Understanding how to better care for individuals with multiple chronic conditions (MCC) is a priority for HHS due to the growing cohort of people with MCC and the associated health care cost and quality of care implications. The project conducted key interviews with experts and researchers in this area and formed a Technical Advisory Group to identify methods and data systems to study the target population and to consider what steps might be taken in the future to improve the knowledgebase.
The study found that most MCC research has been conducted on single diseases or chronic conditions that are highly prevalent and well-known, and not on less prevalent conditions or highly complex patients. MCC prevalence is strongly correlated with older age, greater cost, poorer quality of life, greater health care utilization, and higher mortality. Improved research requires: inclusion of individuals with MCC into research studies; consistency and standardization across data systems; and, utilization of electronic health records and registries.
Report Title: Research Addressing the HHS Strategic Framework on Multiple Chronic Conditions
Agency Sponsor: OASPE, Office of the Assistant Secretary for Planning and Evaluation
Federal Contact: James Sorace, 202-205-8678
Performer: Abt Associates
Record ID: 10227 (September 30, 2013)