Personalized Health Care Initiative Workshop: "Understanding the Needs of Consumers in the Use of Genome-based Health Information Services". Presentation by Ryan Phelan

07/07/2008

Presentation by Ryan Phelan
Founder and CEO
DNA Director

July 7th 2008
12:30pm-5:30PM
Ronald Reagan International Trade Center
Washington DC

Disclaimer: The findings and conclusions of this presentation are those of the authors and do not necessarily represent the views of ASPE or HHS.

 

circle graphic

circle with text questions on it:"Can I trust this test?",(on top of circle, followed by these sentences in a counterclockwise direction); "Will my results be kept private?" ,(top right ); "will this test give me peace of mind?",(middle right); "How accurate is it?" ,(lower right);"What do doctors say about this test"?,(lower left);"Is this test covered by insurance?",(middle left);"Will this test help me make better health choices",(upper left).

 

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APO Gene for Alzheimers Disease(bar chart)- Experts Rating--Scientific Validity(95); Predictive Value(25); Clinical Utility(20); Personal Utility(75)

 

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Different Tests Require Different Support Services
Type of Genetic Tests Examples In-Person Evaluation Physician Oversight GC Phone Consult Web Support
Genome-wide testing SNP array note1 note 1 note1 note1
Genetic Screening:carrier, risk assessment, drug response Cystic Fibrosis Carrier   marked note1 marked
Predictive Testing for serious health conditions BRCA   marked marked marked
Diagnostic Testing for Genetic Diseases Huntingtons Disease marked marked    

Condition/ Situation Dependent

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