Literature Review and Environmental Scan: Evaluation of Personal Health Records Pilots for Fee-for-Service Medicare Enrollees. Appendix C. Bibliography

08/01/2009

  • The Markle Foundation, http://www.markle.org.
  • www.thefreedictionary.com/utility.
  • AHIMA, http://www.myphr.com/resources/index.asp.
  • Merriam Webster Online Dictionary, http://www.merriam-webster.com/dictionary.
  • American Health Informatics Management Association, http://www.ahima.org.
  • AHIMA, http://library.ahima.org/xpedio/groups/public/documents/ahima/bok1_027539.hcsp?dDocName=bok1_027539.
  • K. Ackerman. "Early Employer Efforts to Shape Future Health It Initiatives." I Health Beat (2007), www.ihealthbeat.org.
  • "Aetna: Nearly Two-Thirds of Americans Are Not Familiar with Personal Health Records, a Resource Available to Millions of Consumers." Biotech Week, August 1 2007.
  • R. Agarwal, and C. M. Angst. "Technology-Enabled Transformations in Us Health Care: Early Findings on Personal Health Records and Individual Use." In Human-Computer Interaction and Management Information Systems: Applications, edited by Dennis Galletta and Ping Zhang. Armonk, NY, 2006.
  • AHIMA e-HIM Personal Health Record Work Group. "The Role of the Personal Health Record in the EHR." Journal of AHIMA 76, no. 7 (2005): 64A-D.
  • B. Albright. "Prepping for PHRs. The Growing Trend of Consumer Empowerment Includes the Speedy Rise of Personal Health Records." Healthcare Informatics 2007, 44-46.
  • "The American National Standards Process." The American National Standards Institute, http://www.ansi.org. .
  • "Americans Support Online Personal Health Records; Patient Privacy and Control Are Crucial to Acceptance." Markle Foundation, http://www.markle.org/resources/press_center/press_releases/2005/press_release_10112005.php.
  • C.M. Angst, Agarwal, R., Downing, J. "An Empirical Examination of the Importance of Defining the PHR for Research and for Practice." Robert H. Smith School of Business, Working Paper No. RHS-06-011.
  • "Annual Report of the Boards of Trustees of the Federal Hospital Insurance and Federal Supplementary Medical Insurance Trust Funds." edited by Department of Health and Human Services. Washington, DC: Boards of Trustees of the Federal Hospital Insurance and Federal Supplementary Medical Insurance Trust Funds, 2008.
  • "Astm E2211-02 Standard Specification for Relationship between a Person (Consumer) and a Supplier of an Electronic Personal (Consumer) Health Record." ASTM, http://www.astm.org/Standards/E2211.htm.
  • L. Nancy Atkinson, A. Holly Massett, Christy Mylks, Bethany Hanna, Jo Mary Deering, and W. Bradford Hesse. "User-Centered Research on Breast Cancer Patient Needs and Preferences of an Internet-Based Clinical Trial Matching System." J Med Internet Res 9, no. 2 (2007): e13.
  • Attitudes of Americans Regarding Personal Health Records and Nationwide Electronic Health Information Exchange. Edited by Public Opinion Strategies: Markle Foundation, 2005.
  • "Attitudes of Americans Regarding Personal Health Records and Nationwide Electronic Health Information Exchange: Key Findings from Two Surveys of Americans." Markle Foundation, http://www.phrconference.org/assets/research_release_101105.pdf.
  • M. J. Ball, and J. Gold. "Banking on Health: Personal Records and Information Exchange." Journal of Healthcare Information Management 20, no. 2 (2006): 71-83.
  • F. Bazzoli. "Continuity of Care Standards Reach Milestone." Healthcare IT News, http://www.healthcareitnews.com.
  • R. Benoit. "PDF-H: The “Safe Deposit Box” for Personal Healthcare Data." Intel, http:// http://www.niphysiciansforconnectivity.org.
  • William Bernstein, Julie Murchinson, Melinda Dutton, Terry Keville, Robert Belfort, and Manatt Health Solutions. "Whose Data Is It Anyway? Expanding Consumer Control over Personal Health Information." In Issue Brief, edited by California Health Care Foundation: California Health Care Foundation, 2008.
  • "Best Practices for Employers Offering Personal Health Records (PHRs)." Health Privacy Project and the California Health Care Foundation, 2007.
  • M.B. Bloche. "Consumer-Directed Health Care." New England Journal of Medicine 355, no. 7 (2006): 1756-59.
