The Childhood Cancer Survivor Study (CCSS) is a multi-institutional collaborative study, with 26 participating clinical centers, that serves as a national resource for investigating the long-term morbidity and mortality associated with cancer treatment regimens that have enabled dramatic increases in the survival of children treated for cancer during the past 30 years.
Most outcomes associated with CCSS were clearly defined and measurable; no extraordinary barriers to additional data collection were anticipated; and existing databases could be used as complementary data sources. An outcome evaluation of the CCSS was thus feasible; however, such an evaluation was not warranted. As the CCSS is a research study, peer review was determined to be the more appropriate mechanism for assessing its merit. Furthermore, evaluators found that a retrospective outcome evaluation of the CCSS would not help NCI address critical strategic issues with respect to the future of its pediatric cancer survivorship research portfolio. Lastly, evaluators identified several process-related issues during the study that might warrant attention in the future.
Report Title: Feasibility Study for Evaluation of the Childhood Cancer Survivor Study (CCSS)
Agency Sponsor: NIH, National Institutes of Health
Federal Contact: Rosanna Ng, 301-496-5367
Performer: Science and Technology Policy Institute (STPI)
Record ID: 9379 (Report issued March 31, 2010)