Content by Keyword: Genetics

Personalized Health Care Expert Panel Meeting:

Personalized Health Care Expert Panel Meeting: Summary Report

Contents Demonstrating Clinical Validity and Utility Demonstrating Value Reducing Health Disparities Educating and Engaging Providers and Consumers Using Databases to Build Evidence, Inform Decisions  
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Web-based Information Exchange and Information

Web-based Information Exchange and Information Services Concept to Support the Exchange of Newborn Screening Information

State newborn screening (NBS) programs for heritable diseases and conditions provide vital health information that enables prevention and early detection of rare genetic conditions. Information management of the screening laboratory test orders and the reporting of laboratory is substantial challenge based on a variety of factors. Advances in he
From: Web-based Information Exchange and Information Services Concept to Support the Exchange of Newborn Screening Information
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Developing a Framework to Guide Genomic Data

Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples: A Colloquium

The O'Neill Institute for National and Global Health Law invited twelve thought leaders with extensive experience in the conduct of biomedical research among indigenous peoples and developing countries to a colloquium at Georgetown University on January 7-8, 2009. The colloquium addressed a basic question: as genomic science develops across the w
From: Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples: A Colloquium
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Personalized Health Care Expert Panel Meeting:

Personalized Health Care Expert Panel Meeting: Summary Report

The Office of the Assistant Secretary for Planning and Evaluation (ASPE) commissioned the Lewin Group to convene an Expert Panel on Personalized Health Care (PHC) for a one-day meeting to provide input to the Office of the Secretary, HHS, toward realizing the integration of PHC into clinical and public health practice. The Expert Panel identified
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Developing a Framework to Guide Genomic Data

Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples: A Colloquium

  Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples: A Colloquium January 7-8, 2009 Georgetown University, Washington, DC Hosted by ONeill Institute of National and Global Health Law Georgetown University and Personalized Health Care Initiative U.S. Department of He
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A description of workflow components

A description of workflow components within newborn screening process improved by implementation of standards-based health information exchange of newborn screening data. The table contains stakeholder perspectives alongs

From: Web-based Information Exchange and Information Services Concept to Support the Exchange of Newborn Screening Information
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Figure 1: Newborn Screening Information Exchange

Web-based Information Exchange and Information Services Concept to Support the Exchange of Newborn Screening Information

  Web-based Information Exchange and Information Services Concept to Support the Exchange of Newborn Screening Information Office of the Assistant Secretary for Planning and Evaluation U.S. Department of Health and Human Services December 1, 2009 The views expressed in this report are solely those of the authors, and do not necessar
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