  • C. Bocchino. "AHIC Testimony." American Health Information Community, Consumer Empowerment Subgroup 2006.
  • John Boden. December 3 2007.
  • –––. December 3 2007.
  • E; Manning Boehm, H; McInnes, A; Melnikova, O. "PHRs: From Evolution to Revolution. A Health Plan Guide to Navigating the Personal Health Record Market." Forrester Research, 2007.
  • K.W. Boone. "Patient Controlled Health Information Infrastructure." GE Healthcare, http://www.pchri.org/2006/presentations/pchri2006_boone.pdf.
  • "Boston’s Caregroup Hospitals Pioneer the Web-Based Patient Portal." Canadian Healthcare Technology, . http://www.intersystems.com/cache/analysts/CHT_May2005.pdf.
  • Patricia Flatley Brennan. "Discussion." (2007).
  • Patricia Flatley Brennan, Stephen Downs, Gail Casper, and Daniel Kenron. "Project Healthdesign: Stimulating the Next Generation of Personal Health Records." AMIA Annual Symposium Proceedings (2007): 70-74.
  • B. Bright. "Benefits of Electronic Health Records Seen as Outweighing Privacy Risks." Wall Street Journal, November 28 2007.
  • C. Broder. "Insurers Plan Interoperable PHRs." Healthcare IT News, http://www.healthcareitnews.com.
  • Cynthia Burghard. "Truth and Fiction of Personal Health Management Tools." Gartner Research, 2006.
  • J. Burrington-Brown, Friedman, B. "Educating the Public About Personal Health Records." Health Care Policy Report Health Care Policy Report Journal of AHIMA 77 (2005): 94-95.
  • S.O. Carsten, Nienke, P.D., Smith, C.A. "Mother Knows Best: Medical Record Management for Patients with Spina Bifida During the Transition from Pediatric to Adult Care." AMIA 2005 Annual Symposium Proceedings (2005): 580-84.
  • A. Civan, M. M. Skeels, A. Stolyar, and W. Pratt. "Personal Health Information Management: Consumers’ Perspectives." AMIA Annu Symp Proc 156 (2006): 60.
  • J. Conn. "Ccd Standard up for a Vote." Modern Healthcare, http://www.modernhealthcare.com.
  • –––. "Standards Rivals’ Collaboration Could Have Major Impact." EMR Advice, http://www.emradvice.wordpress.com.
  • "Connecting Americans to Their Health Care: A Common Framework for Networked Personal Health Information." In The Connecting for Health Common Framework: Markle Foundation, 2006.
  • "Connecting for Health." Markle Foundation, Personal Health Working Group, Final Report, 2003.
  • "Connecting for Health." The Markle Foundation, http://www.connectingforhealth.org. .
  • "Defining Key Health Information Technology Terms." In Draft Report prepared for the 2nd public comment period, edited by The Records Workgroup: Office of the National Coordinator funded by the National Alliance for Health Information Technology, 2008.
  • Lorraine Doo. "Registration Summary & Medication History - a Personal Health Record (PHR) Pilot for Medicare Beneficiaries." December 5 2007.
  • Joyce DuBow. December 10 2007.
  • Charles B. Eaton, and David K. Ahern. Integration of EMR/PHR and Patient Portal with Decision Support, 2007. PowerPoint presentation.
  • "EHR-S Fm and EHR/Im Package." Health Level Seven, http://www.hl7.org/ehr/downloads/index_2007.asp.
  • J. Eichner, Dullabh, P. "Accessible Health Information Technology (Health It) for Populations with Limited Literacy: A Guide for Developers and Purchasers of Health It." In Agency for Healthcare and Research Quality. Rockville, MD, 2007.
  • S. Emmer, and J. Horvath. "American Geriatrics Society (Ags)." Geriatric medicine: a clinical imperative for an aging population. New York: AGS, Association of Directors of Geriatric Academic Programs (2004).
  • "Essential Similarities and Differences between the HL7 Cda/Crs and Astm Ccr." American Academy of Family Physician's Center for Health Information Technology, 2005.
  • S. Fenton. December 12 2007.
  • –––. "Quicken for Healthcare Briefing for Consumer Empowerment Workgroup." Department of Health and Human Services, 2006.
  • J. Ferranti, C. Musser, et al. . "The Clinical Document Architecture and the Continuity of Care Record: A Critical Analysis." Journal of the American Medical Informatics Association 13, no. 3 (2006): 245-52.
