Privacy and Health Research. The Diversity of Health Data

05/01/1997

Health data of concern for ethics and policy, and for this Report, include not only primary medical and hospital records, but also pharmacy and laboratory data; vital records; administrative and financial data; data from surveys, clinical trials, adverse-drug-event reports, and outcomes and health-economics studies; registries organized by diseases, by treatment regimens, by demographics, or by other categories; and many other compilations. The data may be personally identified, or key-coded (pseudonymized), or fully anonymized.