Study methods were similar for both papers (Exhibit 2). A literature review was conducted using PubMed (Appendix 1). Key informants (eight for White Paper #1, and nine for White Paper #2) were identified through the literature, the project officers and the technical advisory group and were interviewed by telephone (Appendixes 2 and 3). Input from key informants was integrated throughout each white paper. A review of datasets that could be used to study the population of people with MCC led to descriptions of the datasets and the potential each offered for studying MCC among specific groups. Technical Advisory Group feedback was integrated into each paper.
Exhibit 2. Study Methods