An Inventory Of Federally Sponsored HIV And HIV-Relevant Databases. Database: Ryan White CARE Act AIDS Education and Training Centers (AETCs)


Purpose Of The Database And Study Design: The AETC program is funded by Part F of the Ryan White CARE Act. The AETC program is a national network of centers that undertake targeted, multi-disciplinary education and training programs for health care workers in designated geographic areas. A goal of the AETC program is to expand the number of health care workers who are trained and motivated to counsel, diagnose, treat, and manage the care of HIV positive individuals, as well as help reduce high-risk behaviors that may lead to HIV infection. AETCs collaborate with providers funded by the Ryan White CARE Act, educational institutions, hospital and community-based providers, and professional associations to coordinate and conduct training. AETC projects and their subcontractors maintain several databases. The Individual Program Data Record is completed by participating grantees twice annually. Pertinent information forms are distributed at AETC training sessions to capture data regarding participants.

Nature Of The Data Collected: Cross-sectional administrative and training data

Unit Of Analysis: AETC grantees and subcontractors and providers participating in AETC training sessions

Data Collection Methods: Pertinent information forms are distributed at each training session supported by the AETC program. Attendees complete the forms and return them to the grantees for batching and submission to a centralized site for editing, automation, data analysis, and report development. The Individual Program Data Record reflects aggregate data collected on the submitted information forms, as well as additional programmatic data collected by the grantee and their performance sites.

General Attributes: Currently 15 centers and 75 local subcontractors participate in the program.

Major Data Constructs And Key Data Elements: Information forms include demographic, discipline, and training characteristics of the attendees at the training sessions. Additionally, information is collected regarding the attendees’ site of practice, the patient characteristics, the nature of HIV care they provide, and their training needs. The Individual Program Data Record summarizes the training sessions conducted by the grantee and their performance sites, collaborating organizations, number of sessions offered by level of the training sessions, summary characteristics of the attendees of their training sessions, and summary characteristics of patients seen by the attendees.

Strengths And Weaknesses Of The Study Design And Database: HAB is revising their data collection instruments. Revised forms will be introduced in 2000.

Gaps In The Data Collected And Factors Leading To The Gaps: HAB staff members have identified gaps in the data being collected and items that require updating to reflect new treatment and service modalities.

Feasibility Of Linking With Other Databases: Linkage might be feasible at the grantee or sub-contractor level. Unique identifiers of training session attendees are not recorded so linkage with other databases is not feasible.

Process To Access The Database And Contact Person: This is not a database accessible to the public. For more information contact: Juanita Koziol, Deputy Branch Chief, HRSA, HAB, AIDS Education and Training Center Program, Division of Training and Technical Assistance at (301) 443-6364.

Selected Citations: Additional information also may be obtained from the HAB web site: