Personalized Health Care Initiative Workshop: "Understanding the Needs of Consumers in the Use of Genome-based Health Information Services". Introduction

07/07/2008

DR. DOWNING: -- behalf of Secretary Leavitt’s Personalized Health Care Initiative and the Office of the Assistant Secretary for Planning and Evaluation, we welcome you here to the Ronald Reagan Building and the International Trade Center. And thank you for joining us for this afternoon’s workshop on consumer genomic information services. Now, before we start the conversations for this afternoon, we want to encourage you to engage in this conversation, and we ask (inaudible) that your questions today, you’ll use the microphone; it’ll be circulating at the various time points during the afternoon. This workshop is being broadcast via the web, and there are a good number of those that are joining us remotely and will be submitting questions, as well, so those will be picked up. If you’re listening in now, if you visit the registration website, you’ll be able to access the email address necessary to submit your questions. There’ll be several periods during the meeting today in which emailed questions will be entertained.

I’d like to turn now to Mr. Richard Campanelli from the Office of the Secretary and the Secretary’s Liaison to the Secretary Advisory Committee and a number of HHS Agencies. Mr. Campanelli was here today to offer the welcome from the Secretary this afternoon. He is the counselor for the Secretary in science and public health, and this is where services that policy advisor in representing CDC, NIH, FDA, and the Agency for Healthcare Research and Quality. And prior to his service as counselor, he served for nearly five years as a director for Office of Civil Rights where he oversaw the implementation of the HIPPA Privacy Rule, and now works as our advisor in the role of Liaison to the Secretary on the Personalized Health Care Initiative. Rick has an anniversary coming up this month that I just recall reading last night, and so we’re very pleased that he’s had such a leading role in helping us facilitate many of the aspects of the Personalized Health Care Initiative.

He has been a very important supporter and advocate for personalized health care and joins us today in setting the stage for this afternoon’s workshop. So, Rick, we’ll hand it off to you at this point.

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