Performance Improvement 2001. Missed Opportunities for Pneumocystis Carinii Pneumonia Prevention: Failure to Adhere to Usphs PCP Prophylaxis Guidelines and Epidemiology of Pcm Among Puerto Ricans with HIV Infection


This study explores individual and social factors associated with patients' decision to initiate and adhere to HIV treatment regimens and Prophylaxis for Pneumocystis carinii (PCP). Data was collected from HIV patients from three Community-Based Organizations (CBO's) and Women of HIV Clinic at San Juan, Puerto Rico. A Focus Group interview was utilized to collect the informations. Questions included information about knowledge, experiences, opinions and recommendations about HIV medical treatments and prevention of PCP. The mean age of participants was 36.9 with a diagnosis ranging from 1985 to 1999. The majority of participant (57%) reported receiving public assistance as a main source of income and most had completed high school and reported "some years of college"(66%). There have been several medical treatments developed to improve the quality of life for people living with HIV. Participants reported they had full knowledge of the latest modalities of treatments and most were excited about the availability of antiretroviral therapy but not all were currently utilizing the antiretroviral regiments. One important concern to participants is the side effects such as severe gastritis, kidney problems, diahrrea, nausea, and anemia. The principal reasons identified by the participants for taking treatments as prescribed were: accessibility, medicine free of charge, positive medication results, confidentiality, family support, co-worker support and after work services offered by clinic's staff, and participation in CBO's programs.

AGENCY SPONSOR: National Center for Infectious Diseases

FEDERAL CONTACT: Vance Dietz, 770-488-7771

PIC ID: 6704

PERFORMER: University of Puerto Rico Medical Services, San Juan, Puerto Rico