Beach S, R Schulz, J Yee, S Jackson. 2000. "Negative and positive health effects of caring for a disabled spouse: Longitudinal findings from the Caregiver Health Effects Study." Psychol Aging 15: 259-71.
Bevan JL, SK Vreeburg, S Verdugo, L Sparks. 2012. "Interpersonal conflict and health perceptions in long-distance caregiving relationships." J Health Commun 17: 747-61.
Chappell NL, RC Reid. 2002. "Burden and well-being among caregivers: examining the distinction." Gerontologist 42: 772-80.
Covinsky K, C Eng, L Lui, L Sands, A Sehgal, L Walter, D Wieland, G Eleazer, K Yaffe. 2001. "Reduced employment in caregivers of frail elders: Impact of ethnicity, patient clinical characteristics, and caregiver characteristics." J Gerontol A Biol Sci Med Sci 56: M707-13.
Covinsky K, L Goldman, E Cook, R Oye, N Desbiens, D Reding, W Fulkerson, A Connors, J Lynn, R Phillips. 1994. "The impact of serious illness on patients' families." JAMA 272: 1839-44.
Donelan K, C Hill, C Hoffman, K Scoles, P Feldman, C Levine, D Gould. 2002. "Challenged to care: Informal caregivers in a changing health system." Health Aff(Millwood) 21: 222-31.
Emanuel E, D Fairclough, J Slutsman, L Emanuel. 2000. "Understanding economic and other burdens of terminal Illness: The experience of patients and their caregivers." Ann Intern Med 132: 451-59.
Freedman VA, JC Cornman, D Carr. 2014. "Is spousal caregiving associated with enhanced well-being? New evidence from the Panel Study of Income Dynamics."Journals of Gerontology Series B: Psychological Sciences and Social Sciences doi: 10.1093/geronb/gbu004.
Freedman VA, BC Spillman. 2013. "Disability and Care Needs of Older Americans: An Analysis of the 2011 National Health and Aging Trends Study." Report to the HHS/ASPE, Office of Disability, Aging and Long-Term Care Policy. Available at http://aspe.hhs.gov/daltcp/reports/2014/NHATS-DCN.cfm.
Freedman VA, BC Spillman, PM Andreski, JC Cornman, EM Crimmins, E Kramarow, J Lubitz, LG Martin, SS Merkin, RF Schoeni, TE Seeman, TA Waidmann. 2013. "Trends in late-life activity limitations in the United States: An update from five national surveys." Demography 50(2): 661-71.
Gibson MJ, A Houser. 2007. "Valuing the Invaluable: A New Look at the Economic Value of Family Caregiving." AARP Public Policy Institute Issue Brief.
Giovannetti E, J Wolff. 2010. "Cross-survey differences in national estimates of numbers of caregivers of disabled older adults." Milbank Q 88: 310-49.
HHS. 2013. "National Plan to Address Alzheimer's Disease: 2013 Update." Report from the National Alzheimer's Project Act. Available athttp://aspe.hhs.gov/daltcp/napa/NatlPlan2013.pdf.
IOM. 2008. "Retooling for an Aging America: Building the Health Care Workforce." Washington, DC: The National Academies Press.
Johnson R, J Wiener. 2006. "A Profile of Frail Older Americans and Their Caregivers." Washington, DC: Urban Institute.
Kasper JD, VA Freedman, BC Spillman. 2013a. "National Study of Caregiving User Guide." Baltimore, MD: Johns Hopkins University School of Public Health. Available at http://www.nhats.org.
Kasper JD, VA Freedman, BC Spillman. 2013b. "Classification of Persons by Dementia Status in the National Health and Aging Trends Study." Report to the HHS/ASPE, Office of Disability, Aging and Long-Term Care Policy, and Technical Paper #5. Available at http://www.nhats.org.
Kasper JD, VA Freedman, BC Spillman. 2014. "Disability and Care Needs of Older Americans by Dementia Status: An Analysis of the 2011 National Health and Aging Trends Study." Report to the HHS/ASPE, Office of Disability, Aging and Long-Term Care Policy. Available at http://aspe.hhs.gov/daltcp/reports/2014/NHATS-DS.cfm.
Kasper JD, U Steinbach, J Andrews. 1994. "Caregiver role appraisal and caregiver tasks as factors in ending caregiving." J of Aging and Health 6(3): 397-414.
Katz S, AB Ford, AW Moskowitz, BA Jackson, MW Jaffe. 1963. "Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function." JAMA 185: 914-9.
