Advisory Council October 2019 Meeting Summary
ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES
October 21, 2019
Washington, D.C.
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National Alzheimer's Project Act: Public Comments on Advisory Council Meeting, October 2019
ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES
Public Comments on Advisory Council Meeting, October 2019
List of Comments
S. DeSanti | 10-15-2019
M. Hogan | 10-14-2019
A. Taylor | 10-09-2019
State Residential Treatment for Behavioral Health Conditions: Regulation and Policy Environmental Scan
STATE RESIDENTIAL TREATMENT FOR BEHAVIORAL HEALTH CONDITIONS:
REGULATION AND POLICY ENVIRONMENTAL SCAN
Maureen T. Stewart, PhD, Peggy L. O'Brien, PhD, Morgan C. Shields, MSc, MAMackenzie C. White, BA, and Norah Mulvaney-Day, PhD
IBM Watson Health
November 2019
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State Residential Treatment for Behavioral Health Conditions: Regulation and Policy Environmental Scan
The objective of this environmental scan is to summarize the peer-reviewed and grey literature on oversight of residential care for mental health and substance use care in the United States, excluding inpatient hospital care. The scan provides a framework for defining residential treatment services, summarizes who is treated in residential care, a
BehHeaConLR.pdf
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Public Member of the Advisory Council on Alzheimer's Research, Care, and Services: 2019 Recommendations
PUBLIC MEMBERS OF THE ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE AND SERVICES: 2019 Recommendations
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Clinical Care Subcommittee
Clinical Care Themes:
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 5.B: Monitor Progress on the National Plan
The National Plan is intended to be a Road Map for accomplishing its five goals. It is a document that is designed to be updated regularly. HHS is committed to tracking progress and incorporating findings into an updated National Plan.
( ONGOING ) Action 5.B.1: Track National Plan progress
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 5.A: Enhance the Federal Government's Ability to Track Progress
The Federal Government needs improved data on people with AD/ADRD, their caregivers, and the care and supports that they use to address policy questions and plan and evaluate new initiatives. HHS and its partners will identify the policy questions that cannot be answered with existing data, as well as questions likely to arise in the future. These
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 4.C: Coordinate United States Efforts with Those of the Global Community
Many nations have developed dementia plans of their own that involve improved care and supports for people with AD/ADRD and their caregivers, as well as enhanced research and public awareness. In implementing the actions in this Plan, HHS and its federal partners will coordinate with global partners to enhance these plans, avoid duplication of eff
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 4.B: Work with State, Tribal, and Local Governments to Improve Coordination and Identify Model Initiatives to Advance Alzheimer's Disease and Related Dementias Awareness and Readiness across the Government
State, Tribal, and local governments are working to help address challenges faced by people with AD/ADRD and their caregivers. Nineteen states and a handful of local entities have published plans to address AD/ADRD that cover many of the same issues as the National Plan. Leveraging the available resources and programs across these levels of govern
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 4.A: Educate the Public about Alzheimer's Disease and Related Dementias
Greater public awareness of AD/ADRD can encourage families to seek assessment, reduce isolation and misunderstanding felt by caregivers, and help link people in need to accurate information, resources and services.
( ONGOING ) Action 4.A.1: Enhance public outreach about Alzheimer's disease and related dementias
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 3.E: Assess and Address the Housing Needs of People with Alzheimer's Disease and Related Dementias
Stable housing is essential to helping people with AD/ADRD remain in the community, particularly as they experience an increasing need for services and supports as the disease progresses. Housing is a crucial platform for delivering the necessary health and supportive services. Recognizing these links, HHS and the U.S. Department of Housing and Ur
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 3.D: Maintain the Dignity, Safety and Rights of People with Alzheimer's Disease and Related Dementias
People with AD/ADRD are particularly vulnerable to financial exploitation, physical or emotional abuse, and neglect both at home and in care facilities. Reports of elder abuse are handled by state Adult Protective Services (APS), which investigate allegations, provide protective services, and refer cases to law enforcement when appropriate. Not al
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 3.C: Assist Families in Planning for Future Care Needs
The vast majority of people do not think about or plan for the LTSS they will need until they experience a disability or AD/ADRD. Many Americans incorrectly believe that Medicare will cover most of the costs of these supportive long-term care services like nursing home care and HCBS. Unfortunately, by the time care is needed, it is difficult to ge
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 3.B: Enable Family Caregivers to Continue to Provide Care while Maintaining Their Own Health and Well-Being
Even though unpaid caregivers usually prefer to provide care to their loved ones in their home or other community settings, sometimes the round-the-clock care needs of the person with AD/ADRD may necessitate nursing home placement. While they are providing care, supports for families and caregivers can help lessen feelings of depression and stress
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 3.A: Ensure Receipt of Culturally-Sensitive Education, Training, and Support Materials
Caregivers report that they feel unprepared for some of the challenges of caring for a person with AD/ADRD -- for example, caring for a loved one with sleep disturbances, behavioral changes, in need of physical assistance, or advanced dementia can be an enormous challenge. Giving caregivers the information and training that they need in a cultural
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 2.H: Improve Care for Populations Disproportionally Affected by Alzheimer's Disease and Related Dementias, and for Populations Facing Care Challenges
Some populations are unequally burdened by AD/ADRD, including racial and ethnic minorities and people with IDD. Racial and ethnic minorities are at greater risk for developing AD/ADRD and face barriers to obtaining a diagnosis and services after onset. People with Down syndrome almost always develop AD/ADRD as they age. In addition, because AD/ADR
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 2.G: Advance Coordinated and Integrated Health and Long-Term Services and Supports for People Living with Alzheimer's Disease and Related Dementias
Coordinating the care received by people with AD/ADRD in different settings by different providers can help reduce duplication and errors and improve outcomes. Despite a general consensus that care coordination is important, more research is needed to determine how best to provide such care in a high-quality and cost-efficient manner. The actions
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 2.F: Ensure that People with Alzheimer's Disease and Related Dementias Experience Safe and Effective Transitions between Care Settings and Systems
People with AD/ADRD have higher rates of emergency room visits and hospitalizations, two settings where they are vulnerable to stress, delirium, and unnecessary complications. A transition between providers and care settings is a complex time of care delivery for all people, but especially for frail elders or people with AD/ADRD who often have mul
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 2.E: Explore the Effectiveness of New Models of Care for People with Alzheimer's Disease and Related Dementias
Work is underway at a number of agencies to identify models that provide more effective and efficient care for people with AD/ADRD. Models that improve health and quality of life for people eligible for both Medicaid and Medicare (dual eligibles) are also of great importance to the AD/ADRD population, as approximately 19% of the dual eligible popu
National Plan to Address Alzheimer's Disease: 2019 Update. Strategy 2.D: Identify High-Quality Dementia Care Guidelines and Measures Across Care Settings
Guidelines for delivery of high-quality care and measures of quality care are needed to ensure that people with AD/ADRD receive high-quality, culturally-competent care in the many different settings where they receive services. These guidelines and measures should be tailored to the stages of the disease, address the physical, cognitive, emotional