  • "Final Report." The Markle Foundation Personal Health Working Group, 2003.
  • Steve Findlay. November 26 2007.
  • Rashida Fleming. "Myhealthevet Discussion." (2007).
  • –––. December 12 2007.
  • S. Fox. "Older Americans and the Internet: ." Pew Internet and American Life Project, 2004.
  • L. Frieden. "Consumer-Directed Health Care: How Well Does It Work?" In National Council on Disability, 2004.
  • L. Gallagher. "Privacy and Security Issues for PHRs. ." Health Information and Management Systems Society, http://www.himss.org/content/files/PHRPrivSecCOO-LGV1.0.pdf.
  • Terhilda Garrido, Brian Raymond, Laura Jamieson, Louise Liang, and Andrew Wiesenthal. "Making the Business Case for Hospital Information Systems--a Kaiser Permanente Investment Decision." Journal of Health Care Finance 31, no. 2 (2004): 16-25.
  • Christopher J. Gearon. "Perspectives on the Future of Personal Health Records." California HealthCare Foundation, 2007.
  • Robert Gellman. "Personal Health Records: Why Many PHRs Threaten Privacy." The World Privacy Forum, 2008.
  • Janlori Goldman. "Personal Health Records: Employers Proceed with Caution ": California HealthCare Foundation, 2007.
  • Google. "Cleveland Clinic to Test Google Health." http://googlesystem.blogspot.com/2008/02/cleveland-clinic-to-pilot-google-health.html.
  • David H. Gustafson, Fiona M. McTavish, William Stengle, Denise Ballard, Robert Hawkins, Bret R. Shaw, Ellen Jones, Karen Julesberg, Helene McDowell, Wei Chih Chen, Kanittha Volrahongchai, and Gina Landucci. "Use and Impact of Ehealth System by Low-Income Women with Breast Cancer." Journal of Health Communication 10 (2005): 195-218.
  • R.A. Guth. "Microsoft’s Health Push Faces Obstacles." Wall Street Journal, October 5 2007, B3.
  • "Harris Interactive Survey." 2004.
  • "Health Literacy: A Prescription to End Confusion." In Institute of Medicine Committee on Health Literacy, edited by Panzer Nielsen-Bohlman L, AM, and Kindig DA, editors. Washington, DC: The National Academic Press, 2004.
  • "Healthcare Policy Report." edited by Bureau of National Affairs, 655, 2006.
  • B. W. Hesse, and B. Shneiderman. "Ehealth Research from the User’s Perspective." American Journal of Preventive Medicine 32, no. 5S (2007): 97-103.
  • Kevin Heubusch. "Piecing Together the PHR." Journal of AHIMA 78 (2007): 4.
  • "HIMSS Personal Health Records Definition and Position Statement." Healthcare Information Management and Systems Society (HIMSS), 2007.
  • "HITSP Consumer Access to Clinical Information Use Case Requirements, Design and Standards Selection." Consumer Empowerment Technical Committee, http://publicaa.ansi.org
  • "HITSP Document Reliable Interchange Transaction." Paper presented at the Submitted to the Healthcare Technology Standards Panel by the Population Health Technical Committee, December 7, 2007 2007.
  • "HL7 Finalizing Health It Standards." <http://www.fiercehealthit.com/story/hl7-finalizing-phr-standards/2007-11-12?utm_medium=rss&utm_source=rss> (accessed December 1, 2007).
  • R. J. Hodes, and D. A. B. Lindberg. "Making Your Web Site Senior Friendly." National Institute on Aging and the National Library of Medicine, 2002.
  • J. Nicholas Hoover. "Get Well Soon: Fed up with Rising Health Care Costs, Intel, Wal-Mart, and Others Think Giving Employees Digital Records Will Help." InformationWeek, December 4 2006.
  • T. K. Houston, D. Z. Sands, M. W. Jenckes, and D. E. Ford. "Experiences of Patients Who Were Early Adopters of Electronic Communication with Their Physician: Satisfaction, Benefits, and Concerns." Am J Manag Care 10, no. 9 (2004): 601-8.
  • "How Are ISO Standards Developed?" International Organization for Standardization, http://www.iso.org/iso/standards_development/processes_and_procedures/how_are_standards_developed.htm.
  • "Implementation Guide for the Personal Health Record Data Transfer between Health Plans." America's Health Insurance Plans and Blue Cross Blue Shield Association, 2006.
