Privacy and Health Research. The Diversity of Health Data


Health data of concern for ethics and policy, and for this Report, include not only primary medical and hospital records, but also pharmacy and laboratory data; vital records; administrative and financial data; data from surveys, clinical trials, adverse-drug-event reports, and outcomes and health-economics studies; registries organized by diseases, by treatment regimens, by demographics, or by other categories; and many other compilations. The data may be personally identified, or key-coded (pseudonymized), or fully anonymized.