Personalized Health Care Initiative Workshop: "Understanding the Needs of Consumers in the Use of Genome-based Health Information Services". Concerns about Genetic Testing

07/07/2008

Concerns about Genetic Testing
How concerned are you about each of the following aspects of genetic testing? Mean on scale: 1 (Not at all concerned) to 6 (Extremely concerned)
Having standards and quality control measures available when interpreting generic test results 5.3
The ability for people to understand the results of their genetic tests 5.1
The potential for discrimination for those who have higher-than-average risk for particular health conditions (e.g., by insurers, employers, courts, schools, adoption agencies, and the military, among others) 4.9
The ability for healthcare providers (e.g., doctors, nurses, etc.) to understand the results of genetic tests 4.9
Fairness in access to genetic services (e.g., if cost is high then services may not be affordable to all) 4.9
The usefulness of genetic information (e.g., the ability to use the information to improve medical care) 4.8
The impact it would have on a person who learns they have a higher-than-average risk for a health condition that cannot be medically treated 4.8
Privacy and confidentiality issues related to finding out my personal genetic information 4.7
The impact it would have on how a person feels about him/herself (by knowing their risk levels) 4.2
The impact it would have on how others in society may fell about a person (by knowing their risk levels) 4.1
Effects of genetic testing on people's reporductive choices (i.e., they may choose not to have children if thay are predisposed to certain health conditions) 4.0

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