Content by Keyword: Informal Caregivers

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Report to Congress: Aging Services Technology

Report to Congress: Aging Services Technology Study

Older adults, people with disabilities, and those who provide services and supports to these individuals utilize a variety of aging services technologies (ASTs) to achieve and maintain maximum physical function, to live as independently as possible, to study and learn, and to participate in and contribute to society. The potential benefits offered
From: Report to Congress: Aging Services Technology Study
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Caregiver Burden and Institutionalization,

Caregiver Burden and Institutionalization, Hospital Use, and Stability of Care: Final Report

This study assessed a variety of longitudinal models to examine the effect of different types of caregiver burden on outcomes important to policymakers: nursing home admissions, hospital use, and stability of the family and formal care networks. Analyses were carried out on the 1982 National Long-Term Care Survey (NLTCS) and the 1984 NLTCS Longitu
From: Caregiver Burden and Institutionalization, Hospital Use, and Stability of Care: Final Report
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Does High Caregiver Stress Lead to Nursing Home

Does High Caregiver Stress Lead to Nursing Home Entry?

Understanding the role of informal caregiving in preventing or delaying nursing home entry among chronically disabled elders is increasingly important for policy. Continued aging of the population and other demographic shifts are likely to increase the caregiving burden for a smaller number of caregivers per elder in the coming decades.
From: Does High Caregiver Stress Lead to Nursing Home Entry?
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Factors Associated with Ending Caregiving Among

Factors Associated with Ending Caregiving Among Informal Caregivers to the Functionally and Cognitively Impaired Elderly Population

This study investigated factors associated with the decisions of principal informal caregivers of the activity of daily living (ADL) dependent elderly living in the community to end caregiving. Data were from the 1982 National Long-Term Care Survey (NLTCS), the 1982 Informal Caregiver Survey and 1984 NLTCS Longitudinal Follow-up.
From: Factors Associated with Ending Caregiving Among Informal Caregivers to the Functionally and Cognitively Impaired Elderly Population
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Informal Caregiver "Burnout":

Informal Caregiver "Burnout": Predictors and Prevention

Three studies sponsored by HHS confirm previous research linking health impairment levels, advanced age, and various indicators of caregivers' physical burden and emotional stress with individual caregivers' decisions to stop giving care and increased likelihood of nursing home placement. In contrast, the lack of association between caregivers' em
From: Informal Caregiver "Burnout": Predictors and Prevention
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Eldercare: The Impact of Family Caregivers'

Eldercare: The Impact of Family Caregivers' Employment on Formal and Informal Helper Hours

The 1989 National Long Term Care Survey is the first nationally representative survey to collect data on weekly hours of assistance received by ADL and/or IADL disabled elders living in the community by individual caregivers, both formal and informal. Thus, it is now possible to investigate the effects of primary caregivers' employment status on t
From: Eldercare: The Impact of Family Caregivers' Employment on Formal and Informal Helper Hours
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A Descriptive Analysis of Patterns of Informal

A Descriptive Analysis of Patterns of Informal and Formal Caregiving among Privately Insured and Non-Privately Insured Disabled Elders Living in the Community

This research was designed to answer current questions surrounding long-term care insurance. It was also designed to provide basic sociodemographic and service utilization profiles for disabled private long-term care insurance policyholders, and to compare such data and findings to the experiences of non-insured disabled community-dwelling elders.
From: A Descriptive Analysis of Patterns of Informal and Formal Caregiving among Privately Insured and Non-Privately Insured Disabled Elders Living in the Community
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Home and Community-Based Care: The U.S. Example

Home and Community-Based Care: The U.S. Example

In 1985 there were about 5.5 million functionally disabled elderly persons (65+) in the United States (U.S.) living in the community and an additional 1.3 million in nursing homes. By 2020, these figures are expected to almost double to 10.1 million and 2.5 million respectively. The long-term care (LTC) system in the U.S. is large and complex.
From: Home and Community-Based Care: The U.S. Example
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Easing the Burden of Caregiving: The Effect of

