Disability

This study investigated factors associated with the decisions of principal informal caregivers of the activity of daily living (ADL) dependent elderly living in the community to end caregiving. Data were from the 1982 National Long-Term Care Survey (NLTCS), the 1982 Informal Caregiver Survey and 1984 NLTCS Longitudinal Follow-up.

U.S. Department of Health and Human Services

This report provides an overview of the major federal assistance programs targeted on non-elderly persons with disabilities. Program descriptions include expenditures, trends, the number and characteristics of recipients, eligibility rules, recent program history and legislative changes, and interactions with other federal programs.

In spite of the growth in federal programs affecting the developmentally disabled, there is little comprehensive information about this population. The Survey of Income and Program Participation (SIPP) is one available source of information. SIPP is a nationally representative longitudinal survey of the adult civilian non-institutionalized population in the U.S.

This document contains brief summaries of recommendations for survey items to be included in the Survey of Persons with Mental Retardation and Developmental Disabilities. The domains covered by these recommendations are based on the core set identified in consultation with the Technical Advisory Group and HHS. [49 PDF pages]

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services

This paper summarizes the problems with and suggestions for improving the National Long-Term Care Survey (NLTCS) files. It incorporates many of the concerns and ideas users stated at a Forum on the NLTCS. It outlines concrete areas where improvements and increased technical support are needed so that the research community can conduct the most useful and credible studies possible.

This compendium is published by the Division of Disability, Aging and Long-Term Care Policy within the Office of the Assistant Secretary for Planning and Evaluation, Office of Social Services Policy. It summarizes the results of the Division's research projects from 1986 through the present and highlights future plans.

Health planning efforts for the elderly have been hampered by the lack of reliable estimates of the non-institutionalized long-term care population. Until recently national estimates were virtually non-existent, and reliable local estimates remain unavailable.