Understanding Medicaid Home and Community Services: A Primer, 2010 Edition. Provisions Specific to Children with Disabilities


Two eligibility provisions--one mandatory and the other at states’ option--were enacted specifically to serve children with disabilities. The mandatory provision--sometimes called Zebley Kids or 4913 Children--relates to children rendered no longer eligible by a 1996 change in the SSI definition of disability for children. The Zebley designation comes from a court case, contesting the 1996 change.24 The optional provision--sometimes called the Katie Beckett or Tax Equity and Fiscal Responsibility Act (TEFRA) option--allows for eligibility for a child with severe disabilities living at home, regardless of the financial circumstances of the child’s parents.

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