Easing the Burden of Caregiving: The Effect of Consumer Direction on Primary Informal Caregivers in Arkansas

Cash and Counseling, an innovative model of consumer direction, has been implemented as a three-state demonstration designed to weigh the advantages and disadvantages of allowing Medicaid beneficiaries to assume more responsibility for the supportive services they may need.
From: Easing the Burden of Caregiving: The Effect of Consumer Direction on Primary Informal Caregivers in Arkansas
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Informal Caregiving: Compassion in Action

Informal Caregiving: Compassion in Action

This booklet, developed by the U.S. Department of Health and Human Services (HHS) is about informal caregiving — unpaid care given voluntarily to ill or disabled persons by their families and friends. Informal caregiving by families and friends is the backbone of America's long-term care system. According to recent surveys sponsored by HHS, 52 m
From: Informal Caregiving: Compassion in Action
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A Compendium of Intervention and Descriptive

A Compendium of Intervention and Descriptive Studies Designed to Promote the Health of Caregivers for Older Adults

An important component of the ASPE Health (Promotion and Aging Project is the development of such an inventory of health promotion, disease prevention, and health education activities targeted at informal caregivers for HHS. The specific focus of this report is to highlight some state and local initiatives that have developed promising programs to
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Methods

Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving. Methods

For all estimates, we use the analytic weights that take into account differential probabilities of selection and non-response at the NHATS sample person and caregiver level (Kasper et al. 2013a) and statistical software that adjusts standard errors for survey design.
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Analysis Measures

Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving. Analysis Measures

Measures used in this report include both care-recipient characteristics drawn from the NHATS and caregiver characteristics and experience drawn from the NSOC. Care-Recipient Measures The care-recipient measures used are a hierarchical assistance level measure developed and further described in Freedman & Spillman (2013), a dementia me
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Sample

Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving. Sample

The NSOC sample was drawn from 4935 eligible informal caregivers to 2423 eligible NHATS respondents. (For a small number of NHATS respondents identifying more than five eligible caregivers, five caregivers were selected randomly.) Eligible NHATS respondents refused to provide contact information for 1573 eligible caregivers, and of the remaining 3
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Report to Congress: Aging Services Technology

Report to Congress: Aging Services Technology Study

Report to Congress: Aging Services Technology Study June 2012
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ANALYSES OF THE 2011 NATIONAL HEALTH AND AGING

Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving. Analyses of the 2011 National Health and Aging Trends Study and National Study on Caregiving

Reports Available Disability and Care Needs of Older Americans by Dementia Status: An Analysis of the 2011 National Health and Aging Trends Study
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REFERENCES

Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving. References

Beach S, R Schulz, J Yee, S Jackson. 2000. "Negative and positive health effects of caring for a disabled spouse: Longitudinal findings from the Caregiver Health Effects Study."  Psychol Aging  15: 259-71.
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SUMMARY AND IMPLICATIONS

Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving. Summary and Implications

This report profiles the role and experiences of informal caregivers for the older population, using a new resource that provides a more complete picture of informal caregiving than possible with surveys that rely solely on either care-recipient-reported or caregiver-reported information. NSOC, a supplement to the 2011 NHATS, is unique in intervie
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CAREGIVING, HEALTH, PARTICIPATION AND WELL-BEING

Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving. Caregiving, Health, Participation and Well-being

Interest in informal caregivers often focuses more on their contributions to care-recipients and society than on the well-being of caregivers themselves. This final section considers how subjective well-being and perceived negative aspects of caregiving relate to intensity, as measured by the number of hours of care provided, to caregiver health s
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BALANCE OF POSITIVE AND NEGATIVE ASPECTS OF

Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving. Balance of Positive and Negative Aspects of Caregiving

Table 5 provides an overview of individual items measuring caregiver perceptions of positive and negative aspects of caregiving, as well as difficulties arising from caregiving, for all caregivers (top panel) and for caregivers helping with self-care or mobility (lower panel). Scales constructed by summing individual items also are shown for posit

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Form Approved OMB# 0990-0379 Exp. Date 9/30/2020