INDEPENDENT CHOICES: A National Symposium on Consumer-Direction and Self-Determination for the Elderly and Persons with Disabilities. AGENDA

SUNDAY, JUNE 10, 2001

2:00-6:00pm     Registration

6:00-7:00pm     Reception

7:00-9:00pm     Dinner

Video: "Independent Choices: Cash and Counseling", AR

Speaker: The Honorable Mike Huckabee, Governor of AR (Bio)

 

MONDAY, JUNE 11, 2001

7:30-8:30am     Registration/Continental Breakfast

8:30-9:00am     Welcoming Remarks

9:00-10:30am     Consumer-Direction/Self-Determination

PANEL 1: "Consumer Direction" and "Self-Determination"--What Do These Terms Mean to Advocates of Home and Community-Based Personal Assistance Services

Video: "The Choice is Yours: A New Option for Personal Care", NJ

Facilitator: Larry Polivka--FL Policy Exchange Center on Aging (Bio)

Andrew Batavia--FL International University (Bio) (2000 Report)

Judi Chamberlin--Center for Psychiatric Rehabilitation, MA (Bio)

Jim Firman--National Council on the Aging, DC

Lynn Friss Feinberg--Family Caregiver Alliance, CA (Bio) (2000 Article) (2000 Report)

Jackie Golden--Inclusion Research Institute, MD

Joe Meadours--Team PC/Kennedy Project, IL

PANEL 2: Consumer-Directed Services: Older, More Recent, and Newly Emerging Approaches

Video: "Your CLASS Options", TX

Facilitator: Larry Polivka--FL Policy Exchange Center on Aging (Bio)

Marc Cohen--LifePlans, MA

Lora Connolly--CA Health and Human Services Agency (Bio)

Mary Faherty--LaCrosse County Human Services Department, WI (Bio)

Tommy Ford--TX Department of Human Services (Bio)

Julia Huddleston--OR Department of Human Services (Presentation)

Kevin Mahoney--Boston College Graduate School of Social Work, MA (Bio) (Presentation) (2000 Article) (2000 Article)

Charles Moseley--University of NH (Bio) (1999 Article) (Report)

Marcia Smith--Evercare, MN (Bio)

10:30-10:45am     Break

10:45-11:45am     Consumer-Direction/Self-Determination

PANEL 3: Medicaid Beneficiary and Their Family Experiences with Self-Determination and Consumer-Direction

Facilitator: Lee Zacharias--ME Consultant

Doris Dennison--NM Consumer

Alan Garry--FL Consumer

Ken Holden--FL Developmental Disabilities Consumer-Directed Care Project (Bio)

Kendra Holden--FL Developmental Disabilities Consumer-Directed Care Project (Bio)

Meg Kane--National Coalition on Self-Determination, OH (Bio)

Lisa Mangieri--NJ Consumer (Bio)

Bobbie Quilleon--FL Developmental Disabilities Consumer-Directed Care Project (Bio)

William Spencer--CDC and Family Care Council, FL

Tammy Svihla--NJ Consumer

Elsa Torres--FL Care Provider

Grace Wall--FL Consumer

11:45am-1:30pm     Lunch

Video: "Independent Choices," the News Hour with Jim Lehrer

Speakers:

Bobby Jindal, Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services, DC (Bio)

Ed Sontag, Deputy Chief of Staff, U.S. Department of Health and Human Services, DC

1:30-3:00pm     Consumer-Direction/Self-Determination

PANEL 4: Evaluation Research Findings

Facilitator: Pam Doty--ASPE/DALTCP, DC (Bio) (2000 Report) (1996 Report)

Ted Benjamin--UCLA Department of Social Welfare, CA (Bio) (2000 Report)

Valerie Bradley--Human Services Research Institute, MA (Presentation) (1999 Report)

Jean Campbell--University of MO (Bio) (Presentation)

Jim Conroy--Center for Outcome Analysis, PA (Bio) (Presentation)

Jennifer Schore--Mathematica Policy Research, NJ (Bio) (Presentation) (2000 Report)

3:00-3:15pm     Break

3:15-4:45pm     Consumer-Direction/Self-Determination

PANEL 5: State Program Administrator's Experiences

Moderator: Jean Tuller--Centers for Medicare and Medicaid Services, MD (Bio)

Sandra Barrett--AR Division of Aging and Adult Services (Presentation)

William Ditto--NJ Office on Disability Services (Bio) (Presentation)

Beth McArthur--CT Department of Mental Retardation (Bio) (Presentation)

Kerry Schoolfield--Developmental Disabilities Program, FL

Denise Winslow--UT Division of Services for People with Disabilities

TUESDAY, JUNE 12, 2001

7:30-8:30am     Continental Breakfast

8:30-10:45am     Intensive Workshops on Selected Topics

WORKSHOP I: Quality Assurance in Consumer-Directed Programs

Robert Applebaum--Scripps Gerontology Center, OH

Hilary Brazzell--FL Department of Children and Families

Bill Coffelt--National Coalition on Self-Determination, CA (Bio)

Robert Gettings--National Association of State Directors of Developmental Disabilities Services, VA (Bio)

Beth Jackson--The MEDSTAT Group, MA

Audrey Karibiyak--FL Consumer

Suzanne Kunkel--Scripps Gerontology Center, OH

Charles Moseley--University of NH (Bio) (1999 Article) (Report)

