An Inventory Of Federally Sponsored HIV And HIV-Relevant Databases. Database: Grantee Applications, Titles I and II of the Ryan White CARE Act


Purpose Of The Database And Study Design: Applications for funding systematically gather data annually that are used for administrative and fiscal monitoring and to confirm conformance with statutory provisions set forth in the Ryan White CARE Act. Special studies have also been conducted.

Nature Of The Data Collected: Cross-sectional administrative, clinical, and psychosocial service data

Unit Of Analysis: Title I and Title II grantees.

Data Collection Methods: Data are aggregated from administrative records, automated data systems, or hardcopy records. Grantees submit data using a standardized tabular format.

General Attributes: Automated data for selected tables is available for 1998 and 1999 application submissions for 49 Title I grantees and 54 Title II grantees.

Major Data Constructs And Key Data Elements: For Title I grantees data include: local HIV epidemiologic data by demographic group, HIV exposure, and other categories; Planning Council membership; Planning Council areas of interest/expertise; summary of the previous year’s expenditures by service area; progress in implementing previous year’s goals; qualitative assessment of populations with special needs; other sources of funding; HIV-related collaboration and coordination activities; and implementation plans. For Title II grantees data include: the previous year’s allocations by service area (i.e., Home and Community-Based Care, Health Insurance Continuation Program, ADAP, HIV Care Consortia, and Administration/Planning/Evaluation), the previous year’s disbursement and expenditures by program category; other sources of HIV-related funding; proposed implementation plans; detailed consortium information by program category; and the demographic characteristics of clients served within consortium region by program category.

Strengths And Weaknesses Of The Study Design And Database: The applications provide useful summary information regarding the processes undertaken to plan, allocate, and deliver HIV services. The quality and completeness of the data provided, however, vary among grantees.

Gaps In The Data Collected And Factors Leading To The Gaps: Unique client service utilization data are not available.

Feasibility Of Linking With Other Databases: Grantee identifiers (e.g., name of the jurisdiction) may be linked to other databases.

Process To Access The Database And Contact Person: This is not a database accessible to the public. For more information contact Richard Conviser, PhD, Chief, Evaluation Branch, HRSA HAB Office of Science and Epidemiology at (310) 443-6560.

Selected Citations:

Hines R, Rosenberg L, Nelson J, Marconi K. Changes in the composition of Ryan White CARE Act Title I Comprehensive Health Services Planning Councils from 1993 to 1996. Meeting of the Association of Health Services Research. 14: 279, 1997.