  • "Industry Leaders Join Forces to Advance Portable Healthcare Document Practices – New Best Practices Guide Addresses Exchange of Healthcare Information." AIIM, the ECM Association, http://www.aiim.org/article-pr.asp?ID=32097.
  • "Innovations in Health Care Delivery." Paper presented at the FTC Public Workshop, Washington, DC, April 24, 2008 2008.
  • "Issues in American Labor Statistics: Computer Ownership up Sharply in the 1990s." edited by Bureau of Labor Statistics U.S. Department of Labor, 1999.
  • D. et al Johnson. "A Framework and Approach for Assessing the Value of Personal Health Records (PHRs)." AMIA Annu Symp Proc (2007): 374-78.
  • Douglas Johnston, David Kaelber, Eric C Pan, Davis Bu, Sapna Shah, Julie M. Hook, and Blackford Middleton. "A Framework and Approach for Assessing the Value of Personal Health Records (PHRs)." AMIA Annual Symposium Proceedings (2007): 374-78.
  • Valeria Tate Jopeck, and Marion Ein Lewin. Developing an Information Infrastructure for the Medicare+Choice Program:Summary of a Workshop. Edited by Institute of Medicine Office of Health Policy Programs and Fellowships, Committee on Choice and Managed Care: Furthering the Knowledge Base to Ensure Public Accountability and Information for Informed Purchasing by and on Behalf of Medicare Beneficiaries. Washington, DC: National Academy Press, 1999.
  • M. Jordan. "Scenario Boards Can Be Used to Improve Validation of Early Product and Service Concepts: A Critical Skill in Today’s Environment." www.pdma.org. .
  • S. J. Katz, C. A. Moyer, D. T. Cox, and D. T. Stern. "Effect of a Triage-Based E-Mail System on Clinic Resource Use and Patient and Physician Satisfaction in Primary Care: A Randomized Controlled Trial." Journal of General Internal Medicine 18, no. 9 (2003): 736-44.
  • S. J. Katz, N. Nissan, and C. A. Moyer. "Crossing the Digital Divide: Evaluating Online Communication between Patients and Their Providers." Am J Manag Care 10, no. 9 (2004): 593-98.
  • Alla Keselman, Laura Slaughter, Catherine Arnott-Smith, Hyeoneui Kim, Guy Divita, Allen Browne, Christopher Tsai, and Qing Zeng-Treitler. "Towards Consumer-Friendly PHRs: Patients’ Experience with Reviewing Their Health Records." AMIA Annual Symposium Proceedings (2007): 399-403.
  • E. H. Kim, Mayani, A., Modi, S., Soh, C.B., Kim, Y. "Evaluation of Patient-Centered Electronic Health Record to Overcome the Digital Divide." In Engineering in Medicine and Biology 27th Annual Conference. Shanghai, China, 2005.
  • Eung-Hun Kim, Anna Stolyar, William B. Lober, Anne L. Herbaugh, Sally E.Shinstrom, Brenda K. Zierler, Cheong B. Soh, and Yongmin Kim. "Usage Patterns of a Personal Health Record by Elderly and Disabled Users." AMIA Annual Symposium Proceedings (2007): 409-13.
  • Katherine Kim. "Clinical Data Standards in Health Care: Five Case Studies." California HealthCare Foundation, 2005.
  • M. I. Kim, and K. B. Johnson. "Personal Health Records: Evaluation of Functionality and Utility." Journal of the American Medical Informatics Association 9, no. 2 (2002): 171.
  • A. F. Kittler, G. L. Carlson, C. Harris, M. Lippincott, L. Pizziferri, L. A. Volk, Y. Jagannath, J. S. Wald, and D. W. Bates. "Primary Care Physician Attitudes Towards Using a Secure Web-Based Portal Designed to Facilitate Electronic Communication with Patients." Informatics in Primary Care 12, no. 3 (2004): 129-38.
  • M. Kutner, E. Greenburg, Y. Jin, and C. Paulsen. "The Health Literacy of America's Adults." 76: National Center for Education Statistics, 2006.
  • D Lansky. December 3 2007.
  • D. Lansky. "A National Agenda for Personal Health Records? How Will We Really Empower Consumers in the Next Decade?" Connecting for Health presentation, 2006.