Elsa Torres--FL Care Provider

WORKSHOP II: Consumer-Employed Workers

Maggie Belton--Personal Assistance Service Council, CA (Bio)

Ted Benjamin--UCLA Department of Social Welfare, CA (Bio) (2000 Report)

Alan Garry--FL Consumer

Ken Holden--FL Developmental Disabilities Consumer-Directed Care Project (Bio)

Kendra Holden--FL Developmental Disabilities Consumer-Directed Care Project (Bio)

Bobbie Quilleon--FL Developmental Disabilities Consumer-Directed Care Project (Bio)

Marilyn Saviola--Independence Care System, NY

Cathie Sullivan--Service Employees International Union, DC (Bio)

Jane Tilly--The Urban Institute, DC (Bio) (2000 Article)

Forest Burns Vick, Jr.--CA Caregiver Resource Center System

WORKSHOP III: The Role of Nursing and Social Work Professionals in Supporting Consumer Direction
Part A: How does being a Consultant or Counselor Differ from being a Case Manager or Service Broker

Tanya Dickens--FL Developmental Disabilities Consumer-Directed Care Project (Bio)

Claudia Hoppe--FL Department of Elder Affairs (Bio)

Donna McDowell--WI Bureau on Aging and Long-Term Care Resources

Tom Reimers--FL Department of Elder Affairs (Bio)

Rhonda Sloan--FL Developmental Disabilities Consumer-Directed Care Project (Bio)

Robin Smith--FL Division of Senior Services

Paula Walsh--Heightened Independence and Progress, NJ

Lee Zacharias--ME Consultant

Part B: Nurse Delegation Options

Cindy Hannum--OR Department of Health Services (Bio)

Laura Hershey--CO Consultant

Beverly Lynch--National Coalition on Self-Determination, KY (Bio)

Lisa Mangieri--NJ Consumer (Bio)

Susan Reinhard--Rutgers University, NJ (Bio)

WORKSHOP IV: Consumer-Directed Fiscal and Supportive Intermediary Services

Lynne Camillo--Internal Revenue Service, DC (Bio)

Paul Carlino--Internal Revenue Service, DC (Bio)

Dennis Fitzgibbons--Alpha One, ME (Bio)

Sue Flanagan--EP&P Consulting, DC (Bio) (Presentation) (2000 Article) (1997 Report)

William Fuller--PAAS, VA (Bio)

Patricia Gittens--FL Consumer

Mike Oxford--Topeka Independent Living Resource Center, KS

David Robar--Granite State Independent Living, NH (Bio)

Sharon Theodore--NY Consumer

WORKSHOP V: Consumer Direction and Managed Care

Mary Faherty--LaCrosse County Human Services Department, WI (Bio)

Rick Jelinek--Evercare, MN (Bio)

Portia McCormack--Independence Care System, NY (Bio)

Mark Meiners--University of MD (Bio)

Pam Parker--MN Senior Health Options

WORKSHOP VI: Meeting the Needs of Diverse Constituencies

Doris Dennison--NM Consumer

Lynn Friss Feinberg--Family Caregiver Alliance, CA (Bio) (2000 Article) (2000 Report)

Julia Huddleston--OR Department of Human Services (Presentation)

Mark Sciegaj--Brandeis University, MA (Bio) (Presentation)

Lori Simon-Rusinowitz--University of MD (Bio) (Presentation) (2000 Article) (2000 Article)

William Spencer--CDC and Family Care Council, FL

Tammy Svihla--NJ Consumer

Grace Wall--FL Consumer

10:45-11:15am     Break

11:15am-12:00pm     Consumer-Directed Care Models in Other Countries

Speaker: John Halloran, European Social Network, UK (Bio)

12:15-1:45pm     Lunch

Speaker--Carl Littlefield, Assistant Secretary and DD Coordinator, FL Department of Children and Families

1:45-3:30pm     Consumer-Direction/Self-Determination

PANEL 6: Next Steps/Future Directions for Consumer-Directed Services

Facilitator: Judy Miller Jones--George Washington University, DC (Bio)

Suzanne Crisp--AR Division of Aging and Adult Services

Robert Gettings--National Association of State Directors of Developmental Disabilities Services, VA (Bio)

Chris Gianopoulos--ME Department of Human Services (Bio)

Laura Hershey--CO Consultant

Judith Heumann--Heumann and Associates, DC (Bio)

Beverly Lynch--National Coalition on Self-Determination, KY (Bio)

Glenn Stanton--Centers for Medicare and Medicaid Services, MD (Bio)

Nancy Thaler--PA Department of Public Welfare (Bio)

Maggie Tinsman--IA State Senator (Bio)

3:30-3:45pm     Break

3:45-5:00pm     Consumer-Direction/Self-Determination

PANEL 7: Consumer-Direction and Self-Determination in Broader Perspective

Facilitator: Judy Miller Jones--George Washington University, DC (Bio)

Lee Bezanson--NH Department of Health and Human Resources (Bio)

Bill Coffelt--National Coalition on Self-Determination, CA (Bio)

Lex Frieden--Institute for Rehabilitation and Research, TX

Thomas Hamilton--Centers for Medicare and Medicaid Services, MD

Cindy Hannum--OR Department of Health Services (Bio)

Don Hruby--Division of Mental Health, IA

Judy Riggs--Alzheimer's Association, DC (Bio)

John Rother--American Association of Retired Persons, DC

5:00pm     Adjourn