IDD and Dementia. Section 5: Services and Financing System


This section aims to inform the community of providers who primarily serve individuals aged 60 or older about the services and support system that individuals with IDD generally access. This section describes typical services available in most states. It is important to acknowledge that, with the promulgation of the Centers for Medicare and Medicaid (CMS) "home and community-based settings rule," states are in a transition period to further develop their array of services to be more person-centered and integrated in the community. This has implications for all populations receiving Medicaid-funded home and community-based services (HCBS) as well as for individuals with dementia and Alzheimer's. (See Appendix A for a brief description of the CMS settings rule.)

Existing IDD services, and the settings in which they are delivered, may differ from the services that older adults tend to access. Many of the services available to individuals with IDD are habilitative in nature, focusing on helping this population acquire and improve skills to be more independent in the community. When individuals with IDD develop dementia, their caregivers and their primary providers must learn to navigate between the two systems developed around each specific population.

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