  • S. Lauriks, A. Reinersmann, H. G. Van der Roest, F. J. M. Meiland, R. J. Davies, F. Moelaert, M. D. Mulvenna, C. D. Nugent, and R. M. Droes. "Review of ICT-Based Services for Identified Unmet Needs in People with Dementia." Ageing Research Reviews 6, no. 3 (2007): 223-46.
  • W. Lazarus, and F. Mora. "Online Content for Low-Income and Underserved Americans: The Digital Divide's New Frontier. A Strategic Audit of Activities and Opportunities." Children's Partnership, 2000.
  • M. Ray Leavitt, A. "Cchit Town Hall." Paper presented at the Healthcare Information and Management Systems Society (HIMSS) Annual Conference 2008, Orlando, FL 2008.
  • R Lecker, D Armijo, S Chin, J Christensen, J Desper, A Hong, L Kneale, and Altarum Institute. "Review of Personal Health Record (PHR) Service Provider Market Privacy and Security." edited by Office of the National Coordinator for Health Information Technology (ONC) Department of Health and Human Services, 2007.
  • R. & Gordon Leonard, AR. Statistics on Vision Impairment a Resource Manual. Vol. 4th ed.: Research Institute of Lighthouse International, 2001.
  • E. M. Liederman, J. C. Lee, V. H. Baquero, and P. G. Seites. "The Impact of Patient-Physician Web Messaging on Provider Productivity." Journal of Healthcare Information Management–Vol 19, no. 2: 81.
  • –––. "Patient-Physician Web Messaging." Journal of General Internal Medicine 20, no. 1 (2005): 52-57.
  • Leili Lind, Daniel Karlsson, and Bengt Fridlund. "Patients' Use of Digital Pens for Pain Assessment in Advanced Palliative Home Healthcare." International Journal of Medical Informatics In Press, Corrected Proof (2007).
  • W. B. Lober, B. Zierler, A. Herbaugh, S. E. Shinstrom, A. Stolyar, E. H. Kim, and Y. Kim. "Barriers to the Use of a Personal Health Record by an Elderly Population." AMIA Annual Symposium Proceedings (2006): 514-8.
  • "LOINC." RegenStreif Institute, http://www.regenstrief.org/medinformatics/loinc.
  • K.D. Mandl, et al. "Indivo: A Personally Controlled Health Record for Health Information Exchange and Communication." BCM Medical Informatics and Decision Making 7, no. 25 (2007).
  • G. Marchionini. November 13 2007.
  • G. Marchionini, B. K. Rimer, and B. Wildemuth. "Evidence Base for Personal Health Record Usability Final Report to the National Cancer Institute." National Cancer Institute 2007.
  • "The Medical Home Position Statement." edited by AAMC Executive Council: Advisory Panel on Healthcare, 2008.
  • "Medicare Fee-for –Service Beneficiary Access to Physician Services: Trends in Utilization of Services, 2000 to 2002." edited by U.S. Government Accountability Office, 2005.
  • "Medicare: A Primer." Kaiser Family Foundation, 2007.
  • "Microsoft Healthvault Beta Version Privacy Statement." Microsoft Corporation, https://account.healthvault.com/help.aspx?topicid=PrivacyPolicy
  • K. Miller. "Health Level Seven, America's Health Insurance Plans, and the Blue Cross and Blue Shield Association Sign Mou to Collaborate on Portability Standards for Personal Health Records." Blue Cross Blue Shield Association, http://www.bcbs.com/news/bcbsa/hl7_ahip_bcbsa_collaborate_on_phrs.html?templateName=template-28767547&print=t
  • L Moreno, et. al. "Personal Health Records: What Do Underserved Consumers Want." Mathematica Policy Research, Inc., Issue Brief, no. 4 (2007).
  • J. Morrissey. "But What Does the Public Think?: For Consumers to Adopt PHRs, They Need Reasons That Hit Home." Journal of AHIMA 76, no. 10 (2005): 42-44.
  • D. B. Nash, D. Shulkin, F. Comite, R. Loeppke, B. Van Cleave, R. Kane, J. Christianson, and D. Pousma. "Measurement of the Impact of Winona Health Online." Disease Management 4, no. 1 (2001): 15-18.
  • "National Committee on Vital and Health Statistics Subcommittee on Privacy and Confidentiality Working Session. U.S. Department of Health and Human Services ". Paper presented at the National Committee on Vital and Health Statistics Subcommittee on Privacy and Confidentiality Working Session. U.S. Department of Health and Human Services Washington, D.C., June 2007 2007.
