Literature Review and Environmental Scan: Evaluation of Personal Health Records Pilots for Fee-for-Service Medicare Enrollees. Appendix A. Key Research Questions

08/01/2009

Key Research Questions
Key:
X=Primary
O=Supplementary
Literature Review and Environmental Scan Expert Panel Pre Focus Group Activities Focus Groups Observational Studies (Optional Task 7)
Published Literature Unpublished and Online Materials Key Information Discussions Expert Panel Kickoff meeting Expert Panel Teleconferences Structured Interviews: Plans Structured Interviews: Vendors Analysis of Claims and Usage data Providers Plans Beneficiaries Vendors Beneficiaries and Related Stakeholders
ANALYSIS OF CURRENT STATE OF KNOWLEDGE
What is currently known regarding PHR usability? X X O O   O              
What is currently known regarding PHR utility? X X O O   O              
What is known regarding best practices on PHR development? X X O O   O              
What are known issues/perceptions related to PHR use and adoption? X X O O                  
What is the impact of PHR use and adoption? X X O O O                
EVALUATION FINDINGS
Usability
How effectively can stakeholders use the PHR to obtain the information of interest to them?     O O O   X X O X X X X
What appearance, design, and visual treatment options would increase usability (including for Section 508 compliance)?     O O O   O X O X X X X
What screen elements are confusing or difficult to use?     O O O   O X O X X X X
Utility                          
What key information should the PHR contain?           O X O X X X O X
What are the key features the PHR should include?           O X O X X X O X
How accessible is the information in the PHR?           O X O X X X O X
What features contribute to user frustration?           O X O X X X O X
Best Practices for Development                          
What is optimal for determining requirements–are stakeholder input, expert review, or established guidelines utilized? O O O O O O O X O   O X O
What is the best process for design, development, and implementation? O O O O O O O X O   O X O
What usability testing and evaluative methods should be employed to gauge system? O O O O O   O X O   O X O
What is optimal for determining requirements–are stakeholder input, expert review, or established guidelines utilized?           O X O X X X O O
What are the key standards that need to be adhered to when developing PHRs? X X O X X   X         O  
What are the key EHR/PHR interoperability requirements? X X O X X   X O   X   X  
Issues / Concerns                          
How accurate/reliable is the system?     O O O O O X O O X X X
How secure/private is the system, and are these issues understood by users?       O O O O X O O X X X
What implications does PHR use have on providers?       O O O O X O O X X X
Impacts                          
How do PHRs affect patient-provider interactions? O O O X     O X O O X X X
How do PHRs affect patient self-care and self-management? O O O       O X O O X X X

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