Improving Care for Populations Disproportionally Affected by Alzheimer’s Disease and Related Dementias. People Experiencing Younger-Onset Dementia


The Administration on Aging (AoA), within ACL, led collection of input regarding people experiencing younger-onset Alzheimer's disease. AoA staff emailed or telephoned major dementia-focused organizations and individuals prominent in the field of younger-onset dementia and asked them to provide input through telephone conference calls. Invited organizations included: Alzheimer's Association; Alzheimer's Foundation of America; Association for Frontotemporal Degeneration; Banner Alzheimer's Institute; Leaders Engaged on Alzheimer's Disease (LEAD); Lewy Body Dementia Association; Indiana Alzheimer's Disease Center; the AIDS Healthcare Foundation; University of California, San Diego Shiley-Marcos Alzheimer's Disease Research Center; and the University of California Los Angeles (UCLA) David Geffen School of Medicine. Twenty-six experts participated in at least one of the two listening sessions. One of the sessions was a face-to-face meeting with an additional phone conference line, and the other was a teleconference. Additional written input was provided by some participants after the sessions.

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