  • "National Consumer Health Privacy Survey 2005." California Healthcare Foundation, 2005.
  • "New Health Data Standards Gaining Support." Fierce Health IT, http://www.fiercehealthit.com/story/new-health-data-standards-gaining-support/2007-05-29.
  • Lori Nichols. December 19 2007.
  • –––. December 19 2007.
  • J. Nielsen. "Usability 101: Introduction to Usability." http://www.useit.com/alertbox/20030825.html.
  • K. L. Norman, and E. Panizzi. "Levels of Automation and User Participation in Usability Testing." Interacting with Computers 18, no. 2 (2006): 246-64.
  • "Office of the National Coordinator: Mission." Office of the National Coordinator. U.S. Department of Health and Human Services http://www.hhs.gov/healthit/onc/mission.
  • Jan Oldenberg. November 1 2007.
  • Jan Oldenburg. November 1 2007.
  • G. Olsen. "Designing Breakthrough Products: Going Where No User Has Gone Before." UX Matters, http://www.uxmatters.com/MT/archives/000130.php.
  • "Patient-Provider Secure Messaging Detailed Use Case." Department of Health and Human Services, Office of the National Coordinator for Health Information Technology, 2008.
  • "PDF Healthcare Overview." AIIM - Enterprise Content Manager, http://www.aiim.org/standards.asp?ID=31832.
  • "Personal Health Record Data Transfer between Health Plans: Standards for Electronic Data Interchange." America’s Health Insurance Plans and Blue Cross Blue Shield Association, 2006.
  • "Personal Health Records and Personal Health Record Systems." edited by U.S. Department of Health and Human Services. Washington, D.C., 2006.
  • "Personalized Healthcare Detailed Use Case." U.S. Department of Health and Human Services, Office of the National Coordinator for Health Information Technology, 2007.
  • "PHR-System Functional Model, Release 1 Dstu." HL7 EHR Technical Committee, 2007.
  • M. Pierson. "Perspective on PHR Clinical, Patient, and Consumer Perspectives." Paper presented at the AHIC 2007 Presentation, Whatcom County, WA 2007.
  • Sandra Potthoff, Jing Du, Stuart Speedie, and Donald P. Connelly. "Emergency Room Providers’ Perceptions of Mychart’s My Emergency Data: Findings from a Focus Group Study." AMIA Annual Symposium Proceedings (2007): 1082.
  • "Privacy and Confidentiality in the Nationwide Health Information Network." National Committee on Vital and Health Statistics, 2006.
  • "Privacy Statement." Elder Issues, http://www.elderissues.com/pages/index.cfm?fuseaction=customerservice&CFID=92501113&CFTOKEN=92444035&x=9871322.
  • "Project Healthdesign: Rethinking the Power and Potential of Personal Health Records." The Robert Wood Johnson Foundation, 2006.
  • J. D. Ralston, D. Carrell, R. Reid, M. Anderson, M. Moran, and J. Hereford. "Patient Web Services Integrated with a Shared Medical Record: Patient Use and Satisfaction." Journal of the American Medical Informatics Association 14, no. 6 (2007): 798.
  • "Remote Monitoring Draft Detailed Use Case." Department of Health and Human Services, Office of the National Coordinator for Health Information Technology, 2008.
  • "Research-Based Web Design and Usability Guidelines." edited by U.S. Department of Health and Human Services. Washington, DC, 2006.
  • "Review of the Personal Health Record Service Provider Market: Privacy and Security." Altarum, http://www.hhs.gov/healthit/ahic/materials/01_07/ce/PrivacyReview.pdf.
  • L Ricciardi. "Project Healthdesign and HL7 Functional Requirements for PHRs Compared." edited by Project Health Design, 2008.
  • Andis Robeznieks. "Getting Personal; Legal Liability, Patient-Data Overload among Issues Making Physicians Uneasy over Emergence of Personal Health Records." Modern Healthcare, May 21 2007.
  • "Roundtable Summary Report: Personal Health Records and Electronic Health Records. Navigating the Intersections." Oakland, CA: Agency for Healthcare Research and Quality, American Medical Informatics Association, Kaiser Institute for Health Policy, and the Robert Wood Johnson Foundation, 2006.
  • ACC/ HIMSS/ RSNA. "IHE It Infrastructure Technical Framework, Supplement 2006-2007: Cross-Enterprise Document Media Interchange (XDM)." Integrating the Health Enterprise, http://www.ihe.net.
