- Consumers want to know about their disease risk, particularly if they could take steps to lower their risk.
- While interest was lower for learning risk for diseases for which there was no action, the majority were still interested.
- Interest was lowest in non-health related information.
|Which of the following types of personal genetic information would you be interested in?: Information that tells you.....|
|Your risk for a specific disease (with or without your doctor knowing)||89%|
|Your risk for a disease that you could do something about-- that is, by knowing that you are at risk you could alter the onset of the disease by using a medical intervention or making lifestyle changes||100%|
|Your risk for a disease you could not do something about---that is, even knowing your risk you could not do anything to change your risk level, but it might influence your life decisions (such as having children or retirement planning)||67%|
|Your ancient ancestors (which portion of your DNA that came from a particular region of the world)||44%|
|Your physical traits (such as eye and hair color, type of earwax, height, caffeine metabollism, baldness, or odor detection)||67%|
- Consumers were most interested in personal testing for cancer and heart disease.
- The general sentiment was that they would want testing for more "serious" diseases.
- In contrast, few saw need for testing for obesity because it was "about personal control" and "I can just look at myself to know"
- None of the participants in this study had undergone genetic testing for any reason, though several knew children who had been tested.
|Which of the following health conditions would you consider getting genetic testing for (or have been tested for) in order to determine if you are at increased risk?|
|A mental health condition (e.g. depresssion)||22%|
Genetic Testing & Family
- Consumers say that they would want to share genetic testing information with family members if those individuals might be at risk
- Likewise, they would want family members to tell them if they discovered an above-average risk.
|Mean, with scale: 1 (Strongly Disagree) to 6 (Strongly Agree)|
|If I took a genetic test and discovered I had a higher-than-normal genetic risk for a disease, I would tell my family because they might have the same risk.||5.3|
|If a family member discovered that they had a higher-than normal genetic risk, I would want them to tell me.||5.7|
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