The study documented program success in efforts to improve access to services for individuals living with sickle cell disease and carriers of the sickle cell gene mutation by improving and expanding patient and provider education and improving/expanding the continuity and coordination of service delivery.
The program developed and implemented promising models. The program integrated primary and specialty care with community-based support services in a medical home designed to meet the unique needs of individuals living with sickle cell disease or carriers and their families. The program achieved positive trends and outcome in Hydroxyurea therapy, written care plans, and assistance with referrals and communication with providers.
Report Title: Demonstration Program for the Development and Establishment of Systematic Mechanisms for the Prevention and Treatment of Sickle Cell Disease: Identifying Promising Practices Fiscal Year(s) 2006-2010
Agency Sponsor: HRSA, Health Resources and Services Administration
Federal Contact: Edward Ivy, 301-443-9775
Performer: RTI International
Record ID: 9854 (December 20, 2011)