Long-Term Services and Supports Subcommittee
David Hoffman

 

Proposed Actions to Achieve Goal 2

Shari Ling

Strategy 2.A: Build a workforce with the skills to provide high-quality care

  • Collect and disseminate dementia-specific guidelines and curricula for all provider groups across the care spectrum
  • Strengthen the direct-care workforce
  • Strengthen the State aging workforce
  • Support State and local policies

Strategy 2.B: Ensure timely and accurate diagnosis

  • Link the public to diagnostic and treatment services
  • Identify and disseminate appropriate assessment tools for use in the Medicare Annual Wellness Visit

Strategy 2.C: Educate and support patients and families upon diagnosis

  • Educate physicians and healthcare providers about accessing long-term care
  • Enhance assistance for people with AD and their caregivers to plan for care needs

Strategy 2.D: Identify and implement high-quality dementia care guidelines and measures across care settings

  • Explore dementia care guidelines and measures

Strategy 2.E: Ensure that people with AD experience safe and effective transitions between care settings and systems

  • Implement and evaluate new care models to support effective care transitions for patients with Alzheimer’s disease
  • Develop an AD-specific toolkit on care transitions

Strategy 2.F: Advance coordinated and integrated health and long-term care services and supports for individuals living with AD

  • Review evidence on effectiveness of care coordination models for people with Alzheimer’s disease
  • Implement and evaluate care coordination models

Strategy 2.G: Improve care for populations disproportionally affected by Alzheimer’s disease

  • Create a taskforce to improve care for these specific populations

 

Feedback on Framework and Goal 2

Clinical Care Subcommittee
Laurel Coleman

 

Proposed Actions to Achieve Goal 1

Richard Hodes

Strategy 1.A: Identify research priorities and milestones

  • Hold an international Alzheimer’s disease research summit to identify priorities, milestones, and a timeline (May 2012)
  • Solicit public and private input regarding Alzheimer’s disease
  • Convene a scientific workshop on other dementias in 2013

Strategy 1.B: Enhance scientific research aimed at preventing and treating Alzheimer’s disease

  • Expand research to identify the molecular and cellular mechanisms underlying Alzheimer’s disease, and translate this information into potential targets for intervention
  • Continue genetic epidemiologic research to identify risk and protective factors for Alzheimer’s disease.
  • Increase enrollment in clinical trials and other clinical research through community, national, and international outreach
  • Continue clinical trials on the most promising pharmacologic interventions
  • Continue clinical trials on the most promising lifestyle interventions

Strategy 1.C: Accelerate efforts to identify early and presymptomatic stages of Alzheimer’s disease

  • Identify imaging and biomarkers to monitor disease progression
  • Maximize collaboration among Federal agencies and with the private sector

Strategy 1.D: Coordinate research with international public and private entities

  • Inventory Alzheimer’s disease research investments and use a research ontology framework to analyze research portfolio information
  • Expand international outreach

Feedback on Framework and Goal 1

Research Subcommittee
Jennifer Manly

Public Input

To provide input on the National Plan, please email napa@hhs.gov

 

Long Term Services and Supports Subcommittee Presentation Slides [Available January 27, 2012]

Full HTML Version

Full PDF Version (4 PDF pages)

Clinical Care Subcommittee Presentation Slides [Available January 27, 2012]

Full HTML Version

Full PDF Version (6 PDF pages)

Research Subcommittee Presentation Slides [Available January 27, 2012]

Full HTML Version

Full PDF Version (6 PDF pages)

 


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