Parent Perspectives on Care Received at Patient-Centered Medical Homes for Their Children with Special Health Care Needs. B. Data Collection


Mathematica research team members conducted parent discussions via telephone. For both samples, the telephone call included an overview of the study, a description of the specific purpose of the call, the informed consent process, the discussion itself, and an explanation of the distribution of stipends. We used semi-structured discussion guides that included open-ended questions to direct the conversations. Discussion protocols for both groups of parents were reviewed and approved by project officers at ASPE. During the conversations, the research team took detailed notes on all responses and used probes to capture and clarify views and perspectives as needed. Conversations were also recorded so that notes could be refined and quotes verified. These recordings were subsequently erased. Discussions lasted 20-40 minutes.

View full report


"ChildDisV2.pdf" (pdf, 311.05Kb)

Note: Documents in PDF format require the Adobe Acrobat Reader®. If you experience problems with PDF documents, please download the latest version of the Reader®