Kaye H, C Harrington, M LaPlante. 2010. "Long-term care: Who gets it, who provides it, who pays, and how much?" Health Aff (Millwood) 29: 11-21.
Kiecolt-Glaser J, K Preacher, R MacCallum, C Atkinson, W Malarkey, R Glaser. 2003. "Chronic stress and age-related increases in the proinflammatory cytokine IL-6." Proc Natl Acad Sci USA 100: 9090-5.
Kramer BJ. 1997. "Gain in the caregiving experience: Where are we? What next?" Gerontologist 37: 218-32.
Kroenke K, RL Spitzer, JBW Williams, B Lowe. 2009. "An ultra-brief screening scale for anxiety and depression: The PHQ-4." Psychosomatics 50: 613-621.
Lawton M, E Brody. 1969. "Assessment of older people: Self-maintaining and instrumental activities of daily living." Gerontologist 9: 179-86.
Lawton MP, MH Kleban, M Moss, M Rovine, A Glicksman. 1989. "Measuring caregiving appraisal." Jrnl of Gerontology 44(3): 61-71.
Levine C, D Halper, A Peist, DA Gould. 2010. "Bridging troubled waters: Family caregivers, transitions, and long-term care." Health Aff (Millwood) 29: 116-24.
Lowe B, I Wahl, M Rose et al. 2009. "A 4-item measure of depression and anxiety: Validation and standardization of the Patient Health Questionnaire-4 (PHQ-4) in the general population." Journal of Affective Disorders 122(1-2): 86-95.
Pearlin L, J Mullan, S Semple, M Skaff. 1990. "Caregiving and the stress process: An overview of concepts and their measures." Gerontologist 30: 583-94.
Pinquart M, S Sorensen. 2011. "Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison." Psychol Aging 26: 1-14.
Pinquart M, S Sorensen. 2007. "Correlates of physical health of informal caregivers: A meta-analysis." J Gerontol B Psychol Sci Soc Sci 62: P126-37.
Pinquart M, S Sorensen. 2003. "Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis." Psychol Aging18: 250-67.
Reinhard S, C Levine, S Samis. 2012. "Home Alone: Family Caregivers Providing Complex Chronic Care." Washington, DC: AARP and United Hospital Fund.
Roth, DL, M Perkins, VG Wadley, EM Temple, WE Haley. 2009. "Family caregiving and emotional strain: Associations with quality of life in a large national sample of middle-aged and older adults." Qual Life Res 18: 679-88.
Schulz R., A Mendelsohn, W Haley, D Mahoney, R Allen, S Zhang, L Thompson, S Belle. 2003. "End-of-life care and the effects of bereavement on family caregivers of persons with dementia." N Engl J Med 349: 1936-42.
Spillman BC. 2009. "Analyses of Informal Caregiving 2004." Report to the HHS/ASPE, Office of Disability, Aging and Long-Term Care Policy.
Spillman BC. 2011. "Updated Analyses of Trends in Elderly Disability." Report to the HHS/ASPE, Office of Disability, Aging and Long-Term Care Policy.
Spillman BC, K Black. 2005. "Staying the Course: Trends in Family Caregiving." AARP Public Policy Institute Issue Paper #2005-17.
Spillman BC, SK Long. 2009. "Does high caregiver stress predict nursing home entry?" Inquiry 46(2):140-161.
Spillman B, L Pezzin. 2000. "Potential and active family caregivers: Changing networks and the 'sandwich generation'." Milbank Q 78: 347-74, table of contents.
Stone R, G Cafferata, J Sangl. 1987. "Caregivers of the frail elderly: A national profile." Gerontologist 27: 616-26.
Stone R, P Kemper. 1989. "Spouses and children of disabled elders: How large a constituency for long-term care reform?" Milbank Q 67: 485-509.
Stuckey J, M Neundorfer, K Smyth. 1996. "Burden and well-being: The same coin or related currency." Gerontologist 36: 686-93.
Vitaliano P, J Zhang, J Scanlan. 2003. "Is caregiving hazardous to one's physical health? A meta-analysis." Psychol Bull 129: 946-72.
Wolff J, J Kasper. 2006. "Caregivers of frail elders: Updating a national profile." Gerontologist 46: 344-56.
Wolff J, D Roter. 2008. "Hidden in plain sight: Medical visit companions as a quality of care resource for vulnerable older adults." Arch Intern Med 168: 1409-15.
Zarit SH, EE Femia, K Kim, CJ Whitlatch. 2010. "The structure of risk factors and outcomes for family caregivers: Implications for assessment and treatment."Aging Ment Health 14: 220-31.