An Inventory Of Federally Sponsored HIV And HIV-Relevant Databases. Database: Ryan White CARE Act Title III Program Data Report


Purpose Of The Database And Study Design: Title III of the Ryan White CARE Act funds outpatient HIV early intervention services for low-income, medically underserved individuals in established primary care systems. Data from Title III Program Data Reports are used for administrative and programmatic monitoring and to confirm conformance with statutory provisions set forth in Title III of the Ryan White CARE Act.

Nature Of The Data Collected: Cross-sectional unduplicated administrative, demographic, clinical, and psychosocial service data

Unit Of Analysis: Agency receiving Title III funding

Data Collection Methods: Grantees submit aggregate data on an annual, calendar year basis using standardized reporting forms. Submissions are commonly mailed in on a fax-to-data form or submitted electronically using the Internet.

General Attributes: A total of 165 grantees submit data on an annual basis. Reporting was initiated on a voluntary basis for FY 1992 and 1993 (with about 50% of grantees submitting data). Mandatory reporting was initiated inFY 1994. 174 projects will be reporting on CY 1999 activities and approximately 23 more will be added in FY 2000.

Major Data Constructs And Key Data Elements: Reports from grantees include: summary grantee data; counseling and testing services provided to clients; primary health care services provided to clients; referrals; case management and/or eligibility assistance services provided; outreach services provided; demographic characteristics and health status of clients; fiscal data related to the Title III award; and summary service utilization among grantee clients. The scope of data reported by the Title III grantee spans all patients, clients, or other individuals served by the agency, as well as services provided by the agency, regardless of the source of funding.

Strengths And Weaknesses Of The Study Design And Database: The quality of the data varies substantially among grantees. Title III grantees are asked to report data that spans all services provided and clients served by the agency, regardless of the funding source. Discretion is given to the grantee to define their Title III program. The actual number of clients served may be under-estimated and that estimation may vary among grantees because data reported may not include services provided through subcontractors.

Gaps In The Data Collected And Factors Leading To The Gaps: Insufficient data systems used by grantees; Title III program data report does not collect direct service utilization data.

Feasibility Of Linking With Other Databases: There are no identifiedlinks to other databases. A cross-Title AAR prototype is in development.

Process To Access The Database And Contact Person: This is not a database accessible to the public. For more information contact:Betty Gramley, Project Officer, HRSA HAB Title III Program, Division of Community Based Programs at (301) 443-0735.

Selected Citations:

HIV/AIDS Bureau, 1996 Program Data Report: Title III Early Intervention Services Ryan White CARE Act. Rockville: HRSA, 1998.