Understanding Disparities in Persons with Multiple Chronic Conditions: Research Approaches and Datasets. Appendices

09/30/2013

The appendices listed below are attached.

Appendix A – HHS Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status (2011)

The HHS Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status are the current standards for collecting disparities data in federal surveys. These standards were developed in response to an Affordable Care Act mandate to collect specific socio-demographic and health information.

Appendix B – Literature Search Methodology

The literature search methodology outlines the MEDLINE search terms that were used to conduct the literature review related to multiple chronic conditions, disparities, and analytic techniques for chronic disease and disparities research. The search strategy outlined in this Appendix was used to identify MCC research studies and methods papers on multiple chronic conditions research and disparities.

Appendix C - Key Informants

The Key Informant List provides a list of the individually interviewed experts and their affiliations. Key informants were identified by the ASPE Project Officers and the Technical Advisory Group (TAG). Key informant interviews were conducted to provide the Project Team with in-depth expertise on topics covered in the White Paper. Findings from the Key Informant Interviews have been incorporated throughout the White Paper.

Appendix D – Technical Advisory Group Members

Technical Advisory Group (TAG) List provides of experts consulted about the overall conduct of the studies and their affiliations. TAG members participated in the initial in-person December 2012 TEP meeting and provided feedback on the original literature review to determine additional databases, grouping systems, and methods for studying MCC in disparities populations. They also participated in a second meeting by teleconference in May 2013 to review and provide feedback and revisions for the first draft of the White Paper, “Understanding the High Prevalence of Low-Prevalence Chronic Disease Combinations: Databases and Methods for Research,” and a third meeting by teleconference in August 2013 to review and provide feedback and revisions for the first draft of the White Paper, “Understanding Disparities in Persons with Multiple Chronic Conditions: Research Approaches and Datasets.”

Appendix E – Review of Datasets and Data Systems: Summary Tables

The Data Systems Datasets Review provides an overview of sixteen potential datasets that can be used for multiple chronic conditions and disparities research, including a description of each datasystem, the diagnosis information measured in each data system, the cost, utilization, and clinical information captured in each datasystem, and the strengths, limitations, and feasibility of each datasystem for MCC research.
 

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