  • "Rxnorm Overview." U.S. National Library of Medicine. National Instititutes of Health., http://www.nlm.nih.gov/research/umls/rxnorm/overview.html.
  • D. Z. Sands. "Making It Real: Patientsite." AMIA 2006 Spring Congress, http://www.amia.org/meetings/s06/post/sands_5-17_1030a.pdf.
  • Brigid McHugh Sanner. "Creating Age-Friendly Websites: Does Your Website Meet the Needs of Senior Surfers? This Communications Expert Outlines How You Can Make the Most of the Internet Opportunity." The Journal on Active Aging (2004).
  • George Scriban. January 10 2008.
  • B. Shneiderman. "Designing the User Interface: Strategies for Effective Human-Computer Interaction." (1997).
  • L. Sprague. "Personal Health Records: The People’s Choice?" NHPF Issue Brief 820 (2006): 1-13.
  • W. W. Stead. "Rethinking Electronic Health Records to Better Achieve Quality and Safety Goals." Annual Review of Medicine (2006).
  • Walter Sujansky, and Associates LLC. "Project Healthdesign: Common Platform Requirements: Technical Specifications Overview." California Health Care Foundation, 2008.
  • "Summary of Responses to an Industry Rfi Regarding a Role for Cms with Personal Health Records ". Center for Medicare and Medicaid Services, http://www.cms.hhs.gov/PerHealthRecords.
  • "Survey Finds Americans Want Electronic Personal Health Information to Improve Own Health Care." Markle Foundation, http://www.markle.org/downloadable_assets/research_doc_120706.pdf.
  • Paul C. Tang, Joan S. Ash, David W. Bates, J. Marc Overhage, and Daniel Z. Sands. "Personal Health Records: Definitions, Benefits, and Strategies for Overcoming Barriers to Adoption." Journal of the American Medical Informatics Association 13, no. 2 (2006): 121-26.
  • Paul Tang, and David Lansky. "The Missing Link: Bridging the Patient- Provider Health Information Gap." Health Affairs 24, no. 5 (2005): 1290-95.
  • C. Tessier, Waegermann, P., Kibbe, D., Smith, D., Brewer, P. "The Concept Paper of the Ccr - Version 3." Medical Records Institute, 2006.
  • C.B. Thielst. "The New Frontier of Electronic, Personal, and Virtual Records." Journal of Healthcare Management 52, no. 2 (2007): 75-78.
  • Joanne K. Tobacman, Pamella Kissinger, Marilyn Wells, Joan Prokuski, Mary Hoyer, Patricia McPherson, Julie Wheeler, Joyce Kron-Chalupa, Carol Parsons, Patricia Weller, and Bridget Zimmerman. "Implementation of Personal Health Records by Case Managers in a Vamc General Medicine Clinic." Patient Education and Counseling 54, no. 1 (2004): 27-33.
  • "Two in Five Adults Keep Personal or Family Health Records and Almost Everybody Thinks This Is a Good Idea." Health Care News 4, no. 13 (2004).
  • "An Uphill Climb for Personal Health Records." American Medical News (2006): 22.
  • "The Value of Personal Health Records, a Joint Position Statement for Consumers of Health Care." AHIMA/AMIA, 2007.
  • J. Walker, E. Pan, D. Johnston, J. Adler-Milstein, D. W. Bates, and B. Middleton. "The Value of Health Care Information Exchange and Interoperability." Health Affairs (2005).
  • Harry Wessel. "More Insurers Reimburse Doctors for Online Care." Orlando Sentinel, May 15 2006.
  • M. Wise, J. Y. Han, B. Shaw, F. McTavish, and D. H. Gustafson. "Effects of Using Online Narrative and Didactic Information on Healthcare Participation for Breast Cancer Patients." Patient Educ Couns (2008).
  • Yasnoff. "Healthvault–a Step in the Right Direction." http://williamyasnoff.com/?p=42.
  • Y. Y. Zhou, T. Garrido, H. L. Chin, A. M. Wiesenthal, and L. L. Liang. "Patient Access to an Electronic Health Record with Secure Messaging: Impact on Primary Care Utilization." Am J Manag Care 13 (2007): 418-24.


View full report

Preview
Download

"litreview.pdf" (pdf, 998.47Kb)

Note: Documents in PDF format require the Adobe Acrobat Reader®. If you experience problems with PDF documents, please download the latest version of the Reader®